Oh the frustration

[Trish21]

I could weep. I went to the panto last night, amdrams in our local community centre, great show. A show I should have been a part of until I got struck down with the demon which is pmr. I did a 1st aid refresher course this week, just sitting around listening for most of the day but when it came to the CPR practical poor Annie would have died a thousand deaths cos I didn't have the strength to shove het chest in, I explained to the trainer who understood and said I didn't need to do CPR for the full 2minutes!!!!! I am weak and exhausted and thoroughly fed up. I work full time and my employer's don't really understand how I feel because I look so well. I have asked to reduce my hours but we are 1 member of staff down so it's not possible just yet, doc appointment Monday so just may ask to be put on the sick for a week or 2. Rant over, I know I can on this forum, it's keeping me sane

[SheffieldJane]

Everybody on here will relate to your frustration and the feeling of missing out. It sounds obvious but with acceptance comes relief. Work on it for your own sake. I hope you get the working pattern you need. I am blown away with admiration for those who manage to hold down a job. It is through necessity I guess but wow!

[Trish21 in reply to SheffieldJane]

Hi many thanks for the reply. Yes I need to work at the moment but not necessarily full time. I'm only 61 with a very young outlook. The thing is if I apply for a part time job in another location they may be less understanding than my present employers. Anyway that will remain to be seen.

[Grants148]

Icanunderstand just how you feel Trish,and l really sympathise with you having to go to work with PMR .The trouble is we do look well,that’s the pred filling out our faces probably,it makes it hard to explain to anyone else how PMR makes us feel.l hope that your GP gives you a sick note ,that will surely tell your boss something,and l hope you can have a much needed rest ATB x.

[Trish21 in reply to Grants148]

Many thanks for the reply. I come from the old school where you drag yourself to work unless you are dying, but I have got to reassess my values and make some changes i know, once I get the energy to think about it.

[DorsetLady PMRGCAuk volunteer in reply to Trish21]

Yes I think most of us on here would agree that’s “ our” perspective on life, but it’s not always the best policy! As many of us have found out.

Maybe a couple of weeks without work would do you and your employers good - you for a rest, and them to appreciate that a part time you is better than no you!

[Trish21 in reply to DorsetLady]

Many thanks for the reply. I have got to get my ruddy stubborn head around the fact that I cannot work this illness off. A journey of a thousand miles starts with 1 step, so my 1st step is acceptance. 1 bloody big step but vital for my recovery.

[DorsetLady PMRGCAuk volunteer in reply to Trish21]

Yes it is a bloody great step, and we all find it difficult, but the sooner you do accept the better for you. And remember accepting is not giving in.....its accepting 😉 - different thing altogether!

[Hidden in reply to DorsetLady]

I tried that DL but ended up trying to fit in a days work in four hours!......

[DorsetLady PMRGCAuk volunteer in reply to Hidden]

Yep...been there too! Our own worst enemies 😳

[Hidden in reply to Trish21]

That was my problem too! Old School!

[Hidden]

Hi Trish

If there’s one thing l regret about this PMR Journey is that l didn’t go off sick before l was diagnosed, my husband dressed me, drove me to the office, took my coat off me, made me a cuppa tea & set me up for the morning’s work until my colleague arrived! Was l totally Mad? I always think - if only, if only I’d gone off sick in the beginning 🤔

But once l had the Pred l was like a brand new person, l was like a whirlwind until l reached 11mg but that’s another story!........

Don’t hesitate to take some time off, rest, let the Pred do its thing! Truly, if l had my time over again.........

MrsN

[Daisychain12 in reply to Hidden]

Oh Angela. What are we like. I totally relate to your story xxxxx

[Angiejnz]

They could have given you the baby for CPR practice, the good old two finger gentle push would have shown you know what to do. Mind you, mine let out a terrible scream in the days of mouth to mouth, I'd blown it's lungs out apparently oops!

[Daisychain12 in reply to Angiejnz]

Omg Angie that’s so ghastly and black humour funny. I am laughing my head off xxx

[Daisychain12]

Trish darling my heart goes out to you. I have been where you are. We all have. It’s a pig of a thing. A swine of an illness. But it’s survivable if you can get your head round it. Stick with us. We know. Much love. Linda xxxxxx