Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,756 members • 39,022 posts

All posts for July 2024

ferritin levels high - abdominal scan booked.

hello concerned about my gp referring me for abdominal and pelvic ultrasound because of my ferritin levels. May 185 June 205 July 191 My Google...

hello concerned about my gp referring me for abdominal and pelvic ultrasound be...

NewPMR53

•19 days ago

8 Replies

methotrexate for Life?

Currently on 20 mgs Methotrexate while also weaning my Prednisone . I am currently at 10 mgs of Pred tapering by 1 mg each month.I am wondering if I will...

Currently on 20 mgs Methotrexate while also weaning my Prednisone . I am curr...

Darcy2000

•19 days ago

18 Replies

Testing for other rheumatic conditions besides PMR?

My one diagnosis, September 2019, was PMR. At no time has any rheumatologist suggested I be examined to see if I have Rheumatic arthritis as well, and if so...

My one diagnosis, September 2019, was PMR. At no time has any rheumatologist su...

Bennijax

•19 days ago

5 Replies

Want to take advantage of all our features? Just log in!

Omeprazole/cramps/headaches and bones

3.5 weeks in to treatment with prednisalone and omeprazole. Reduced after 3 weeks from 20 to 17.5mgs of pred. I am experiencing cramps in my hands, feet and...

3.5 weeks in to treatment with prednisalone and omeprazole. Reduced after 3 wee...

Fatsiajaponica

•19 days ago

19 Replies

Covid Testing Kits

Hi, am I eligible for free Covid Testing kits. Had PMRG for 18 years Thx Tony L

Hi, am I eligible for free Covid Testing kits. Had PMRG for 18 years Thx Ton...

KCRoyals

•19 days ago

46 Replies

Optimum time to take Pred

Done the 3 weeks at 15 now started the 12.5 can feel bits of aches and discomfort but not on level it was before, simply neck shoulders. Question is there a...

Done the 3 weeks at 15 now started the 12.5 can feel bits of aches and discomfor...

Kindlreader

•19 days ago

14 Replies

PREDNISONE TIME CHANGE

How to change your Pred time change .I currently take 10 mgs at 7 am but would like to change til 8 Pm. First day that would mean 10 mg in the am and then 10...

How to change your Pred time change .I currently take 10 mgs at 7 am but would ...

Sunny1947

•20 days ago

3 Replies

Gastritis

any gastritis sufferers out there who have suffered from severe shoulder and neck pain when their stomach is bloated?

any gastritis sufferers out there who have suffered from severe shoulder and nec...

Bleakley1

•20 days ago

8 Replies

Sick away from home. How much to take before long flight home?

Am at the end of 2 months traveling in Europe from Australia. Have GCA / PMR since 2020 and was on 5 mgs. Caught Covid in week 2 but recovered well the crashed...

Am at the end of 2 months traveling in Europe from Australia. Have GCA / PMR sin...

CathyMeg

•20 days ago

12 Replies

Stopping Prednisolone

Hi everyone, I have been taking Prednisolone for 3.5 years with hardly any problems during reduction. I am now on .5mg and have been for the last 6 weeks...

Hi everyone, I have been taking Prednisolone for 3.5 years with hardly any pro...

Yealink

•20 days ago

9 Replies

Lower stomach pain - an update, plus a flare

This is partly an update on my last post regarding the lower left stomach pain that I’ve been getting and partly a flare. First, the stomach pain. I saw a GP...

This is partly an update on my last post regarding the lower left stomach pain t...

Indigo2417

•20 days ago

30 Replies

Now negative for Covid, is it okay to go back to last Prep dose immediately (7 days Sick Day Rule of 10mg extra)and when to restart taper?

I had Covid last week so followed Sick Day Rule of upping my 10mg Pred dose to 20mg (took 2nd 10mg in evening for 7 days). Tested negative today and feel much...

I had Covid last week so followed Sick Day Rule of upping my 10mg Pred dose to 2...

Preposterous

•20 days ago

5 Replies

Finally down to 0mg

It's approximately 6mths since I last posted. At this time I was on 1mg and due to go on holiday but took your advice and didn't start tapering to 0.5mg until...

It's approximately 6mths since I last posted. At this time I was on 1mg and due ...

Middleton22

•20 days ago

14 Replies

Glasgow Support Group

The next group meeting is on Monday 8 July at 2pm. We meet in the offices of Health Alliance Scotland, 349 Bath Street, G2 4AA (just next to the King's...

The next group meeting is on Monday 8 July at 2pm. We meet in the offices of Hea...

RichardC

•20 days ago

1 Reply

Down to 7 mg of pred and having a flare up

Hi and once again thanks for brilliant forum . After seeing my rheumy for the first time in March I have been on what I would consider to be a drastic...

Hi and once again thanks for brilliant forum . After seeing my rheumy for the...

Marek1

•20 days ago

5 Replies

Moon face...

I've been steadily reducing prednisolone for GCA since September last year and had not really worried about the weight issue as I was more concerned about my...

