Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for June 2018

WHY THE RUSH TO TAPER STEROIDS TOO FAST AND TOO MUCH, ESPECIALLY IN THE OLDER POPULATION GROUP??

My last DEXA scan at age 69 done via FRAX = mild osteopenia with 0% fracture in the next 10 years. Why do I need to taper at all when I was virtually pain free...

My last DEXA scan at age 69 done via FRAX = mild osteopenia with 0% fracture in ...

bluemoon70

•6 years ago

2 Replies

Coming of steroids with pmr

I have been taking four 5 mill steroids each day for pmr for 12 months now. If my pmr left my body and I was free of it and I carried on taking the steroids...

I have been taking four 5 mill steroids each day for pmr for 12 months now. If ...

Snookerball

•6 years ago

23 Replies

What do you say when people ask 'How are you?'

My instinct is to say 'Not bad thanks, and you? but I'm thinking that's a bit negative and people will get fed up of asking, putting me down as a moaner. But...

My instinct is to say 'Not bad thanks, and you? but I'm thinking that's a bit ne...

tangocharlie

•6 years ago

66 Replies

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Second post and hoping...........

Hi this is my second post and am hoping for the same and extremely useful responses! To recap - diagnosed with PMR in September 2017, whilst living in France....

Hi this is my second post and am hoping for the same and extremely useful respon...

MamaBeagle

•6 years ago

10 Replies

Pantoprazol

I’m sure this has been discussed before but I can’t find the link (as usual).😏 I have been taking this drug for over 6 years but read recently it should not...

I’m sure this has been discussed before but I can’t find the link (as usual).😏 ...

Constance13

•6 years ago

17 Replies

After an injury

I slipped disc 4&5. On month later diagnosed with pmr. I am seeing an occurrence with injuries and this disease. I hope DRs see this. After an epidural for...

I slipped disc 4&5. On month later diagnosed with pmr. I am seeing an occurrence...

Qubbie

•6 years ago

26 Replies

Flare up

Hi there I am asking for a bit of advice as I'm on holiday and definitely taking it easier especially yesterday as we went out to a cabaret last night, my legs...

Hi there I am asking for a bit of advice as I'm on holiday and definitely taking...

Jamie345

•6 years ago

13 Replies

Who new?

For some reason have not been able to tend my allotment as I'd like, but just look what a lovely plant a parsnip turns out to be when left to its own devices!

For some reason have not been able to tend my allotment as I'd like, but just lo...

Hidden

•6 years ago

50 Replies

down to 1mg

I just want to briefly share my experience with PMR.I was diagnosed after self diagnosis about one and a half years ago and after trying for months to get...

I just want to briefly share my experience with PMR.I was diagnosed after self d...

olde

•6 years ago

7 Replies

Sometimes it's Not About That Post!

Have found that sometimes just the work in thinking & putting it in words is enough for me! It's done the job brilliantly thanks to the forum. A tribute to...

Have found that sometimes just the work in thinking & putting it in words is en...

Hidden

•6 years ago

44 Replies

The Lighter Side: Tonight's Scores - Deathly Fatigue:1 MB: Zero. But Reflective, and Trying to Find the Positives - As Usual?... ;-)

Greetings All Well, Ok. Hands Up. Today, the DF (Deathly Fatigue) well-and-truly got me. After a good start this morning, by mid p.m. I was dragging myself...

Greetings All Well, Ok. Hands Up. Today, the DF (Deathly Fatigue) well-and-trul...

markbenjamin57

•6 years ago

33 Replies

Treatment for PMR and GCA your rheumatologist probably won't mention

If you PMR or GCA (I have had both ) do yourself a big favor and look at the neurology and ophthalmology research literature suggesting that many if not most...

If you PMR or GCA (I have had both ) do yourself a big favor and look at the n...

jy6174

•6 years ago

25 Replies

Prednisalone and CBD oil combining them yes or no

Hi All , I did some research into CBD oil and it sounded like the PMR suffer’s holy grail , but then I read that CBD and steroids in general can have very bad...

Hi All , I did some research into CBD oil and it sounded like the PMR suffer’s h...

Gaz227

•6 years ago

17 Replies

Stowmarket Get-Together

Join us at the Osier Cafe, in the museum of East Anglian Life, Stowmarket for a natter next Thursday, 14th June, at 10;30 We'll be pleased to see you.

Join us at the Osier Cafe, in the museum of East Anglian Life, Stowmarket for a ...

Vanner460

•6 years ago

Be the first to reply

Normal biopsy

My biopsy came back normal. Going to see the Dr who diagnosed me on Monday to get a referral to a specialist . He has already started cutting back my steroids...

My biopsy came back normal. Going to see the Dr who diagnosed me on Monday to ge...

AverilG

•6 years ago

7 Replies

Osteoporosis and Steroids

When I got PMR/GCA a year ago, I also had osteoporosis. Because steroids can do a number on your bones, I was given an infusion of Reclast. (Which is a once...

When I got PMR/GCA a year ago, I also had osteoporosis. Because steroids can do...

