Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,469 members • 38,429 posts

All posts for October 2023

ways to counteract the ‘spaced out’ feeling on high pred dose?

Following a visit to the GP because of persistent ‘tension’ headaches, with some temporal pains, I was put on a reducing dose of pred, 40mg - 30mg - 20mg, then...

Following a visit to the GP because of persistent ‘tension’ headaches, with some...

Angel_doll

•8 months ago

4 Replies

So much fatigue

Am at present on 6mg Pred reducing really slowly DSNS and ready to drop to 5.5mg. The fatigue I am struggling with is almost overwhelming. I can get up...

Am at present on 6mg Pred reducing really slowly DSNS and ready to drop to 5.5...

jaycee444

•8 months ago

19 Replies

On Twitter today

For those who don't do Twitter! This is the link she has posted https://rheumnow.com/blog/pmr-glad-or-bad-tidings?s=09

For those who don't do Twitter! This is the link she has posted https://rheumn...

Sophiestree

•8 months ago

21 Replies

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Nightly leg cramps

Hi Warriors: I have GCA since June 2023. Down to 35 mg pred from 60 mg. Tapering down by 5mg every 2 weeks til I get to l5mg. Then will go much slower. I am...

Hi Warriors: I have GCA since June 2023. Down to 35 mg pred from 60 mg. Taperin...

Groda

•8 months ago

10 Replies

Unexplained headaches

Had to see a private rheumie earlier this year for PMR diagnosis as nhs rheumie and GP were trying to say I had fibromyalgia. Was told to start on 10mgs of...

Had to see a private rheumie earlier this year for PMR diagnosis as nhs rheumie ...

Paul76

•8 months ago

10 Replies

Shingles vaccination - or not?

Hi all, hope to get some helpful advice on subject of shingles vaccination. Shingrix is available in my country (Norway) so I enquired of my GP about any...

Hi all, hope to get some helpful advice on subject of shingles vaccination. Shin...

11541stella

•8 months ago

24 Replies

Use of CDB 10 mg pills

I am currently on 12 mg prednisone and 20 mg methotrexate a week for PsA and maybe PMR. I have heard that taking CDB can help with relaxing, sleeping and...

I am currently on 12 mg prednisone and 20 mg methotrexate a week for PsA and may...

Seal49

•8 months ago

10 Replies

Are we hybrids ?

as our conditions are so varied, unpredictable, wide ranging and ever changing the word hybrid came to mind and when I saw this pink and red bloom on an...

as our conditions are so varied, unpredictable, wide ranging and ever changing t...

Stills

•8 months ago

14 Replies

Not GCA

HiThought I'd share what happened to me today. Diagnosed GCA by Rheumatologist 3 weeks ago, started at 40mgs pred. Did not have an immediate cessation of...

HiThought I'd share what happened to me today. Diagnosed GCA by Rheumatologist ...

Chespoll

•8 months ago

14 Replies

If not Temporal Arteritis, what could it be?

For the past two days I have experienced flashes of pain in my left temple area and a tender scalp. It improves with paracetamol taken at regular intervals but...

For the past two days I have experienced flashes of pain in my left temple area ...

Zebedee44

•8 months ago

26 Replies

Optician

just been to Optician & been reassured everything ok. Very knowledgeable re PMR & GCA. He explained (as you all have) what to look out for, but all ok. He...

just been to Optician & been reassured everything ok. Very knowledgeable re PMR ...

Claremont2023

•8 months ago

11 Replies

Body temperature

Been taking my temperature this week and surprised how low it is - varies from 35.2 to 35.8 but did reach 36.3 one day. Feel confident my Levothyroxine dose...

Been taking my temperature this week and surprised how low it is - varies from 3...

Body_bonkers

•8 months ago

7 Replies

Not sure what's going on

I've had a fairly decent year. I've got PMR with extracranial GCA / LVV. I've been on 7 megs prednisone for most of that time, upping the dose for a couple...

I've had a fairly decent year. I've got PMR with extracranial GCA / LVV. I've ...

winfong

•8 months ago

15 Replies

Struggling with outcome of Rheumy Consultation

Yesterday I had my long awaited Rheumy Consultation, anxious and excited at the same time, I'm finally going to get some relief from this nightmare I'm in. I...

Yesterday I had my long awaited Rheumy Consultation, anxious and excited at the ...

Joann63

•8 months ago

25 Replies

Shoulder/neck

I am currently on 6mg pred and reducing 0.5 per month. I still have some shoulder and neck pain upon awakening, but it normally gets better a few hours after...

I am currently on 6mg pred and reducing 0.5 per month. I still have some should...

Maripoppins

•8 months ago

18 Replies

PMR pain

I am struggling with painful knees, when standing fro seated, and also painful wrists, Are these related to PMR?

I am struggling with painful knees, when standing fro seated, and also painful w...

