I haven't posted for a while. I'm a 74 year old working psychologist in California. I was diagnosed with PMR one year ago.
I have had a flare of PMR when I got down to 7 mg reducing by 1 mg per month. I went back up to 10 mg, And then started down by .5 mg per month. I got a new rheumatologist who wanted me to go down faster. She Asked me to reduce by .5 mg every two weeks. Going down from 8.5 mg to 8 mg I started getting some symptoms. She had me go back to a 8.5mg for two more weeks.
But she said if I got stuck, she would like to try Actemra(tocilizumab). Does anyone on this forum have experience with this drug? Did it work? What were the side effects? If you live in the States, did Medicare pay for it (it can be very expensive here)?