PMRGCAuk

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I have PMR for 3 years and, I am trying to reduce from 10 to 9 monthly. My Rheumy gives me this guide line. I have not been successful with the 1 mg reduction. I will try 1/2 mg a month.

I am also dealing with PR (Palindromic Rheumatism) when flare-ups are very painful, but go away within a few days. There is an area in my right rib cage which is sore and might be connected with this problem or extreme muscle inflammation.

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Why is your rheumy sure this is PMR and not associated with your palindromic rheumatism?

If it really is PMR (not saying it isn't really) then your body is probably telling you that you have reached your holy grail: the minimum dose you need to manage the inflammation. Don't push too hard!

Where are you?

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Not sure - I think both are connected to some extent. I just suffered an excruciating flare-up due to the Palindromic Rheumatism problem. You brought attention to it about a year ago when I was puzzled, why I would have these rare flare-ups. PR is indeed rare and genetic. My grandfather had this type of rheumatism. It does not happen often --- the last one I had was 9 months ago, but was not as severe. This time, I simply could not walk and move with my left leg for 24 hours. I needed to be hospitalized.

I do have bilateral shoulder and back pain which was diagnosed as PMR 3 years ago. The 9 1/2 mg (10 probably would be better) of prednisone does help give me energy in the morning until the afternoon. I take prednisone at night.

Thank you for your input. I do appreciate it.

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Then stick at 10mg for a bit longer ...

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I live in Vancouver, WA USA

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