Well, it's a few months since reducing pred gradually. It's 3 years since diagnosis and a few years more suffering this condition unknowingly. It has to be said that Prednisolone does have serious consequences over time in larger doses, but it also enables us to function. I have lost a staggering amount of muscle and fitness but I am feeling better. I have lost the fat face and the large stomach is slowly going. I cannot sustain efforts for long and my lower back doesn't like sustained work. That said everyone without exception comments that I look better. That I walk with more certainty and that I sound like my old self. Just how bad I looked and projected alarms me, but I am now grateful for their comments. I can only conclude that I am on the up. Here's hoping. I hope this helps others trying to decide whether they are on the mend.
When other people's opinions Count: Well, it's a... - PMRGCAuk
When other people's opinions Count
good news, much needed, I might add. What dosage pred are you on now please?
3.5mg Twopies and reducing today to 3 mg
Wifes birthday today and our wedding anniversary.44years.
Good to hear -long may it continue. Congratulations to both of you.. many more happy years to come 😊
Thanks to all. Fingers crossed that I am on the mend. With wife 3 years before we married. I'm eternally grateful that at least one person lives who has the patience to tolerate me😄The main thing is that there is hope and it pays to be optimistic. Maybe it is a false hope but still better than none.
Love a positive post.... great to read.
Brilliant to read that things are going in the right direction.
So good to hear you're on the up at last! May ut continue! And happy anniversary!
Glad things are going better for you. This can be a long and discouraging process.
Good news that you are feeling and looking better. When I was first diagnosed I remember walking into a coffee shop where friends were waiting. One of them said "you look awful". You can imagine what that did for my confidence. Not a lot!! All the best
Makes a change from “you look well” when feeling rubbish I suppose !
That's the sort of friend you DON'T need ...
Absolutely!
When you haven't seen someone for a year and they say how much better you look from the last time they saw you it's much the same. I've come to accept this as a positive though. It's a measure both of how you have improved as well as making you realise how bad you were. at least they are the sort of friend you can rely on to be honest if somewhat tactless.
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