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PMRGCAuk

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Update on “aching arm and cold hand” - (and fractured shoulder)

I now have an appointment at a Vascular Clinic in July…BUT events have overtaken me…10 days ago I tripped on a toy car and fell on a wooden floor! I have a...

I now have an appointment at a Vascular Clinic in July…BUT events have overtaken...

KerryIreland

•10 minutes ago

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Prednislone reducing and increased glaucoma

Hi I am down to 3.5mg Pred from 100mg for Temporal Arteritis. My vision has got extremely bad.I have Steroid induced glaucoma.I saw a chemist.She thinks I...

Hi I am down to 3.5mg Pred from 100mg for Temporal Arteritis. My vision has got ...

Raewynne

•16 minutes ago

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Does PMR affect one side of your body more than the other ?

I have only just been diagnosed two weeks ago but I have noticed a distinct difference in how PMR is affecting my RHS more than my left . And how long the...

I have only just been diagnosed two weeks ago but I have noticed a distinct diff...

Murphysauntie

•2 hours ago

1 Reply

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glaucoma

I’m a. glaucoma patient. Recently suffer from muscle pain at night. Anyone else report this side effect. I’m 75 yrs

I’m a. glaucoma patient. Recently suffer from muscle pain at night. Anyone else ...

Queenieio

•12 hours ago

1 Reply

..... and now the next thing comes along !!

Hi, As if I thought things could not get any worse, I have just been diagnosed with sciatica, having suffered with the PMR for the past year and wondered if...

Hi, As if I thought things could not get any worse, I have just been diagnosed...

gillsky8

•14 hours ago

8 Replies

cbd gummies and prednisone

anybody wean off prednisone with CBD gummy’s been on 9 1/2 years several flares of GCA and PMR start d with 60 mg after biopsy , can never get below six or...

anybody wean off prednisone with CBD gummy’s been on 9 1/2 years several flares...

casse

•17 hours ago

5 Replies

gastric upset

Good afternoon wise people, I gave been on Prednisolone for almost 2 years , stopped my Lansoprazole 9 months ago with no ill effects . Now over the last 4...

Good afternoon wise people, I gave been on Prednisolone for almost 2 years , st...

5goFlotilla

•18 hours ago

8 Replies

Endurance Athlete w PMR

I was diagnosed with PMR at age 55, days after completing an Ironman race. I was on antibiotics for a bad sinus infection during the race. Not sure if PMR was...

I was diagnosed with PMR at age 55, days after completing an Ironman race. I was...

Runbikeswim2

•19 hours ago

7 Replies

Fatigue..again...Moderna jab?

Hello everyone. Reduced to 2.75, working slowly towards 2.5. Back from lovely break in Ireland tracing my roots. Had Moderna jab, aching arm and headache,...

Hello everyone. Reduced to 2.75, working slowly towards 2.5. Back from lovely br...

Temoral

•21 hours ago

7 Replies

Sertraline and Dark Circles under Eyes.

I’ve been taking Sertraline and Gabapentin for a few months and have o developed really pronounced dark eye circles. I have lost weight as well. Has anyone...

I’ve been taking Sertraline and Gabapentin for a few months and have o developed...

autumnlass

•23 hours ago

4 Replies

Prednisolone tapering below 3mgs

Over 3 years have tapered between 30mgs and zero, at which point suffered a flare up having reduced by 1 mg a month once I reached 5 mgs . Recently tapering...

Over 3 years have tapered between 30mgs and zero, at which point suffered a flar...

moconnolly

•23 hours ago

4 Replies

update

I took the 10mg of hydrocortisone with my 6.5 of Prednislone a few days ago and I felt terrible high bp,blurry vision, high anxiety.So I’ve now decided to...

I took the 10mg of hydrocortisone with my 6.5 of Prednislone a few days ago and ...

Oscarsnan

•24 hours ago

9 Replies

PMR Flare Up ?

After being on 15mg press for 5 weeks and then 12.5mg for 4 weeks I have just dropped to 10mg. Since then on two occasions after doing some physical work I...

After being on 15mg press for 5 weeks and then 12.5mg for 4 weeks I have just dr...

Foodie24

•1 day ago

1 Reply

Stomach problems

After taking my pred at 2:30 am for about 12 days with good results, I awoke this morning with a bad feeling in my stomach. I took famatodine, and that helped...

After taking my pred at 2:30 am for about 12 days with good results, I awoke thi...

Aqua47

•1 day ago

10 Replies

Prednisone vs Acterma with steroid induced diabetes. Really terrified

Update: April 2024 was scheduled for eye surgery for Strabismus which was canceled days before when in the same week I was determined by my Endocrinologist to...

Update: April 2024 was scheduled for eye surgery for Strabismus which was cancel...

JanetGarrettN

•2 days ago

34 Replies

Caffeine and GCA Headaches

Just a quick question..... if coffee/caffeine helps relieve a headache does that tend to either confirm or rule out that the headache is GCA related? Thanks

Just a quick question..... if coffee/caffeine helps relieve a headache does tha...

montebello

•2 days ago

23 Replies

Best wishes and thank you!

