Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

Sort posts by:

Hello all, sone advise please.

I am undiagnosed B12 diffident but started self injecting and it has changed my life. I am fast Approaching 50 and have been obease for more than 3/4 of my...

I am undiagnosed B12 diffident but started self injecting and it has changed my ...

Lowbattry03

•4 hours ago

Be the first to reply

Private GP visit

I saw I private GP today as I felt with more time to go through my symptoms and tests I might get somewhere. But she is of the opinion that my B12, ferritin...

I saw I private GP today as I felt with more time to go through my symptoms and ...

Chickens44

•10 hours ago

6 Replies

Guest editor of Today on Radio 4

Listening to Today on Tadio 4 as I drive to work. They are asking for teams of 2 to 6 people to apply to be guest editor of Today in the summer. An opportunity...

Listening to Today on Tadio 4 as I drive to work. They are asking for teams of 2...

Sailinglady

•14 hours ago

Be the first to reply

Want to take advantage of all our features? Just log in!

B12 jabs and tablets giving me palpitations. Anyone else have trouble

Hi, I now find if I take a sublingual B12 tablet of 1000ug I experience palpitations. I have reduced to 500, and then 250ug same problem but slightly less...

Hi, I now find if I take a sublingual B12 tablet of 1000ug I experience palpitat...

john159

•1 day ago

4 Replies

versandapo and US

I have tried and tried but it looks like versandapo does not ship to the US. Can anyone confirm this for me? thank you!

I have tried and tried but it looks like versandapo does not ship to the US. Ca...

EiCa

•1 day ago

9 Replies

Supplements still necessary?

Good morning allI have run out of my methylfolate supplements I have been on B12 injections for a few years now and been taking supplements too. Just wanted to...

Good morning allI have run out of my methylfolate supplements I have been on B12...

Aumshantii

•2 days ago

13 Replies

Reversing out worse than actual symptoms

I am 32 years old and had B12 deficiency. B12 was <83 pg/ml (normal 180-914) as the lab could not test below this value and Vitamin D was 16 ng/ml (normal...

I am 32 years old and had B12 deficiency. B12 was <83 pg/ml (normal 180-914) as ...

Trialerror

•2 days ago

11 Replies

B12 suppliers to UK

I’ve just tried to order B12 depot from verdandapo through amazon pay but they won’t ship to my Uk address. Where are people ordering from at the moment?...

I’ve just tried to order B12 depot from verdandapo through amazon pay but they w...

FlorencePocket-Owl

•3 days ago

13 Replies

good morning, question on iron supplement when I start injection

well for now I'm on liquid b12 methyl 720 per day and next week my injections come in the mail ans I know Im needing Iron supplements but I'm not sure how...

well for now I'm on liquid b12 methyl 720 per day and next week my injections c...

JesusMercy60

•3 days ago

9 Replies

Benfotiamin

Current Trial (7 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5-6 times a day including...

Current Trial (7 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3m...

WIZARD6787

•3 days ago

16 Replies

New to PA and need info and support

Hi, for nearly 10 years I have been returning blood tests with low b12 levels, recently these have been 140 / 155 / 170 and 2 weeks ago 165. I continued to...

Hi, for nearly 10 years I have been returning blood tests with low b12 levels, r...

Sailing63

•3 days ago

21 Replies

Panpharma ampoules from Versandapo

Good morning This is my second post on here. I have just ordered my first ever ampoules for S.I.........saw someone post Versandapo had Panpharms in stock...

Good morning This is my second post on here. I have just ordered my first ever...

edeuweed

•4 days ago

12 Replies

Slump?

Hi, I am, seemingly, just exiting a slump I had not experienced before to that degree since injecting. I was experiencing many of the symptoms I suffered pre...

Hi, I am, seemingly, just exiting a slump I had not experienced before to that d...

B12again

•4 days ago

6 Replies

folate injection Australia

does anyone know how to get the above in Australia?

Inquiringmind12

•4 days ago

3 Replies

One more question about folate

If the body, due to methylation problems, cannot process regular folate, but can process methyl folate, does the non- methylated folate build up in one's...

If the body, due to methylation problems, cannot process regular folate, but can...

ndodge

•4 days ago

4 Replies

Folder levels high

Hi all! It's been awhile since I posted anything. I've been doing about 5 injections of methylcobalamin a week, for several years now. I take a food based...

Hi all! It's been awhile since I posted anything. I've been doing about 5 inje...

ndodge

•4 days ago

13 Replies

Cyanocobalamin

Hi, I have just been informed by my GP surgery that Cyanocobalamin injections, which I have 4 weekly, have been discontinued in England. I am allergic to...

Hi, I have just been informed by my GP surgery that Cyanocobalamin injections, w...

Syuri

•4 days ago

20 Replies

Panpharma back in stock at Versandapo

Just managed to order some. My body has decided that it needs two jabs a week now instead of one for some reason, so I was getting a bit low.

