Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for May 2024

Asking For Blood Test?

I haven’t had a blood test for over a year so I want to email my doctor to request one. What should I ask for (maybe include iron) ie the correct description...

I haven’t had a blood test for over a year so I want to email my doctor to reque...

B12again

•2 months ago

12 Replies

Panpharma DEPOT Ampoules

Has anyone had any luck getting hold of Panpharma DEPOT ampoules from any Germany pharmacies? Asking for a friend... Thanks

Has anyone had any luck getting hold of Panpharma DEPOT ampoules from any German...

Pickle500

•2 months ago

19 Replies

B12 serum stains?

They come out of fabric right…right🫠 Tend to SI on my bed, and this week’s linen is a summery off white (in literal linen) that now has red blotches all...

They come out of fabric right…right🫠 Tend to SI on my bed, and this week’s li...

a-wonderful-seed

•2 months ago

2 Replies

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B12 and fatty Liver

Good day friends. I always though B12 helps with the liver issues. Can anyone comment on this study? Says high levels can cause fatty liver...

Good day friends. I always though B12 helps with the liver issues. Can anyone...

Canadian77

•2 months ago

24 Replies

New Unproven and Untested Concept.

I noticed that in online videos many are touting higher amounts of different water soluble vitamins that those amounts recommended by the medical field and...

I noticed that in online videos many are touting higher amounts of different wa...

WIZARD6787

•2 months ago

1 Reply

Low B12 and ferritin questions

Over the past year I have had frequent respiratory infections and when not ill, I am always exhausted. I often need to stay in bed on my days off recovering....

Over the past year I have had frequent respiratory infections and when not ill, ...

bakedbean5007

•2 months ago

17 Replies

tiredness

I had my 12 weekly shot last month and I am feeling tired again already i can drink a lot of coffee and i can still feel tired i am thinking of taking multi...

I had my 12 weekly shot last month and I am feeling tired again already i can ...

pinkypurple58

•2 months ago

7 Replies

This normal

HI everyone, I si with panpharma when I can get it, but the last year have been using hevert, eod or twice weekly. Thought I would restock even though not low,...

HI everyone, I si with panpharma when I can get it, but the last year have been ...

Myanna23

•2 months ago

11 Replies

sublingual b12

I appreciate that self injection is the most sensible route but haven’t made that decision for myself. Where do you buy the sublingual b12 as I can only see...

I appreciate that self injection is the most sensible route but haven’t made tha...

Palum

•2 months ago

5 Replies

Using up my B1 Thiamine.

I never got the hang of knowing when I used up my B12 as some experience. Likely as I was also B1 deficient. The only way to determine if you are B1 deficient...

I never got the hang of knowing when I used up my B12 as some experience. Likely...

WIZARD6787

•2 months ago

3 Replies

Information about frequency of injection

Hi I posted about a sudden deterioration in my health after 4 years of successful self-injection eod, daily or twice a week (depending on how I was doing). My...

Hi I posted about a sudden deterioration in my health after 4 years of successf...

LizWilsonpa

•2 months ago

6 Replies

COVID vaccination

I think all of these horrible symptoms we have are the results of COVID-19 vaccination. I’m so angry 😡

I think all of these horrible symptoms we have are the results of COVID-19 vacci...

Sissiotto

•2 months ago

4 Replies

Do I Poke The Bear?

I had my B12 jab last week, I get these every 2 months and am grateful to have them. I've suffered B12 issues since childhood, have dim memories of blood tests...

I had my B12 jab last week, I get these every 2 months and am grateful to have t...

Sparklingsunshine

•2 months ago

24 Replies

Exhausted still after B12 injection.

I was diagnosed a year ago with pernicious anemia. I find that literally half an hour after my injection I'm back to being exhausted again. I do also have RA...

I was diagnosed a year ago with pernicious anemia. I find that literally half an...

Dolly260

•2 months ago

5 Replies

Hebden Bridge Help Needed Please

Hi All I am posting on behalf of a member who is very poorly and who lives in Hebden Bridge, HX7. She needs help with her B12 injections as she is too weak...

Hi All I am posting on behalf of a member who is very poorly and who lives in H...

Wwwdot

•2 months ago

6 Replies

Confused

This is the worst my pain levels have ever been 60 percent of my joints .my back has cramps bad tummy ..just had urine done that was clear ...bloods getting...

This is the worst my pain levels have ever been 60 percent of my joints .my back...

Mozza127

•2 months ago

5 Replies

Does anyone know anything about low SigA levels and links with b12 deficiency please?

Hi…I’ve recently read an article, but can’t find it at mo! that low SigA levels along with high gastrin levels can indicate b12 deficiency. It caught my...

