Fatigue, moodyness, pain in joints, 3,75 mg

[Pirnilla]

I can’t stand it. I am at 3,75 mg now and I have no PMR pain what so ever BUT I seem to have a lot of other concerns maybe due to adrenal problems?

As you may have read I have problems with my left hip, it may be arthritis or hip impingment. I am doing all my physiotherapy exercises, but it doesn’t change. Started in april. Now I also have impingement problem in my right shoulder.

The fatigue is killing me, I am so tired in the morning and also in the afternoon though I sleep more than 8 hours a night. And these last 2 weeks has been horrible moodwise. I just want to scream at EVERYBODY!!!

As I am 49 I don’t know if this is adrenal problems or perimenopause. I will try to get bloods done to maybe find out more. How often have you had synacthentest done where you live?

I am so sad to be feeling this way and I can’t explain to people without PMR how this feels. You know. Thank God for this forum.

[SheffieldJane]

In the U.K. a Synacthen Test tends to be done if your doctors suspect that your own Adrenal glands may be unable to produce Cortisol. I requested a test because of the unbelievable fatigue I was experiencing at 5.5 mgs. The result showed that my baseline figure ( bloods) was too low and although I was producing Cortisol it was insufficient. A few weeks later on a lower dose of Pred ( alternating 4 mgs and 4.5 mgs day to day) they had recovered to normal levels. I am to have another test at 3 mgs to see if this recovery has continued. Unfortunately this is not really affecting how I feel. I am still tired and moody. Doctors do tend to pathologise this and yet on here it appears to be a very common, low dose, set of symptoms. Even without a specific Adrenal problem being identified. My guess is that we just take a long time to recover from these systemic diseases and long term steroid treatment. And yes it’s 🤬 miserable!

[BonnyQuine in reply to SheffieldJane]

I suspect you're right, SJ. Commiserations. But it's comforting to know one is not alone.

All the best.

[SheffieldJane in reply to BonnyQuine]

Thanks and best wishes and calm seas to you too. For what it’s worth, I found the peri-menopause challenging. So big hugs.

[Hidden]

Hi pirnilla, I am not yet down to the 3's but if I get there that's when the rheumy said he would test my adrenals as a matter of course.

Given I can't be much help I have dug this old post out, it 2 years old but the story sounds similar to yours. Hope you feel better soon.🌻

healthunlocked.com/pmrgcauk...

[DianeA1]

Yep, I am with you on the fatigue and aches. I am at 2.5. I sleep great all night even with waking at 2am to take Pred.

Could take a nap after breakfast. Do take a nap after lunch, after dinner, then off to bed.

But I stand up and go do something instead of napping as much as I could, bcuz dizziness can set in.

Tylenol helps the aches. But makes me drowsy.

And then, like magic, the next day I have energy, and no problems. One day at a time and be careful.

[powerwalk]

Yes we've been discussing the awful fatigue on here last couple of days. It is awful and getting me down really bad. You are very much not alone. Not that it solves anything! Like dragging around a sack of potatoes.

[PMRpro Ambassador]

Has that hip been x-rayed?

[Pirnilla in reply to PMRpro]

No, I am waiting for an app with my GP in the 2 september to ask for that. I have been examined by my physiotherapist and she said it might be impingement.