Just managed to order some. My body has decided that it needs two jabs a week no...

topazrat

•4 days ago

2 Replies

Help with blood test results, please.

I was diagnosed with B12 Deficiency with Pernicious Anemia in 2018. I was given the six loading doses and injections every 12 weeks. After about two years I...

I was diagnosed with B12 Deficiency with Pernicious Anemia in 2018. I was given...

rubyone

•5 days ago

17 Replies

Muscle Damage

Hi all. I’m wondering if any of you have experienced muscle damage from self-injecting, and if so how did you know? How long did it take to heal? The last...

Hi all. I’m wondering if any of you have experienced muscle damage from self-inj...

Cobalt1312

•5 days ago

8 Replies

The Role of Neurotropic B Vitamins in Nerve Regeneration

Interesting read for those that are interested in research ............... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8294980/

Interesting read for those that are interested in research ............... http...

Jillymo

•6 days ago

8 Replies

A weird dynamic.

When I make a positive change in my supplementation or activity there is a three day +- uptick as my body is getting more of what it needs. This is followed by...

When I make a positive change in my supplementation or activity there is a three...

WIZARD6787

•6 days ago

3 Replies

PA and Sjogren’s

I posted a few days ago about dry mouth and eyes, but since then my early sjogrens bloodwork has come back positive. I am terrified! Is there anyone else who...

I posted a few days ago about dry mouth and eyes, but since then my early sjogre...

Lhood08

•6 days ago

5 Replies

stomach polyps

Hi all I’ve addressed a thyroid issue - Hashimotos, with the help from the thyroid site. I’m still experiencing fatigue. I am in meno/post menopausal stage....

Hi all I’ve addressed a thyroid issue - Hashimotos, with the help from the thyr...

Bacca

•6 days ago

Be the first to reply

Fluttering and shaking

Hello my well informed PA society, I am recently experiencing fluttering in my body along with shaking. I have pernicious anemia and hypothyroid, gastritis....

Hello my well informed PA society, I am recently experiencing fluttering in my ...

25092

•7 days ago

4 Replies

some advice needed please

Hi I’m going to see Dr Klein in Cambridge as recommended by some of you guys, he has sent links to order theses products from Medisave Sharpsguard yellow...

Hi I’m going to see Dr Klein in Cambridge as recommended by some of you guys, he...

Windyway

•7 days ago

12 Replies

Risk of reversing out for A'levels

Hi everyone. I'm in a conundrum. My youngest daughter, 17, has low B12 (181ng/L, so not low enough for our GP to take any notice), inherited from me (141ng/L...

Hi everyone. I'm in a conundrum. My youngest daughter, 17, has low B12 (181ng/L...

Cotswolds23

•7 days ago

10 Replies

It’s ok to be deficient if you inflicted it upon yourself..

Has anyone sought an explanation from their gp as to why if you have caused b12 deficiency by the deliberate use of nitrous oxide that the NHS sanctions the...

Has anyone sought an explanation from their gp as to why if you have caused b12 ...

MorningMist

•7 days ago

21 Replies

Help please to understand blood test results a month after c vaccine

Hi! I have no idea what is going on with me. I have been Si daily and twice daily sometimes for 6 mths now and am taking all cofactors.My blood tests have come...

Hi! I have no idea what is going on with me. I have been Si daily and twice dail...

brenanddave

•7 days ago

Be the first to reply

Methyl or Hydro B12 injections - is it safe to switch between both each month?

Is it safe to switch between different types of B12 injections? For example, one month I take the hydroxocobalamin injection and the next month i take the...

Is it safe to switch between different types of B12 injections? For example, one...

LaraPA

•7 days ago

5 Replies

Write a post or ask a question

Search posts

Pinned Posts

See all

NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

Latest poll

See all polls

How Often do you feel you actually need your B12 injection?

Vote

Topics

All posts(76)

All things Pernicious Anaemia Society(76)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

Hello all, sone advise please.

Private GP visit

Guest editor of Today on Radio 4

B12 jabs and tablets giving me palpitations. Anyone else have trouble

versandapo and US

Supplements still necessary?

Reversing out worse than actual symptoms

B12 suppliers to UK

good morning, question on iron supplement when I start injection

Benfotiamin

New to PA and need info and support

Panpharma ampoules from Versandapo

Slump?

folate injection Australia

One more question about folate

Folder levels high

Cyanocobalamin

Panpharma back in stock at Versandapo

Help with blood test results, please.

Muscle Damage

The Role of Neurotropic B Vitamins in Nerve Regeneration

A weird dynamic.

PA and Sjogren’s

stomach polyps

Fluttering and shaking

some advice needed please

Risk of reversing out for A'levels

It’s ok to be deficient if you inflicted it upon yourself..

Help please to understand blood test results a month after c vaccine

Methyl or Hydro B12 injections - is it safe to switch between both each month?

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive