Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,470 members • 38,421 posts

All posts for October 2023

Normal inflammation blood markers- PMR symptoms

I was tentatively diagnosed with PMR august 22, 2023. The blood work showed normal blood markers but I had been put on 40 mg prednisone right away . The pain...

I was tentatively diagnosed with PMR august 22, 2023. The blood work showed norm...

Alohaoillady

•8 months ago

14 Replies

Supplements -- immune system

A lot of supplements say they enhance the immune system. Contain zinc, etc. We are not supposed to take zinc for that reason, I have read. Or anything...

A lot of supplements say they enhance the immune system. Contain zinc, etc. We...

Paulagcl

•8 months ago

18 Replies

Alternatives to steroids for PMR

Hi, I am still awaiting diagnosis for what to me is almost certainly PMR. My GP seems happy to let me take a vast cocktail of other pills but won't prescribe...

Hi, I am still awaiting diagnosis for what to me is almost certainly PMR. My GP...

Creas

•8 months ago

24 Replies

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Vit B12 update

Following on from a previous post my B12 was 190 , so deficient and have had 6 loading dose injections which has definitely helped with fatigue . I am now...

Following on from a previous post my B12 was 190 , so deficient and have had 6 l...

5goFlotilla

•8 months ago

1 Reply

Prednisolone tapering

I was diagnosed with PMR in March of this year.My GP prescribed Prednisolone 20mg for 3 weeks,then 15mg for 4 weeks,12.5mg for 4 weeks,then 10mg for 4...

I was diagnosed with PMR in March of this year.My GP prescribed Prednisolone 20m...

Seamab

•8 months ago

25 Replies

Pred Side Effects, Tapering & Returning to work

Hi, I’m a returning poster who’s looking for advice on the next stage of my journey. Following my PMR diagnosis and being on 15mg of Pred, I’ve started...

Hi, I’m a returning poster who’s looking for advice on the next stage of my jou...

SpaghettiWestern99

•8 months ago

35 Replies

confused

Hi everyone, I’m really confused. I’ve not seen my consultant for GCA/ pmr since last December. Last time I saw him he wanted me to cut down my pred as much...

Hi everyone, I’m really confused. I’ve not seen my consultant for GCA/ pmr sinc...

2013mayo

•8 months ago

20 Replies

PMR with type 2 diabetes

I have type two diabetes with PMR and struggling to keep my blood sugar level as low as my GP would like. Anybody out there in the same position?

I have type two diabetes with PMR and struggling to keep my blood sugar level a...

Elmadon

•8 months ago

14 Replies

Good news re. blood tests

Good evening , Well the good news is I have had blood test results today and there is improvement in the haemoglobin, now normal and normal white cell...

Good evening , Well the good news is I have had blood test results today and...

gillsky8

•8 months ago

5 Replies

Started reducing so updated profile

To keep my profile updated, I've added that having been on 15 mg prednisolone for the six weeks since being diagnosed with PMR, my doctor yesterday...

To keep my profile updated, I've added that having been on 15 mg prednisolone fo...

Sibelius5

•8 months ago

17 Replies

Prediabetes disgnosis

My AIC is at 6 which is borderline to diabetes. I am taking steps to modify my diet and lose the weight I gained during COVID and while on PRED. I tapered off...

My AIC is at 6 which is borderline to diabetes. I am taking steps to modify my d...

Mewy

•8 months ago

14 Replies

12 hours urgent treatment centre = Orthostatic hypotension,

after two recent new episodes of crawling around the house on my hands and knees being unable to stand upright I decided to ring the surgery. No telephone...

after two recent new episodes of crawling around the house on my hands and knees...

Stills

•8 months ago

71 Replies

Early morning deep ache

I have had PMR for nearly 2 years or at least have been diagnosed that long and after higher doses and a bit of fluctuating, I am down to 7and a half mg...

I have had PMR for nearly 2 years or at least have been diagnosed that long and ...

Stargiver

•8 months ago

7 Replies

Not what I expected!

After feeling unwell, I’ve had a lousy night, tested in the early hours and have Covid! Had the booster 12 days ago and the flu jab on Saturday. it’s Sod’s...

After feeling unwell, I’ve had a lousy night, tested in the early hours and have...

Greensleeves

•8 months ago

63 Replies

Long term steroid use at 4mg

Yesterday I went to my rheumatologist appointment. I am currently on 4mg of pred as advised by the rheumatologist following a short synthacen test which show...

Yesterday I went to my rheumatologist appointment. I am currently on 4mg of pred...

marionofnorwich

•8 months ago

26 Replies

Holiday insurance

Hi Just wondered if PMR effects holiday insurance I have PMR and I am forever worried about GCA would you take extra pred on holiday

Hi Just wondered if PMR effects holiday insurance I have PMR and I am foreve...

