When I was diagnosed in March 2016, with PMR, one of the most cheering things was that I learnt via the forum that for most people the disease burns out completely. Especially if you follow the guidance about slow taper, pacing activities, plenty of rest, try to avoid stress ( or at least be aware that it will knock you about). Gradually, almost imperceptibly, the message seems to be that it goes into remission and may reappear at some later date.
I have followed all the guidance and am beginning to feel like the fighter pilot , Yossarian, who was nearing the end of his 25 bombing missions and was then told that he had to complete 35. ( In Catch 22).
Then many doctors cling fondly to the notion that the disease lasts 2 years and “ we really must get you off these steroids”). Catch 22 we are still symptomatic and need the d* *** things.
Sorry just a rant - probably the Synacthen Test this morning and delayed 4.5 mgs Pred. I feel awful. 😣