Linbin1

•8 months ago

8 Replies

Progression

I had PMR and treatment with 15mg ofPrednisone for a year...After that I and my GP decided not to go back on treatment. Inflammation marked came down to...

I had PMR and treatment with 15mg ofPrednisone for a year...After that I and my...

DN-CTL

•8 months ago

8 Replies

Liver did it

My red blood cell and hemoglobin counts are finally in the normal range after eating liver (advice from rheumatologist).Eat it maybe twice a week (fortunately...

My red blood cell and hemoglobin counts are finally in the normal range after ea...

Alebeau

•8 months ago

5 Replies

GCA PMR and disability benefits

has anyone applied for Disability living allowance who has a diagnosis of GCA or PMR?

has anyone applied for Disability living allowance who has a diagnosis of GCA or...

Garden__lover

•8 months ago

3 Replies

Update following GP appointment re DEXA scan

Just back from seeing the GP who isn’t the one who sent the text. He says he’ll have to consult someone as the result of the scan and advice are “a bit...

Just back from seeing the GP who isn’t the one who sent the text. He says he’ll ...

Mfaepink1973

•8 months ago

11 Replies

PMR -Lancet Summary

The Lancet has a brief summary on PMR this week which may be of interest....

piglette

•8 months ago

18 Replies

Advice regarding recent flare up please.

Hi, l have been tapering down my Pred and had reached 7mg. I can’t say l was pain free, but it wasn’t too bad. I have been under a lot of pressure from my...

Hi, l have been tapering down my Pred and had reached 7mg. I can’t say l was pai...

Legsandmore

•8 months ago

13 Replies

New research - COVID-19 Tied to Autoimmune Disease Risk

Hi all - I know PMR/GCA are not mentioned but some consider there is an autoimmune element at least so - sharing an abstract. COVID-19 Tied to...

Hi all - I know PMR/GCA are not mentioned but some consider there is an au...

MDT1

•8 months ago

3 Replies

Change in Typeface - harsh on older eyes!!

Assuming it is not my PC settings, the change to the much smaller font on the initial Healthunlocked daily email is an odd and unwelcome decision. Based on...

Assuming it is not my PC settings, the change to the much smaller font on the in...

Prof99

•8 months ago

21 Replies

GP disagrees with diagnosis of osteoporosis

I had a Dexa scan 2 weeks ago and the lady who did the scan told me I had osteoporosis and gave me a leaflet about it and an information sheet about Alendronic...

I had a Dexa scan 2 weeks ago and the lady who did the scan told me I had osteop...

Mfaepink1973

•8 months ago

14 Replies

Prednisolone newbie!

good morning everyone! I’m an active 77 year old and looking for advice and tips please. After months of being uncomfortable particularly neck and shoulders...

good morning everyone! I’m an active 77 year old and looking for advice and tip...

Sungolfer

•8 months ago

14 Replies

What's going on?

Hi, just a recap...was diagnosed with PMR early this year by GP, (am 48 yrs) started on 30 mg prednisone then tapered down, increased pain so back to 30 mg...

Hi, just a recap...was diagnosed with PMR early this year by GP, (am 48 yrs) sta...

Monkey321

•8 months ago

12 Replies

Statins

A Doctor at the Diabetes Clinic (I am pre-diabetic) recommended statins when I inquired about how to offset the tendency of Prednisone to raise blood sugar. I...

A Doctor at the Diabetes Clinic (I am pre-diabetic) recommended statins when I i...

proactive

•8 months ago

9 Replies

Comic leaflet

Sorry to bother. I cannot find the helpful explanatory leaflet about PMR written in a 'comic' style. Can't remember it's title. Can someone point me in the...

Sorry to bother. I cannot find the helpful explanatory leaflet about PMR written...

ChinaWuntoo

•8 months ago

7 Replies

Opioids can cause adrenal insufficiency

Hi everyone, It appears that opioids can cause adrenal insufficiency. This is something I have not seen mentioned here. Does anyone know about this? Here are...

Hi everyone, It appears that opioids can cause adrenal insufficiency. This is s...

sferios

•8 months ago

17 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2023

ways to counteract the ‘spaced out’ feeling on high pred dose?

So much fatigue

On Twitter today

Nightly leg cramps

Unexplained headaches

Shingles vaccination - or not?

Use of CDB 10 mg pills

Are we hybrids ?

Not GCA

If not Temporal Arteritis, what could it be?

Optician

Body temperature

Not sure what's going on

Struggling with outcome of Rheumy Consultation

Shoulder/neck

PMR pain

Progression

Liver did it

GCA PMR and disability benefits

Update following GP appointment re DEXA scan

PMR -Lancet Summary

Advice regarding recent flare up please.

New research - COVID-19 Tied to Autoimmune Disease Risk

Change in Typeface - harsh on older eyes!!

GP disagrees with diagnosis of osteoporosis

Prednisolone newbie!

What's going on?

Statins

Comic leaflet

Opioids can cause adrenal insufficiency

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