Harry8388

•8 months ago

13 Replies

sparkle

hi can i have sum advice please iam on 2mg been on for two months I have tapered down from 15mg how can I type it down slow to 1mg rather than going straight...

hi can i have sum advice please iam on 2mg been on for two months I have tapered...

Movies5178

•8 months ago

15 Replies

How will I know whether adrenals are functioning?

With the great and ongoing help of this terrific forum I have so far had a smooth journey on pred and am down to one and a half mg, about to reduce further. A...

With the great and ongoing help of this terrific forum I have so far had a smoot...

cribbager

•8 months ago

19 Replies

How early should I take pred in the morning?

Hi everyone, I've been taking my pred around 7am every morning. However, for the past month I've been going to sleep earlier (9 pm) and waking up earlier (5...

Hi everyone, I've been taking my pred around 7am every morning. However, for th...

sferios

•8 months ago

6 Replies

TMJ likely?

Eating crisps last night I had a sudden very sharp pain under the right ear and a sense of near dislocation. Massage helped. Did chewing gum test today - sore...

Eating crisps last night I had a sudden very sharp pain under the right ear and ...

SID3

•8 months ago

10 Replies

continuing with Toc

Hi just to say I’m being left on Toc for LVV as the consultant says it appears to be the only way to keep me well. I can’t tell you what a relief that was .

Hi just to say I’m being left on Toc for LVV as the consultant says it appears t...

Devoid

•8 months ago

10 Replies

When to taper?

My sed count was normal this blood test.My CRP was 18 which is high.Ive been on 8 mg for 5 weeks so should I stay there longer?Do I need to increase my dose?...

My sed count was normal this blood test.My CRP was 18 which is high.Ive been on ...

Hunter134

•8 months ago

4 Replies

Severe pain in right hip in the morning

I’ve had pmr since March 2022. Started on 15 mg and got down to 8mg. But then had a flare up . Up and down now as can’t get below 7mg. At present on 10mg . I...

I’ve had pmr since March 2022. Started on 15 mg and got down to 8mg. But then ha...

Elmadon

•8 months ago

20 Replies

Live forum

How do I join in

Seal49

•8 months ago

2 Replies

Good Rheumatologist in Phoenix, AZ?

I'm looking to change doctors, and am willing to drive to Phoenix, AZ (USA), which is about 2.5 hours away, if anyone has a recommendation for a good PMR/GCA...

I'm looking to change doctors, and am willing to drive to Phoenix, AZ (USA), whi...

G-Jo

•8 months ago

5 Replies

Nutrition

I've just added bone broth to the list! Check it out -- lots written about it. Beef is best, but chicken good, too.

I've just added bone broth to the list! Check it out -- lots written about it. ...

Paulagcl

•8 months ago

16 Replies

PsA and maybe PMR

Started on methotrexate 3 weeks ago. Did 20 mg first 2 weeks. Did 1 week so far on 15 mg and do to do 15 again this week. Then start 20 mg per week and stay...

Started on methotrexate 3 weeks ago. Did 20 mg first 2 weeks. Did 1 week so fa...

Seal49

•8 months ago

11 Replies

Steroid Sick Day Rules

Hi folks! I've just been given this leaflet by the hospital and thought it was useful. In fact it would have been very useful when I had covid. Never mind,...

Hi folks! I've just been given this leaflet by the hospital and thought it was ...

PuttyPenguin

•8 months ago

9 Replies

PMR myth busting #4

The fourth and final post in our PMR myth busting campaign is live this week. It's not a myth this time but a graphic to raise awareness of the symptoms of...

The fourth and final post in our PMR myth busting campaign is live this week. It...

Fran_Benson

Partner•8 months ago

1 Reply

Alcohol

Following my latest flair for ANCA Vascilitus, and after treatment with Rituximax I read all info on the drugs including Pred and found no warnings about...

Following my latest flair for ANCA Vascilitus, and after treatment with Rituxima...

Selbourn

•8 months ago

8 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2023

Normal inflammation blood markers- PMR symptoms

Supplements -- immune system

Alternatives to steroids for PMR

Vit B12 update

Prednisolone tapering

Pred Side Effects, Tapering & Returning to work

confused

PMR with type 2 diabetes

Good news re. blood tests

Started reducing so updated profile

Prediabetes disgnosis

12 hours urgent treatment centre = Orthostatic hypotension,

Early morning deep ache

Not what I expected!

Long term steroid use at 4mg

Holiday insurance

sparkle

How will I know whether adrenals are functioning?

How early should I take pred in the morning?

TMJ likely?

continuing with Toc

When to taper?

Severe pain in right hip in the morning

Live forum

Good Rheumatologist in Phoenix, AZ?

Nutrition

PsA and maybe PMR

Steroid Sick Day Rules

PMR myth busting #4

Alcohol

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