Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for May 2024

17 May Pernicious Anaemia blog

I've finally managed to read alot of this. Was pleased to see the society's statement about the new NICE guidelines . Highlighted incase anyone missed it .

I've finally managed to read alot of this. Was pleased to see the society's stat...

Nackapan

•2 months ago

11 Replies

Imbibe B12 Ampoules ?

hello, seems a strange question. I decided to try some Panpharma ampoules and the stinging is unbearable. Sane needles, tried different spots same awful...

hello, seems a strange question. I decided to try some Panpharma ampoules and t...

Wheat

•2 months ago

20 Replies

Has anyone tried Neovos for an MMA urine test please?

Hi...wondering if anyone has tried these for tests please? I've used St Thomas hosp in past but they stopped over covid and am awaiting to hear back from them...

Hi...wondering if anyone has tried these for tests please? I've used St Thomas h...

Jo5454

•2 months ago

13 Replies

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Nerve Conduction Test

I have just been advised by GP to take a Nerve Conduction Test for peripheral neuropathy that I continue to experience despite self-injecting EOD for the last...

I have just been advised by GP to take a Nerve Conduction Test for peripheral ne...

Libuse

•2 months ago

21 Replies

Quick Update

Still doing the work to find how to thrive and adjusting to improved suplimentation. I embrace not letting my neurological system languish in the smoldering...

Still doing the work to find how to thrive and adjusting to improved suplimentat...

WIZARD6787

•2 months ago

Be the first to reply

Pascoe B12 in the USA?

Is it possible to buy the Pascoe B12 in the USA? Last B12 shot I had, one my insurance would allow, gave me an allergic reaction. Was told by some...

Is it possible to buy the Pascoe B12 in the USA? Last B12 shot I had, one my ...

highlandcottage8

•2 months ago

16 Replies

Crawling skin on legs

Hi everyone just a question, does anyone experience numbness and bright red feet in middle of night coupled with lower back pain. Also my thighs and calves...

Hi everyone just a question, does anyone experience numbness and bright red feet...

gpw61

•2 months ago

3 Replies

seeing neurologist, advice on b12 injections welcomed…

hi all? have been prescribed with PA. My ferritin levels are normal - 177 Vitamin D- 70. I have finished loading does for b12 last week. My last...

hi all? have been prescribed with PA. My ferritin levels are normal - 177 ...

Damacian

•2 months ago

17 Replies

Pernicious anaemia

My 14 year old daughter has been mainly in bed sleeping for 7 to 8 weeks. She sleeps most of the time and is complaining of aches throughout her body. I have...

My 14 year old daughter has been mainly in bed sleeping for 7 to 8 weeks. She sl...

TracyEsmond

•2 months ago

43 Replies

B12 injections - advice please

Hi, I have been diagnosed with hypothyroidism, but also have very low B12 levels (not clear if PA). I was prescribed B12 injections privately -...

Hi, I have been diagnosed with hypothyroidism, but also have very low B12 leve...

TheMudRunner

•2 months ago

20 Replies

B12 injections and holiday abroad

Hi, Just need some advice please on packing B12 ampoules and injection paraphernalia and going through security please. Thank you

Hi, Just need some advice please on packing B12 ampoules and injection parapher...

Fluffyone

•2 months ago

9 Replies

Intrinsic Factor result

bit disappointing it didn’t come back positive., but I know they don’t always accurately reflect the underlying condition.It also means my pernicious anaemia...

bit disappointing it didn’t come back positive., but I know they don’t always ac...

Chickens44

•2 months ago

24 Replies

Peripheral neuropathy and neurology's response

Hi. I've posted a couple of times recently so I'll start with a precise and then my ask! I was diagnosed with Vitamin B12 deficiency in 2015 - I wasn't tested...

Hi. I've posted a couple of times recently so I'll start with a precise and then...

LizWilsonpa

•2 months ago

27 Replies

Functional Gerd/Heartburn

Good day everyone, has anyone ever researched this topic ? I was diagnosed with AIG few months back, started EOD injections and recently developed what feels...

Good day everyone, has anyone ever researched this topic ? I was diagnosed with...

Canadian77

•2 months ago

9 Replies

Should I go back to every other day injections?

It has been quite a while since I have posted. I have been doing monthly inspections for well over a year but have started having vertigo, heart palpitations...

It has been quite a while since I have posted. I have been doing monthly inspec...

Nanc72

•2 months ago

3 Replies

Feeling Green without Greens

Hi Guys An unexpected learning curve - slid down and now back to recovery path. I won’t bore you with the background as it’s in my bio but basically I...

Hi Guys An unexpected learning curve - slid down and now back to recovery path...

Wwwdot

•2 months ago

17 Replies

What are some signs that you need more injections as opposed to it being reversing out?

I recently switched from cyano to methyl and I have been doing EOD, the main neurological symptoms I have left are muscle weakness and shortness of...

I recently switched from cyano to methyl and I have been doing EOD, the main neu...

QianYunxi

•2 months ago

14 Replies

UTI Treatment

Can someone please tell me what antibiotic might be best fo a water infection. I'm so worried about a bad reaction since that's what I got with taking...

