Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for August 2020

Update to still in pain and depressed. More stress

Hello everyone, I am SO tired and just plain fed up with life and struggling with these diseases and yet having to try to explain things to yet another...

Hello everyone, I am SO tired and just plain fed up with life and struggling...

Mstiles

•4 years ago

8 Replies

STY. EYE.

this is so minor..but so annoying in the last 3 months I have had 3 styes. I assume this is prednisone stress related (stress? what on earth could be stressing...

this is so minor..but so annoying in the last 3 months I have had 3 styes. I ass...

yogabonnie

•4 years ago

44 Replies

how to deal with PMR

I am about be treated for pmr. It started 2 months ago. I felt like I aged 10yrs in 2 days. It has taken a little while for my doctor to give the prognosis. I...

I am about be treated for pmr. It started 2 months ago. I felt like I aged 10yrs...

Martygolf

•4 years ago

10 Replies

Want to take advantage of all our features? Just log in!

I need a Plan please.

Back again for advice please. History.... Started on 15 mg in early May. Symptoms went immediately overnight, woke up like a spring chicken, Reduced to 12.5...

Back again for advice please. History.... Started on 15 mg in early May. Symptom...

Gunflash

•4 years ago

20 Replies

Question To those taking Actemra

I am wondering how long you were on Actemra before decreasing the prednisone? Thanks

I am wondering how long you were on Actemra before decreasing the prednisone? T...

Linny3

•4 years ago

22 Replies

Recent diagnosis of GCA

Hi,just spoke to Rheumatologist via phone this morning,he confirmed a diagnosis of GCA had been reducing prednisolone by 5mg every 5 days.Commenced at 45mg now...

Hi,just spoke to Rheumatologist via phone this morning,he confirmed a diagnosis ...

Pieater67

•4 years ago

9 Replies

Taper advice please

I was diagnosed with GCA in April 2018. I have been tapering (successfully) slowly from 60mg pred. and since March 2020, reducing 0.5mg every two months....

I was diagnosed with GCA in April 2018. I have been tapering (successfully) slo...

membership

•4 years ago

12 Replies

what is a flare up.

hi,i just wondering when they say a flare up can someone please tell me what it is.i know I might sound a bit thick or something,but would like to know,thank...

hi,i just wondering when they say a flare up can someone please tell me what it ...

Flosy

•4 years ago

6 Replies

Eye tests

Hi all, just wondering how you choose which optician to go to. I have always bought ‘over the counter’ glasses and these have been fine for me. I am noticing...

Hi all, just wondering how you choose which optician to go to. I have always bou...

SanG55

•4 years ago

12 Replies

The dying swan

Soon to be Swan Soup

diana1998

•4 years ago

12 Replies

Emotional trauma and autoimmune disease

Hello I have been a member of the site since diagnosis in Nov 2017 and can honestly say reading the posts everyday helped me more than any...

Hello I have been a member of the site since diagnosis in Nov 2017 and can hone...

Jennyhampshire

•4 years ago

48 Replies

Happy Bday PMR PRO.

Oh HAPPY BIRTHDAY. Sorry bit of a bummer. I say eat something you love that is fattening. 🎂I know your view is the Dolomites but snow in August is crazy....

Oh HAPPY BIRTHDAY. Sorry bit of a bummer. I say eat something you love that i...

whitefishbay

•4 years ago

2 Replies

Definitely off-piste - complete with snow. No wonder the PMR is protesting!

It is my birthday today - no chance of doing anything nice what between Covid and OH's health but when I looked at the weather I don;t think this has happened...

It is my birthday today - no chance of doing anything nice what between Covid an...

PMRpro

Ambassador•4 years ago

127 Replies

Actemra

My doctor has been trying to get me on Actemra for months. I finally agreed to try it IF I could get a blood test for possible IL-6 involvement. I am sitting...

My doctor has been trying to get me on Actemra for months. I finally agreed to t...

Manchild

•4 years ago

14 Replies

Starting Actemra

On Wednesday I am starting Actemra and I realize that ideally no alcohol is the right prescription. I do like a couple of glasses of wine with dinner any real...

On Wednesday I am starting Actemra and I realize that ideally no alcohol is the ...

Darcy2000

•4 years ago

12 Replies

Stopped taking two meds, now just prednisone.

Hi all, I've been through the mill. I started taking an infusion of Actemera, and came down with a very bad cellulitis infection in my legs. (Stopped Act.)...

Hi all, I've been through the mill. I started taking an infusion of Actemera, an...

Trevgrrl

•4 years ago

4 Replies

Pain from PMR or Osteoarthritis?

I was diagnosed with PMR 6 years ago, and got down to 5mg Pred about 3 years ago. I’ve tried to go lower but never succeeded. I am nearly 84 and also suffer...

I was diagnosed with PMR 6 years ago, and got down to 5mg Pred about 3 years ago...

