On 5th June I reduced to 7mg but since then I have found the basics of life a massive struggle and I’m normally a few miles a day person.
Various limbs have become painful even an old break in my wrist is giving me jip. When these hot flushes come on I feel absolutely drained so I’m going to add an extra 5mg for 5 days but I’ve been here before. ( In January I reached 7mg and added an extra 5mg for 5 days and started tapering again )
I also get a trembling feeling in my legs .
Apologies for the whinge but this forum is my only outlet since my OH seems to think that as long as I can take more tablets that’s me sorted.
Written by
AnniesRyder5
To view profiles and participate in discussions please or .
Hi, im tapering from 12.5 to12and its a struggle. I too have hot flushes and aches. but they seem to be relieved somewhat by paracetamol. so that says to me its not a flair but withdrawal symptoms which should pass after a week or so.
I sympathise with you, I feel the same too at 7mg...and my OH still dosen`t understand it after 10 years!When I climb my stairs I imagine I`m climbing Everest most days!....
Sounds like your body is telling you that you have arrived at your interim destination: 7.5mg seems more likely than 7mg which is too low. It might even be 8mg.
If it is I'm totally ********** Because I have been above 10mg for at least 1/2 of the last 12 years and only once down to under 5mg! I'm not falling apart as far as I can tell - no cataracts, no diabetes, gained weight, lost weight (but some of that weight gain was PMR, long before pred), no loss of bone density, skin not too bad, bruise but I also need anticoagulant therapy. But I can function reasonably well - and I can't without pred. And that is what matters.
But you are unlikely to be entirely stuck - I am pretty unusual - and the first 18 months or so of PMR are the most active. From what I have seen over the years the activity goes up and down in the short term, forming a sine wave, but in the longer term the peaks of that sine wave always get lower over time. You will get lower - just not yet.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Because I have been above 10mg for at least 1/2 of the last 12 years and only once down to under 5mg! I'm not falling apart as far as I can tell - no cataracts, no diabetes, gained weight, lost weight (but some of that weight gain was PMR, long before pred), no loss of bone density, skin not too bad, bruise but I also need anticoagulant therapy. But I can function reasonably well - and I can't without pred. And that is what matters.
Hot flushes
1mg or .5 reductions?
fatigue nausea 
I think I might need a little help ...
Statins and PMR pain
