Last month I was in trouble and for the first time since pre diagnosis was in despair. The fatigue hit big time, sleep pattern erratic, lethargy etc. Going to bed at 6am and missing daytime asleep I had become nocturnal with no energy whatsoever when I was awake to do anything. So I turned to my virtual friends here!
I decided to take the advice of taking pred early morning since I was awake at this time! Started at 5am, then 1am and now taking regularly at 10pm. What a difference! Now back in work part time, doing home decorating projects ( albeit slowly), walking dogs, and most housework tasks - not all at once obviously! Most significant is that I am able to get out of bed most mornings without knowing I have PMR.
I can only conclude that whilst the pred is being absorbed in the system was when I felt most tired. Taking this at 9am meant I was losing my mornings more often than not. By taking pred at 10pm absorption happens whilst I am now asleep. By 8pm my body does remind me meds are due, but this is small price to pay.
As a result I have finally managed to start tapering as well from initial dose (June 2017) 15mgs to 13.5mgs. Not at lot but better than nothing!
Thank you all so much for your invaluable advice and support. I am no longer in despair thanks to you.