sparkle: hi can i have sum advice please iam on... - PMRGCAuk

PMRGCAuk

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sparkle

Movies5178 profile image
15 Replies

hi can i have sum advice please iam on 2mg been on for two months I have tapered down from 15mg how can I type it down slow to 1mg rather than going straight down to 1mg I had muscle pain when I when down to 1mg tow month go so when back to 2mg

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Movies5178
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15 Replies
SheffieldJane profile image
SheffieldJane

Get a sharp pill cutter from a pharmacy and go down by half a tablet leaving a few weeks between drops. Have a look at tapering programmes in FAQs on this page.

Movies5178 profile image
Movies5178 in reply toSheffieldJane

Thank you so near to 1mg this is we’re it get little tricky with PMR I let you now how it goes

Movies5178 profile image
Movies5178 in reply toSheffieldJane

I did go yesterday for blood test to check to see how thinks are

dccarver profile image
dccarver in reply toSheffieldJane

Suggest you go down by 1/4 mg by splitting a half mg.

SheffieldJane profile image
SheffieldJane in reply todccarver

I need gastric coated Pred so I cannot cut them, for half mgs I make them up with 1 mg tablets and 2.5mgs tablets. ( due to diverticulitis).

I've been doing DSNS method, dropping 0.5 mg each time ever since I started reducing from 5 mg. My approach was to repeat each step until I felt normal, then take another step, etc.

PMRpro profile image
PMRproAmbassador

Remember though that you aren't heading relentlessly to zero - you are looking for the lowest dose that gives the same result as the starting dose did. That may be 2mg, it may be 1mg, you can't know in advance - so if you are having PMR-type symptoms, don't push it. And at this stage have long periods between reductions. The slowed tapering plans can help a lot.

cranberryt profile image
cranberryt

You can even try 1/4 tablet reduction though it’s challenging to cut those tiny pills!

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Use one of the very slow taper as described here - and at least only 0.5mg a time [0.25mg if really necessary]-

healthunlocked.com/pmrgcauk...

Movies5178 profile image
Movies5178

hi I got email this morning to have covid jab done I have had three jabs done over past few years is it advisable to get this one done iam not sure need sum Advice

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toMovies5178

I had mine a week or so ago, and never considered not getting it, even though I no longer have GCA so not on Pred...

There is a new variant around which seems to be widespread...and with winter almost upon us, when much more likely to be prone to exposure [being indoors] to others with the virus - why wouldn't you have it when offered?

Movies5178 profile image
Movies5178 in reply toDorsetLady

hi like some advice please I am on 2mg second time when I go on two 1mg seems not to work for me is there an alternative to tap down slower

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toMovies5178

Try only 0.5mg at a time… plain white tablets can be cut [bit fiddly , so get a pillcutter- cheap, available at any chemist or online and some bigger supermarkets]

.,and a slower taper, like the one I attached earlier - you can use the 7 week one, or even the 14 week one if you are really struggling

healthunlocked.com/pmrgcauk...

PMRpro profile image
PMRproAmbassador in reply toMovies5178

When you say doesn't seem to work - what do you mean? Are PMR symptoms returning or is the fatigue increased as if it is adrenal problems?

However slowly you taper you will not get lower than the objective: the lowest effective dose at any given point. Maybe you are at that with 2mg now - you will get lower, just not yet.

PMRpro profile image
PMRproAmbassador in reply toMovies5178

Just because you had one flu vaccine doesn't mean you are protected from flu. Viruses change and up-to-date vaccines are valuable, particularly since your body's defense also fade and need waking up at intervals.

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