Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,391 members • 8,002 posts

All posts for September 2012

Has anyone else been on urso for many years ,come off it and improved symptom wise in doing so?

I have been taking urso for 10years and after reaching the end of my tether with the horrendous itch I decided to stop taking the urso to see if I would feel...

I have been taking urso for 10years and after reaching the end of my tether with...

•12 years ago

Has anyone had a treatment called plasmaphoresis and if so what was it like.

•12 years ago

ESA appeal

i feel slightly deflated really and am wondering what will I have to fight for now, I know sounds daft ! I won my appeal today and have been put in the...

i feel slightly deflated really and am wondering what will I have to fight for n...

•12 years ago

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Hi all you are all so helpful.

I was wondering if anyone else suffers from an ache in their knees? I am slowly going mad fom lack of sleep! What do you use, do?

I was wondering if anyone else suffers from an ache in their knees? I am slowly...

•12 years ago

Just Diagnosed

Hi Everyone, I have just been diagnosed with PBC and very scared about the condition as I dont know a great deal about it, only that there is no cure. About...

Hi Everyone, I have just been diagnosed with PBC and very scared about the cond...

•12 years ago

I had a strongly positive AMA test in January 2012 and April 2012. I had a live biopsy and was told that I have fatty liver disease.

I just had blood work done recently and my AMA is no longer positive. How is this possible?

I just had blood work done recently and my AMA is no longer positive. How is thi...

•12 years ago

What do you think about this?

http://drhyman.com/blog/conditions/how-to-stop-attacking-yourself-9-steps-to-heal-autoimmune-disease/ Dr Hyman is not just a silly GP out there, you can...

http://drhyman.com/blog/conditions/how-to-stop-attacking-yourself-9-steps-to-hea...

Cristina_Romania

•12 years ago

how do you manage fatigue, including feelings of 'drunkeness' and problems with memory and concentration?

I would love to know how people have been able to beat or manage fatigue and problems with brain fuzziness (for want of a better word). Does ursofalk help with...

I would love to know how people have been able to beat or manage fatigue and pro...

•12 years ago

Do any one have right shoulder pain with PBC, my right shoulder is driving me insane, I have to take painkillers every day and every night?

•12 years ago

hammertoe surgery

Has anybody ever been thru such a surgey My 2nd toe next to the big one is still swollen after 6 weeks, i still cannot get on a shoe, IT will be a overlapping...

Has anybody ever been thru such a surgey My 2nd toe next to the big one is still...

•12 years ago

Be the first to reply

hi every one i have just had confirmation that ihave a mild form of pbc what the hell does that mean

•12 years ago

Where do I contact the Pbc foundation I live in Sydney Australia

•12 years ago

NMS re PBC

Hello everyone, all the information given from all of you is very helpful.Told about this only 4 weeks, still not seen anyone hopefully next week. Have any of...

Hello everyone, all the information given from all of you is very helpful.Told a...

•12 years ago

New to this

Hi i am new to all this. I have just been diagnoised with ulcerative colitis. While having blood test done for this ,they have told me i have automimmune...

Hi i am new to all this. I have just been diagnoised with ulcerative colitis. Wh...

•12 years ago

is it safe and successful to be treated with chemopherapy if suffering from this liver disease with established cirhrosis.

•12 years ago

restless legs medicine

I am 85 I was told 1mg pramipexole was too much for my age I have been on it for year, right now I am having trouble, RLS tol me to stop pramipexole and take...

I am 85 I was told 1mg pramipexole was too much for my age I have been on it for...

•12 years ago

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