I've been steadily reducing prednisolone for GCA since September last year and h...

Gladys911

•20 days ago

32 Replies

Shakes

I can’t stop the shakes. First diagnosed with severe pain at beginning of March. Then dropped to 15mg 2 weeks later. Now on 9mg. By this groups calculations of...

I can’t stop the shakes. First diagnosed with severe pain at beginning of March....

Gioielli5

•20 days ago

4 Replies

Does ESR and Serum Ferritin Normal indicate PMR improving?

Hi Everyone, Thank you all so much for all the wisdom you've shared. I have already greatly benefited from all your advice. Please can I have your thoughts...

Hi Everyone, Thank you all so much for all the wisdom you've shared. I have al...

Positive__

•20 days ago

7 Replies

light at the end of the tunnel

Hi Everyone, Just thought I would like to thank this site, I have had Pmr for four years. And am finally through it, Took my last pred June 1st. This site as...

Hi Everyone, Just thought I would like to thank this site, I have had Pmr for fo...

Hours

•20 days ago

5 Replies

Another visit to Rheumatologist…

Hi, I had a face to face appointment with my Rheumatologist yesterday. My ESR has increased to 97 and CRP 38. He said he’s very concerned about this 🙄....

Hi, I had a face to face appointment with my Rheumatologist yesterday. My ESR ...

Bramble2000

•20 days ago

6 Replies

could this be GCA

I was diagnosed with PMR in the summer of 2022. And I have successfully tapered from 15 mg to 3mg with no flares . However the last three weeks, ( following...

I was diagnosed with PMR in the summer of 2022. And I have successfully tapere...

Bluepin

•21 days ago

5 Replies

Fatigue and cortisol test

I have been dealing with PMR and related symptoms for 10 years and still been unable to reduce to 0 prednisone. For the past 3 years i have been able to...

I have been dealing with PMR and related symptoms for 10 years and still been un...

Vawils

•21 days ago

6 Replies

cervical stenosis

has anyone ever tried acupuncture for cervical stenosis? My hubby is so badly affected by the cold weather (yes, it’s cold here in north east Lincolnshire...

has anyone ever tried acupuncture for cervical stenosis? My hubby is so badly a...

Doraflora

•21 days ago

11 Replies

Advice

Hello Not posted before so here goes .Suffered with osteoarthritis in both hips for the last 7 years , had Left Hip THR last July . Recovered well but then...

Hello Not posted before so here goes .Suffered with osteoarthritis in both hips...

Spats15

•21 days ago

9 Replies

Four Year Review - The End in Sight, Maybe or, May Not be

The End May be in Sight, on the Other Hand it Might not be. Hi all, it is time for my annual update and the four year mark was officially the end of June,...

The End May be in Sight, on the Other Hand it Might not be. Hi all, it is time f...

Bcol

•21 days ago

12 Replies

When other people's opinions Count

Well, it's a few months since reducing pred gradually. It's 3 years since diagnosis and a few years more suffering this condition unknowingly. It has to be...

Well, it's a few months since reducing pred gradually. It's 3 years since diagno...

cycli

•21 days ago

20 Replies

PmR.question.

Hi.i am just wondering,what are symptons of PMR.CAN YOU GET IT IF YOU HAD GCA.

Flosy

•21 days ago

2 Replies

Prednisolone Reduction

Sorry but I am unable to find the very useful advice about reducing Prednisolone. My lovely lady GP has asked me to have blood tests roughly every 6 weeks and...

Sorry but I am unable to find the very useful advice about reducing Prednisolone...

Jomaur

•21 days ago

37 Replies

Just posted re alendronic acid

Sorry, forgot to add I am 80.

borednow

•21 days ago

2 Replies

Alendronic acid

New GP has recommended Alendronic acid following Dexa scan which shows problems with lower back. She said to ask Dentist for his opinion - he says OK as far...

New GP has recommended Alendronic acid following Dexa scan which shows problems ...

borednow

•21 days ago

28 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2024

ferritin levels high - abdominal scan booked.

methotrexate for Life?

Testing for other rheumatic conditions besides PMR?

Omeprazole/cramps/headaches and bones

Covid Testing Kits

Optimum time to take Pred

PREDNISONE TIME CHANGE

Gastritis

Sick away from home. How much to take before long flight home?

Stopping Prednisolone

Lower stomach pain - an update, plus a flare

Now negative for Covid, is it okay to go back to last Prep dose immediately (7 days Sick Day Rule of 10mg extra)and when to restart taper?

Finally down to 0mg

Glasgow Support Group

Down to 7 mg of pred and having a flare up

Moon face...

Shakes

Does ESR and Serum Ferritin Normal indicate PMR improving?

light at the end of the tunnel

Another visit to Rheumatologist…

could this be GCA

Fatigue and cortisol test

cervical stenosis

Advice

Four Year Review - The End in Sight, Maybe or, May Not be

When other people's opinions Count

PmR.question.

Prednisolone Reduction

Just posted re alendronic acid

Alendronic acid

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive