I would love to know how people have been able to beat or manage fatigue and problems with brain fuzziness (for want of a better word). Does ursofalk help with these symptoms?
I am new to pbc - diagnosed just yesterday. I have been ill for about a year and off work for about 9 months. The main issues that drove me out of work were fatigue and problems with my memory and concentration.
The fatigue is overwhelming and apart from the odd 'good' day, it has got progressively worse. When I start feeling tired, it feels like being drunk - i get sort of dizzy and sometimes the room feels as if it has moved (for the record, I don't drink!). Then, the tiredness just overwhelms me and I have to sleep. I have been known to fall asleep in mid conversation and as a general rule, I need to sleep for about 3 hours a day - once in the morning/early afternoon and once in the evening. If I don't sleep, I can't function at all.
The problems with memory and concentration are horrendous. I have gone from being an almost obsessive reader and doer of puzzles to someone who can't concentrate long enough to read a single page at one sitting. I haven't read a book for nearly a year. Even when I can read a bit, I can;t seem to process or make sense of the words.
This has been catastrophic for me because my job involves a lot of reading and report writing. I was also studying part time for a MSc and I have a child (13) who needs help with homework.
These issues have really caused me problems - especially. in work. I was forgetting everything, taking a life time to work through reports and was generally becoming a liability. The frustration of not being able to stay awake and focused, made me snappy and pretty much a useless and unreliable colleague so I had to admit defeat and go to the doc. I thought I had alzheimers!
9 months later, I have a diagnosis of PBC and I am worried that the treatment for the PBC is not going to alleviate these symptoms. I am fairly sure that my employer is soon going to sack me unless I can give them some assurances that I will be back fairly soon and functioning at an acceptable standard. Any help/ advice/ information that I can get would be very gratefully received.