Trulyscrumpious

•4 years ago

23 Replies

New here. Diagnosed gca December 2019 and just finished Prednisone 3wks ago. Rheumy started me on Tocilizamob as she said it replaces the Pr

However, now feeling pain in shoulders so wondering if I have to go back on Pred? Hateful thought as it ruined my body and still recovering

However, now feeling pain in shoulders so wondering if I have to go back on Pred...

jarn

•4 years ago

60 Replies

Just Discovered PMR and I Hate It

Live in Spotsylvania Virginia USA. Age 76. Love to golf - obviously! I’ve been hurting all over for quite a while and felt very weak, no stamina. Mostly quit...

Live in Spotsylvania Virginia USA. Age 76. Love to golf - obviously! I’ve been h...

OldGolfer

•4 years ago

53 Replies

Welcome to all our new HealthUnlocked members!

A warm welcome to all new HealthUnlocked members who joined us during July - there were 227 of you :). We hope you've found our forum to be useful. If you're...

A warm welcome to all new HealthUnlocked members who joined us during July - the...

Fran_Benson

Partner•4 years ago

37 Replies

First time on TV

We've been watching 1990's sitcom Waiting for God on the UK's Drama channel. As you can guess it's about a retirement village where two rebellious 'inmates'...

We've been watching 1990's sitcom Waiting for God on the UK's Drama channel. As ...

V1a4

•4 years ago

3 Replies

Saving posts

Can anyone remind me how to save a post please. I've done this before but can't now see any save button. I have asked the admin technical questions in the past...

Can anyone remind me how to save a post please. I've done this before but can't ...

Seraphina56

•4 years ago

3 Replies

ESR on the rise

Hi All, well here I am after my last post still unsure where I'm heading! Last post I was waiting for Bence Jones Protein urine test results for Myeloma that...

Hi All, well here I am after my last post still unsure where I'm heading! Last ...

Hidden

•4 years ago

28 Replies

Two days of zero pred

So what am I to expect as far as withdrawal symptoms?? Been on pred for PMR since sept 15th 2017...20mg ....been tapering up and down according to symptoms...

So what am I to expect as far as withdrawal symptoms?? Been on pred for PMR sinc...

daworm

•4 years ago

28 Replies

What is this country coming to.

My grandson who is 26yrs old is a HGV / Articulated lorry driver. On Friday night he stopped at a service station in Stafford, a car was parked behind him....

My grandson who is 26yrs old is a HGV / Articulated lorry driver. On Friday nig...

Whippetygirl

•4 years ago

18 Replies

2mg pred with problems

hello all :) hope for some expert advice please :) GCA/PMR 7 years... finally got down to 2mg Tuesday but haven't been feeling great, last 2 days terrible pain...

hello all :) hope for some expert advice please :) GCA/PMR 7 years... finally go...

suszannah

•4 years ago

26 Replies

Another flare while tapering. Please help re steroid dose

I'm a fit 67 year old, diagnosed with PMR in April 2019, due to massive sudden stress. Treated fairly fast on 15mg Pred which worked quickly. Since then...

I'm a fit 67 year old, diagnosed with PMR in April 2019, due to massive sudden s...

HelenDaisy

•4 years ago

38 Replies

Message to Ansteynomad

I could only read part of the private message you sent and the reply link unfortunately doesn’t work - says Safari can’t find the server - odd! Think you...

I could only read part of the private message you sent and the reply link unfort...

PoolePerson

•4 years ago

Be the first to reply

My Polymyalgia journey so far

I am a 72yr old female who started with neck and shoulder pain in the spring of 2019 by June having difficulty sleeping due to pain. Went to doc's was told it...

I am a 72yr old female who started with neck and shoulder pain in the spring of ...

bru12

•4 years ago

17 Replies

Is it age?? or steroids?? or both~~😕😕

Earlier last month my rheumy said he wanted to check my kidney function among other things and my GFR was 35 when the low acceptable number is 60. I just...

Earlier last month my rheumy said he wanted to check my kidney function among ot...

Grammy80

•4 years ago

45 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2020

Update to still in pain and depressed. More stress

STY. EYE.

how to deal with PMR

I need a Plan please.

Question To those taking Actemra

Recent diagnosis of GCA

Taper advice please

what is a flare up.

Eye tests

The dying swan

Emotional trauma and autoimmune disease

Happy Bday PMR PRO.

Definitely off-piste - complete with snow. No wonder the PMR is protesting!

Actemra

Starting Actemra

Stopped taking two meds, now just prednisone.

Pain from PMR or Osteoarthritis?

New here. Diagnosed gca December 2019 and just finished Prednisone 3wks ago. Rheumy started me on Tocilizamob as she said it replaces the Pr

Just Discovered PMR and I Hate It

Welcome to all our new HealthUnlocked members!

First time on TV

Saving posts

ESR on the rise

Two days of zero pred

What is this country coming to.

2mg pred with problems

Another flare while tapering. Please help re steroid dose

Message to Ansteynomad

My Polymyalgia journey so far

Is it age?? or steroids?? or both~~😕😕

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive