Posts - PBC Foundation | HealthUnlocked

Administrator•12 hours ago

😊 The subject of taking supplements has come up recently. According to Dr. Jones' book, he feels taking supplements should not be necessary if we are eating...

and now for the "Tuesday Thought"

😊 The subject of taking supplements has come up recently. According to Dr. Jo...

Administrator•12 hours ago

Be kind to yourself...self-care can play a transformative role in living with PBC. We host a number of self-care workshops through-out the year, as well as...

Taking care of yourself

Be kind to yourself...self-care can play a transformative role in living with PB...

Administrator•1 day ago

How is everyone doing lately with their PBC? For some of us, the temps are cooler - maybe helping with less itching. Do you feel you are still living life as...

Want to take advantage of all our features? Just log in!

Just checking in...

How is everyone doing lately with their PBC? For some of us, the temps are coole...

Do you ever take the time to do something just for you? what are some ideas... 1. just find a quiet place - and just sit with your...

Administrator•2 days ago

4 Replies

It's 'Monday Me'....

Do you ever take the time to do something just for you? what are some ideas... ...

· Have you ever thought about volunteering but don't know how to go about it? Do you want to give something back to the #PBCCommunity but not sure how...

Administrator•2 days ago

5 Replies

Want to volunteer??

· Have you ever thought about volunteering but don't know how to go about it...

Administrator•2 days ago

This month we found out that my mother has cirhossis and portal hypertension. All her resaults are ok, ast, alt, bilirubin, alcal p. everything is normal in...

Hello everyone.

This month we found out that my mother has cirhossis and portal hypertension. Al...

Justiceandlaw

•4 days ago

3 Replies

Useful tool

PBC Foundation Plan your questions ahead of time to get the most out of your appointment. Our NEW Patient Guide to Appointment Preparation is packed with...

PBC Foundation Plan your questions ahead of time to get the most out of your ap...

Administrator•5 days ago

If you could travel to anywhere in the world, where would it be? (no worry of cost, of course!) I have always wanted to see Africa as well as the Northern...

Friday Fun Question

If you could travel to anywhere in the world, where would it be? (no worry of co...

Administrator•5 days ago

I was diagnosed with PBC last year and ever since have responded well to Urso. At the time of diagnosis, my specialist had recommended that I lose some weight....

Ozempic

I was diagnosed with PBC last year and ever since have responded well to Urso. A...

Dora57

•6 days ago

For many after diagnosis we worry if any new pain or symptom means we are getting sicker - that our PBC is now causing new things to happen to us - or worse,...

Thursday's Thoughts

For many after diagnosis we worry if any new pain or symptom means we are getti...

Administrator•6 days ago

Hi everyone Just wondering about taking resveratrol supplements as it’s said it can be against liver fibrosis. Do you have any experience?

Resveratrol

Hi everyone Just wondering about taking resveratrol supplements as it’s said i...

Sona_akb

•6 days ago

"upper limits of normal" When we have any blood work done, there is always a 'normal' range given with our results. Hospitals or labs...

Wednesday's Word

"upper limits of normal" When we have any blood work done, there is always a ...

Administrator•7 days ago

Hi, hoping someone here can help/advise. I was diagnosed with PBC 18 months ago and thankfully I have responded to Urso Acid. From the start I was on...

Advice required please

Hi, hoping someone here can help/advise. I was diagnosed with PBC 18 months ago...

Cascade35

•8 days ago

12 Replies

Tuesday's Tip

I've read in Dr. Jones' book that often the use of light therapy has been shown to help patient's itching. It has been used for years in newborns to help break...

I've read in Dr. Jones' book that often the use of light therapy has been shown ...

Administrator•8 days ago

I have had PBC since 2004 with stable liver enzymes until approximately one year ago. I realize it may be disease progression but am wondering because I had an...

liver enzymes elevated after Urso brand change.

I have had PBC since 2004 with stable liver enzymes until approximately one year...

USmember

•9 days ago

10 Replies

Monday Me!

What have you done for yourself lately? Perhaps it might be better if I ask how many feel guilty taking time for themselves? Why do you think...

What have you done for yourself lately? Perhaps it might be better if I ask ho...

Administrator•9 days ago

I have PBC and respond well to Urso. I am taking a holiday and need travel insurance. Any recommendations will be much appreciated

Travel Insurance

I have PBC and respond well to Urso. I am taking a holiday and need travel insu...

liver-bird

•10 days ago

PBC Foundation Don't forget to download your PBC Day leaflet with links to our NEW Patient Guides and other helpful resources. Keep following as we share more...

Don't forget...

PBC Foundation Don't forget to download your PBC Day leaflet with links to our ...

It's International PBC Day! I know this weekend The PBC Foundation is sponsoring a Patient Conference. I hope today we remember all of us who are affected by...

Administrator•10 days ago

3 Replies

Celebrate Us!

It's International PBC Day! I know this weekend The PBC Foundation is sponsoring...

Administrator•10 days ago

Brilliant news! Read all about it here: https://www.pbcfoundation.org.uk/obeticholic-acid-in-europe/

Good news for OCA patients

Brilliant news! Read all about it here: https://www.pbcfoundation.org.uk/obetich...

Administrator•11 days ago

Has anyone had this vaccine and did you have any side effects. I read it’s a live vaccine so wonder if that’s why I’ve never been offered it. I’ve just had a...

Shingles

Has anyone had this vaccine and did you have any side effects. I read it’s a l...

Candy12

•12 days ago

20 Replies

Friday Fun Question

When was the last time you felt someone was a 'real' friend to you? For me, when I had my awful knee problems a few weeks ago, a long time...

When was the last time you felt someone was a 'real' friend to you? For me, wh...

Administrator•12 days ago

Let’s talk about 2 simple words that we all use, I imagine, every single day. “What if”.... My labs are worse, I start itching, I can’t get all of the...

Thursday's Thoughts....

Let’s talk about 2 simple words that we all use, I imagine, every single day. “...

Administrator•13 days ago

1 day to go until our Patient Conference. Do you know you can join us from the comfort of your own home or as a daily delegate in person? Click this link for...

you can attend virtually....

1 day to go until our Patient Conference. Do you know you can join us from the c...

Administrator•13 days ago

Our #PBC Q&A is on Friday this week at 2pm UK time. Dr Andreas Kremer will be here to answer your questions. Click here for the private room:...

change of day...

Our #PBC Q&A is on Friday this week at 2pm UK time. Dr Andreas Kremer will be he...

Administrator•14 days ago

For the latest update on Obeticholic Acid in Europe click here: https://www.pbcfoundation.org.uk/obeticholic-acid-in-europe/ #PBC #SupportforLife

update on OCA

For the latest update on Obeticholic Acid in Europe click here: https://www.pbc...

Administrator•14 days ago

Alkaline Transaminase (ALT) This is a blood test that is part of our liver panel. It is released predominantly by injured hepatocytes...

Wednesday's Word

Alkaline Transaminase (ALT) This is a blood test that is part of our liver pane...

Administrator•14 days ago

If we experience itching, it is an individual decision whether or not it needs treatment. If you itch just randomly, then likely it doesn't warrant any...

Tuesday's Tip

If we experience itching, it is an individual decision whether or not it needs t...

I almost forgot it's Monday... here in the US, we are celebrating Labor Day. Today we remember all of the hard working men and women who keep our country...

Administrator•15 days ago

4 Replies

It's Monday Me!

I almost forgot it's Monday... here in the US, we are celebrating Labor Day. Tod...