A big thank you to James Robinson who's running the Leeds marathon on Sunday to raise funds for PMRGCAuk. A big thank you also to many of you here on our...

A big thank you to James Robinson who's running the Leeds marathon on Sunday to ...

Fran_Benson

Partner•2 days ago

2 Replies

Feeling a greasy taste

I have been feeling greasy taste in my mouth for about a week now, I'm taking Ciprotab. Please can it cause it and what should I do to resolve it

I have been feeling greasy taste in my mouth for about a week now, I'm taking Ci...

ToniaC

•2 days ago

5 Replies

The honey bee

I have been looking at the delightful picture of the Italian honey bee with pollen on its legs. What I am puzzled about is on the right. I cannot make out...

I have been looking at the delightful picture of the Italian honey bee with pol...

prunus

•2 days ago

10 Replies

Spoke too soon

After I posted, I found some chatter from four years ago addressing my concerns. It seems like I just need to wait to taper until I have better control of my...

After I posted, I found some chatter from four years ago addressing my concerns....

Bummed24

•2 days ago

6 Replies

Should it take this long to taper with PMR/GCA?

I am so sorry to be needing advice again, but I am wondering if anyone else has struggled to wean from higher doses of Prednisone for PMR and GCA. Since late...

I am so sorry to be needing advice again, but I am wondering if anyone else has ...

Bummed24

•2 days ago

12 Replies

Cortisol levels

I was diagnosed with PMR 16 months ago. I was put on 20mg of Prednisone and not told to taper for several weeks. Since then I've been cautiously tapering by...

I was diagnosed with PMR 16 months ago. I was put on 20mg of Prednisone and not...

musclesinflamed

•2 days ago

3 Replies

Artificial sweeteners

I have reacted to artificial sweeteners for many years .At first I didn't know why I would suddenly have pain and diarrhea. Then I had a violent reaction...

I have reacted to artificial sweeteners for many years .At first I didn't know w...

Busyrobyn

•3 days ago

12 Replies

Right Temple Pain but Tolerable

I’m currently taking 35 mg of prednisone and dropping to 30 mg on May 11. My first rheumatologist appointment is May 16. GCA was not confirmed by biopsy but...

I’m currently taking 35 mg of prednisone and dropping to 30 mg on May 11. My fi...

Moaningxcat

•3 days ago

25 Replies

Pre-medication issues for suspected PMR

Awaiting final test results for PMR and rheumatologist appt. 3 Drs. have already indicated PMR following examination, history and initial bloods. My question...

Awaiting final test results for PMR and rheumatologist appt. 3 Drs. have alread...

Fatsiajaponica

•3 days ago

4 Replies

Heebeejeebies on low pred??

I have been down to 1mg of prednisone since January and toggling back and forth between 1 and 1/2 mg since April. But I feel mentally out of whack. Paranoid....

I have been down to 1mg of prednisone since January and toggling back and forth ...

Greytree

•3 days ago

55 Replies

PMR cough

I have had PMR for 6 years and on the whole controlled with Leflunomide. Recently I have had a cough for about a month , checked by Gp who didnt feel it was...

I have had PMR for 6 years and on the whole controlled with Leflunomide. Recent...

Ritz02

•3 days ago

12 Replies

Skipping a dose of Methotrexate

Hi All, I have a question re. Is it ok to skip a dose of Methotrexate for 1 week?I am on 10mgs. Not too many symptoms apart from some cramping a day or so...

Hi All, I have a question re. Is it ok to skip a dose of Methotrexate for 1 week...

lkcreedon

•3 days ago

21 Replies

Back up to a high steroid dose

Hi everyone, I was diagnosed with PMR in 2018 if i remember correctly. After 6 years I managed to get down to 0.5mg Pred just 2 weeks ago. Then something...

Hi everyone, I was diagnosed with PMR in 2018 if i remember correctly. After 6 ...

studiomaster

•3 days ago

11 Replies

high inflammation markers but no pain.

I was on Prednisolone for about 6 years. For the last year I have been on zero with no recurrent symptoms of PMR. I have recently had a number of blood tests...

I was on Prednisolone for about 6 years. For the last year I have been on zero w...

Cycleman

•3 days ago

8 Replies

Write a post or ask a question

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

Update on “aching arm and cold hand” - (and fractured shoulder)

Prednislone reducing and increased glaucoma

Does PMR affect one side of your body more than the other ?

glaucoma

..... and now the next thing comes along !!

cbd gummies and prednisone

gastric upset

Endurance Athlete w PMR

Fatigue..again...Moderna jab?

Sertraline and Dark Circles under Eyes.

Prednisolone tapering below 3mgs

update

PMR Flare Up ?

Stomach problems

Prednisone vs Acterma with steroid induced diabetes. Really terrified

Caffeine and GCA Headaches

Best wishes and thank you!

Feeling a greasy taste

The honey bee

Spoke too soon

Should it take this long to taper with PMR/GCA?

Cortisol levels

Artificial sweeteners

Right Temple Pain but Tolerable

Pre-medication issues for suspected PMR

Heebeejeebies on low pred??

PMR cough

Skipping a dose of Methotrexate

Back up to a high steroid dose

high inflammation markers but no pain.

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