Who pulled the plug?: Was just thinking... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Who pulled the plug?

uknlv profile image
12 Replies

Was just thinking 'is it just me or do others suffer their fatigue the same way?' It has been recently that I have noticed that my fatigue just seems to come on all of a sudden, it used to be I noticed I was very tired after doing things, but now I can be sitting on the sofa or in front of the computer, and I am a bit, tired as that seems a constant state these days, when WHAM I am exhausted and can hardly keep my eyes open! It literally is like someone has pulled my plug. Do any of you get it like this or is it just some weird wiring on my part?

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uknlv profile image
uknlv
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12 Replies
Mcgruder profile image
Mcgruder

No I am excatly the same, but i put mine down the stressful job that I do, and that I have hardly any free time to myself!!!!!

Anteater profile image
Anteater in reply to Mcgruder

I am so so glad my company retired me on Ill Health - I can just about manage to get about the day let alone travel and do a job.

chillymilly profile image
chillymilly

I'm the same too, but I thought it was perhaps the various medications that i'm on for the Raynauds and Peripheral Neuropathy. I do sit at my computer for 8 hours a day during the week so that can be a bit tedious to say the least, but I do ocassionally literally nod off and have to go and have a lie down. Another advantage to working from home!

Rach18 profile image
Rach18

I've been suffering extreme tiredness for the last few months, I initailly put it down to being under a lot of stress at work but have recently been having numerous blood tests at the doctors to try and rule out anything physical that could be causing it. Still haven't got to the bottom of it but I do have days when I feel completely exhausted for no apparent reason. Perhaps I've worn myself out trying to keep warm this winter, it uses up a lot of energy to keep putting on and taking off all those layers!

uknlv profile image
uknlv

Perhaps we should see about alternative power sources for us! Wouldn't it be great if we could just take a magic pill and BAM we are all energised and ready to go again!

Emma2 profile image
Emma2

I think I am tired simply from my lifestyle - I am always on the go and I barely get 5 hours of sleep a hight. I have a pretty stressful job and when I'm not working I'm training in the gym and doing martial arts. I am a total exercise junkie but I think I push myself even harder these days - I want to get the most out of what I do just in case I do start to develop any other symptoms or complications of CREST. Sometimes I probably push too hard and I know that stress etc is not good for me either but I have to do what makes me happy. I don't know about anyone else but I find that I am often most tired on the days when I do get to chill out a bit - you think "I haven't done anything yet I'm shattered". I think it's just the body's way of saying that it wants you to rest.

AliW profile image
AliW in reply to Emma2

Hi Emma2 You sound a bit like me! I know how you feel - it's 'I'll do this whilst I can' BUT recently I really have struggled with fatigue/stress & its hard to admit I need to slow things down a bit ! That's the bigger struggle admitting it's time to change the schedule- then what to cut out ...... ;)

Emma2 profile image
Emma2 in reply to AliW

I am too stubborn to change my ways at the minute but I suppose this may change as I get older and things change. Perhaps we simply need more hours in the day and days in the week!! :-)

Geordie_Kate profile image
Geordie_Kate

It is crackers. I haven't been capable of falling asleep in my dinner since I was a toddler!! I have now downgraded from chronic fatigue to moderate fatigue since stopping my medication. I think mycophenolate was the culprit for me.

zenabb profile image
zenabb

I am often exhausted but I know it's due to my systemic sclerosis. So what I do is to make sure that I don't have something else that makes it worse and I do something about that. It may be that I need to go to the podiatrist for the pain from the corn on my foot. I had a blood test that showed that I am anemic so I have been given iron - which gives me diarrhoea so I have to take less of my softeners (docusate sodium). I have asked around from people with systemic sclerosis everyone feels exhausted, better sometimes other times awful. Iloprost also makes us exhausted and then better.

RosemerryVenet profile image
RosemerryVenet

Just read this from ages ago. I thought I was the only one who retired due to ill health - felt very wimpish until I read about anteater - I can keep going for a couple of hours and then just want to sleep. Trying to get Incapacity benefit/employment support allowance, but they seem to think I am capable of work. Have letters of support from GP and OT. Hope they work, as I know I couldn't hold down regular employment.

GinaAnn profile image
GinaAnn

Genisis Today makes an Acai' vitamin chew for energy that truly works wonders as long as you chew one faithfully every morning. Find it at Wal-Mart on the shelves next to the cash registers. Purple zip lock package.

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