Patient Insight opportunity

This came up on my Twitter feed, a great opportunity to give the patient viewpoint re a research project on PMR

peopleinresearch.org/opport...

[SheffieldJane]

Thanks for posting this. Is it my imagination or is the profile of our disease getting higher?

[CT-5012 in reply to SheffieldJane]

A very cautious I think so.

[Hidden in reply to CT-5012]

I too am cautious on that. I am replacing my motability vehicle and getting seat after much consideration. Didn't think I had seen many now every other car is a Seat. When we have a condition we start to see it around us as it's cloak of invisibility melts.

[Hidden in reply to Hidden]

Didn't mean to be so dramatic lol😂

[jinasc in reply to SheffieldJane]

It is getting higher and that it due to the efforts of the he Charity, which runs this section and is approaching their 11th year . They have worked hard raising awareness and offering support. There are also two other charities, one in Scotland and one in the North East and support groups and coffee meet-ups. Non of this existed 10 years ago.

All are run by volunteers, many of whom have PMR and/or GCA and they could do with some financial help, so if you save pennies in a jar, you know to whom you should send them, they will be put to good use to help in the search for cause and cure.

[SheffieldJane]

For some reason that tickled me Poopadoop! 🤣

[Marilyn1959]

Hi Keyes,

Thanks for letting us know. Obviously the more research into PMR the better! I have contacted them to offer my services.