Stella3

•6 years ago

32 Replies

Very dry skin

Hi - I know this is trivial by comparison - but I have very dry skin at the moment. I know it can be a sign of inflammation but I feel like I am going fairly...

Hi - I know this is trivial by comparison - but I have very dry skin at the mome...

Slosh

•6 years ago

8 Replies

One week later, Pred back up.

Last week, you were all treated to my mini meltdown about what I think was a “flair”. I had tapered down to 26mg from 30, and I guess it was either to quick a...

Last week, you were all treated to my mini meltdown about what I think was a “fl...

billinSurbiton

•6 years ago

8 Replies

Thank you

Thank you to everyone that answered my first time ever on here. I really appreciate it. If I didn't respond to anyone it is because I couldn't find what to......

Thank you to everyone that answered my first time ever on here. I really appreci...

caroiyn

•6 years ago

12 Replies

Cardiff Meeting

Advance notice of the next meeting. Prof Dasgupta is going to speak to our group on Wednesday, 25th July. Venue, Cardiff Central Library, 1 till 3. Please...

Advance notice of the next meeting. Prof Dasgupta is going to speak to our group...

slewis

•6 years ago

6 Replies

Control

I'm not liking this Fatty-Mc-Fat Face, can't control it but.....can control my hair. Donations to husband's wine support are being gratefully accepted.

I'm not liking this Fatty-Mc-Fat Face, can't control it but.....can control my h...

Angiejnz

•6 years ago

6 Replies

Chest infection

😩 I ve had a bad enough chest infection for around two weeks now, waking up at night with palpatitions in my heart think it’s the chest infection. Anyway I...

😩 I ve had a bad enough chest infection for around two weeks now, waking up at ...

Lucylooloo

•6 years ago

17 Replies

Fsgs nephrotic syndrome.

Hi .. I’m new to this .. last September I was diagnosed with nephrotic syndrome and high blood pressure.. after undergoing a traumatic kidney biopsy it was...

Hi .. I’m new to this .. last September I was diagnosed with nephrotic syndrome ...

Aggielynne

•6 years ago

14 Replies

CDB oil

I started to take CDB oil and then I read that it can affect the effectiveness of steroids and many other medications. This is not necessarily so, but the...

I started to take CDB oil and then I read that it can affect the effectiveness o...

Hidden

•6 years ago

8 Replies

Me after talking to the Doctor

Apparently I don’t have PMR as 15mg fixes it straight away.

Estellemac

•6 years ago

67 Replies

Heavy wooden legs while on Pred

Does anyone have this problem? And a heavy head? Sue

Suedeshayes

•6 years ago

30 Replies

I'm new here... this much I know, PMR under 50 is not the norm but NOT impossible!

I don't know how I found this group but I'm so glad I did. I live in a small town in South Central Alaska with very few support groups of any kind let alone...

I don't know how I found this group but I'm so glad I did. I live in a small tow...

ExtraTuff

•6 years ago

21 Replies

Diagnosed with Rheumatoid Athritis

Taking 6 mg Prednisone oral tablet I a having a sleeping disorder could be related to the medication?

Taking 6 mg Prednisone oral tablet I a having a sleeping disorder could be relat...

pantelis

•6 years ago

5 Replies

Newly diagnosed Aortitis

Hello, I am new to this group and asking for help. Newly diagnosed with Aortitis as of this past Saturday. They have me on a 60 mg prednisone colchicine and...

Hello, I am new to this group and asking for help. Newly diagnosed with Aortitis...

Danelady2

•6 years ago

12 Replies

symptoms dropping from 30 to 25, weird visual symptom

GP and new rheumy tapered me from 37.5 to to 25. in a month. When I tapered to 25 I had the usual few days of withdrawal symptoms. After 2 weeks I...

GP and new rheumy tapered me from 37.5 to to 25. in a month. When I ta...

Mstiles

•6 years ago

8 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2018

WHY THE RUSH TO TAPER STEROIDS TOO FAST AND TOO MUCH, ESPECIALLY IN THE OLDER POPULATION GROUP??

Coming of steroids with pmr

What do you say when people ask 'How are you?'

Second post and hoping...........

Pantoprazol

After an injury

Flare up

Who new?

down to 1mg

Sometimes it's Not About That Post!

The Lighter Side: Tonight's Scores - Deathly Fatigue:1 MB: Zero. But Reflective, and Trying to Find the Positives - As Usual?... ;-)

Treatment for PMR and GCA your rheumatologist probably won't mention

Prednisalone and CBD oil combining them yes or no

Stowmarket Get-Together

Normal biopsy

Osteoporosis and Steroids

Very dry skin

One week later, Pred back up.

Thank you

Cardiff Meeting

Control

Chest infection

Fsgs nephrotic syndrome.

CDB oil

Me after talking to the Doctor

Heavy wooden legs while on Pred

I'm new here... this much I know, PMR under 50 is not the norm but NOT impossible!

Diagnosed with Rheumatoid Athritis

Newly diagnosed Aortitis

symptoms dropping from 30 to 25, weird visual symptom

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