Hi…I’ve recently read an article, but can’t find it at mo! that low SigA levels ...

Jo5454

•2 months ago

Be the first to reply

Abdominal burning pain

Do people suffer with burning pain, a bit like IBS pain, but more constant and burning anywhere across the abdomen. I am still awaiting tests to confirm PA,...

Do people suffer with burning pain, a bit like IBS pain, but more constant and b...

Chickens44

•2 months ago

5 Replies

Reversing Intestinal Metaplasia.

.Hi, I have been reading the results of research from a link on another website stating that supplementation of 30mg folic acid daily can reverse precancerous...

.Hi, I have been reading the results of research from a link on another website ...

Helliborous

•2 months ago

13 Replies

Gastritis

Hi all! Had my endoscopy last Friday.. my follow up (awaiting biopsies) I have mild erosive Gastritis which I understand can prevent B12 from absorbing? My...

Hi all! Had my endoscopy last Friday.. my follow up (awaiting biopsies) I have ...

Doris11

•2 months ago

12 Replies

8 hours of feeling well/wonderful.

Current trial: Current Trial (15 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5-6 times a day...

Current trial: Current Trial (15 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg aden...

WIZARD6787

•2 months ago

4 Replies

Vertigo 3 months after starting the B12 treatment

Hi, I got vertigo today. It has been 3 months after I started treatment for B12 and D deficiency. I understand that people have mentioned about reversing...

Hi, I got vertigo today. It has been 3 months after I started treatment for B12...

Trialerror

•2 months ago

7 Replies

Seeking Diagnostic/Treatment Ideas

As an American living among far less progressive standards I’m so glad to discover this community. I’ve been trying to focus my brain cells to make this...

As an American living among far less progressive standards I’m so glad to discov...

Pamelayne

•2 months ago

55 Replies

Help?

hello all, I’m new here - both to B12D (?PA). 36yo female Do you find that doctors understand the reversing out symptoms? My GP is trying her hardest to...

hello all, I’m new here - both to B12D (?PA). 36yo female Do you find that doc...

PlatypusProfit8077

•2 months ago

21 Replies

low b12 - When will this improve?

I have low B12 - 188 Iron Serum- 11 ( just under normal) Folate is 3.6 Iron serum 110 Vitamin D - 65 Went to doctor due to pins and needles in feet...

I have low B12 - 188 Iron Serum- 11 ( just under normal) Folate is 3.6 I...

Damacian

•2 months ago

18 Replies

Hope this is a blip...

Hi all, I'm noticing a return of the nerve pings and tingles that first took me to the gp 5 months ago, especially the weird quivering lips... all this...

Hi all, I'm noticing a return of the nerve pings and tingles that first took me ...

Myoldcat

•2 months ago

13 Replies

List of medications to avoid?

Hi all, hope we're all getting our natural Vitamin D on this sunny Sunday☀️? I understand there are some medications that can badly affect us B12 deficients -...

Hi all, hope we're all getting our natural Vitamin D on this sunny Sunday☀️? I ...

Myoldcat

•2 months ago

10 Replies

Micro Dosing

Current Trial (7 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5-6 times a day including...

Current Trial (7 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3m...

WIZARD6787

•3 months ago

Be the first to reply

Son tested positive for gastric parietal cell antibodies

My son has history with h pylori, which he was treated for, but the symptoms haven't gone away completely. Last week I was talking about my own b12 deficiency...

My son has history with h pylori, which he was treated for, but the symptoms hav...

fatfatfat

•3 months ago

4 Replies

Coffee - links to autoimmune?

Dear PA members - there seems to be many articles about negative and positive impacts of coffee/caffeine on autoimmune diseases. Does anyone know /researched...

Dear PA members - there seems to be many articles about negative and positive im...

PAapr22

•3 months ago

4 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for May 2024

Asking For Blood Test?

Panpharma DEPOT Ampoules

B12 serum stains?

B12 and fatty Liver

New Unproven and Untested Concept.

Low B12 and ferritin questions

tiredness

This normal

sublingual b12

Using up my B1 Thiamine.

Information about frequency of injection

COVID vaccination

Do I Poke The Bear?

Exhausted still after B12 injection.

Hebden Bridge Help Needed Please

Confused

Does anyone know anything about low SigA levels and links with b12 deficiency please?

Abdominal burning pain

Reversing Intestinal Metaplasia.

Gastritis

8 hours of feeling well/wonderful.

Vertigo 3 months after starting the B12 treatment

Seeking Diagnostic/Treatment Ideas

Help?

low b12 - When will this improve?

Hope this is a blip...

List of medications to avoid?

Micro Dosing

Son tested positive for gastric parietal cell antibodies

Coffee - links to autoimmune?

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