Hello everyone.: This month we found out that... - PBC Foundation

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Justiceandlaw profile image
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This month we found out that my mother has cirhossis and portal hypertension. All her resaults are ok, ast, alt, bilirubin, alcal p. everything is normal in everu resault, it is not autoimune grom the resaults it is from Hep. B, she had it in the past and it made her damage on the liver, btw 30 years she worked as a medical nurse.

Pleasee πŸ™πŸ™ Tell me how you live with this, those who has it, if there is hope she will live 😒😒😒 She has 63. Now she feels fine, she doesnt have ascites nothing, for the portal vein the gave her propronalol bit her blood tension was very low from that, she couldnt live woth that. If the portal vein should be to 10mm she has 19 mm.

Tell me wath do you do? The told her also next month to go also on gastroscopy...

now she only takes Ursofalk.

If you have experiances or you now sombedy that lives with the same please write me , i am scared that my mom soon will die...

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Justiceandlaw
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butterflyEi profile image
butterflyEi

If no one on this forum has an experience to share with you perhaps you would like to email this question to info@pbcfoundation.org.uk it can be added to the questions for the specialist on their regular Q&A sessions held on a Thursday and can be viewed at Facebook live or in a chat room.

also there is an article on the British Liver Trust which you may like to look at.

britishlivertrust.org.uk/in...

Please try not to worry your Mother is taking URSO, she is to have further investigations and most importantly she says she feels well.

I am sure your loving support brings her much comfort.

Justiceandlaw profile image
Justiceandlawβ€’ in reply tobutterflyEi

Thank you very much !

DonnaBoll profile image
DonnaBollAdministrator

What a wonderful support you must be for your Mom. I do know what you are talking about. Two important things to remember... she feels fine and her numbers, you said, were normal. We can't control, not can we predict, what will happen to any of us in the future. I hope you and your Mom spend time living life. It's so easy to not enjoy what's right in front of us, worrying about the tomorrows. I, personally, know people who have had cirrhosis and never progressed any further for many years. I know you feel helpless to your Mom but you have so much more support and love for her. Live each day! She just needs to take her Urso like she is and continue to get her lab work done every 3 -6 months or so. Has she had a fibroscan that showed cirrhosis? How does she know she has it?

Justiceandlaw profile image
Justiceandlawβ€’ in reply toDonnaBoll

DonnaBoll, thank you very much ❀️

She went on computer tomography, and there they found out she has cirhossis. On Monday she is going on gastroscopy ( i dont know if u call it the same ) so the doctor see the portal vein... I am very scared πŸ˜”

DonnaBoll profile image
DonnaBollAdministratorβ€’ in reply toJusticeandlaw

I know you are - just try to enjoy this time...now... with your Mom. No one knows what the future holds for any of us. Just take one day at a time. Keep us posted on how she is doing - and how you are.

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