Can someone please tell me what antibiotic might be best fo a water infection. I...

3rdNettydoon

•2 months ago

20 Replies

warning re gastroscopy and gastrografin for ME/CFS sufferers . Plus neuropathy ?

I saw a very nice colorectal surgeon who arranged a CT colonography - as I thought this would be physically less demanding than a full colonoscopy. Two days...

I saw a very nice colorectal surgeon who arranged a CT colonography - as I thou...

Applethorpe

•2 months ago

6 Replies

Should I load up after a lull

Hello. I've been injecting methylcobalamin monthly for about 6 years successfully after being diagnosed with PA. Over the last few months I started getting...

Hello. I've been injecting methylcobalamin monthly for about 6 years successfull...

AirAl

•2 months ago

9 Replies

These photos (I hope) show my Ferretin and Folate blood results.

I recently had a blood test. Please could someone advise me as to whether they are ok? Thank you.

I recently had a blood test. Please could someone advise me as to whether they a...

Everdean

•2 months ago

6 Replies

High Blood Pressure In Between injections

Hi , I’m newly diagnosed with PA, Still having neurological symptoms of para thesis in my arm/ hand - I’ve now had 22 injections of B12 since the end of Feb...

Hi , I’m newly diagnosed with PA, Still having neurological symptoms of para t...

Karenedawson

•2 months ago

19 Replies

labs results that contraindicate one another

Hi all, I’ve been having pretty constant parasthesias on both sides of my body usually worse from shoulders down to fingers, initial B12 level was 190 (was...

Hi all, I’ve been having pretty constant parasthesias on both sides of my body...

Katep66875

•2 months ago

5 Replies

Panpharma B12 Depot

Apohealth.de currently have these in stock. Have successfully placed an order this evening (18th May)

Apohealth.de currently have these in stock. Have successfully placed an order th...

headgirl

•2 months ago

5 Replies

Malabsorption of drugs?

I am still awaiting a diagnosis of PA, but do suspect I do have it. My stomach pH level was recently 8.1, so very low stomach acid, which is why I am not...

I am still awaiting a diagnosis of PA, but do suspect I do have it. My stomach p...

Chickens44

•2 months ago

7 Replies

Active b12 versus serum b12

My Medichecks active b12 is 63.1 (range is 37.5-188) but my serum b12 tested at my gp surgery shows top of range. Should I supplement? I also have...

My Medichecks active b12 is 63.1 (range is 37.5-188) but my serum b12 tested at ...

Eton

•2 months ago

33 Replies

Hypocellular bone marrow. Can anyone tell me more?

I was diagnosed with B12 deficiency ("low serum B12") over 15 years ago when debilitating exhaustion was putting my job at risk. Doctors assumed diet related...

I was diagnosed with B12 deficiency ("low serum B12") over 15 years ago when deb...

newlandvale

•2 months ago

25 Replies

Macrocytic Anemia?

Hi, I am posting here for my Mom. She had blood work every year with perfect results until last year in September when the Hemoglobin/RBC/Hemocrit started...

Hi, I am posting here for my Mom. She had blood work every year with perfect res...

Simonapo

•2 months ago

11 Replies

Supplementing Ferritin/ Folate advice.Hello friends. I have been supplementing B12 for some time. But since

advice.Hello friends. I have been supplementing B12 for some time. But since getting a recent blood test done. I noticed that my Ferritin and Folate were a bit...

advice.Hello friends. I have been supplementing B12 for some time. But since get...

Everdean

•2 months ago

13 Replies

Numbness after methyl injections

Hello everyone, I recently switched from cyanocobalamin to methylcobalamin. The first few injections I felt euphoric and normal again, had wake up symptoms...

Hello everyone, I recently switched from cyanocobalamin to methylcobalamin. Th...

QianYunxi

•2 months ago

3 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for May 2024

17 May Pernicious Anaemia blog

Imbibe B12 Ampoules ?

Has anyone tried Neovos for an MMA urine test please?

Nerve Conduction Test

Quick Update

Pascoe B12 in the USA?

Crawling skin on legs

seeing neurologist, advice on b12 injections welcomed…

Pernicious anaemia

B12 injections - advice please

B12 injections and holiday abroad

Intrinsic Factor result

Peripheral neuropathy and neurology's response

Functional Gerd/Heartburn

Should I go back to every other day injections?

Feeling Green without Greens

What are some signs that you need more injections as opposed to it being reversing out?

UTI Treatment

warning re gastroscopy and gastrografin for ME/CFS sufferers . Plus neuropathy ?

Should I load up after a lull

These photos (I hope) show my Ferretin and Folate blood results.

High Blood Pressure In Between injections

labs results that contraindicate one another

Panpharma B12 Depot

Malabsorption of drugs?

Active b12 versus serum b12

Hypocellular bone marrow. Can anyone tell me more?

Macrocytic Anemia?

Supplementing Ferritin/ Folate advice.Hello friends. I have been supplementing B12 for some time. But since

Numbness after methyl injections

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