Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for April 2024

hashimotos and b12

hi everyone, I’m a member of thyroid uk amongst other issues I’m having trouble getting a loading dose of b12 as per nice guidelines. One of thyroids member...

hi everyone, I’m a member of thyroid uk amongst other issues I’m having trouble...

Rowing2

•3 months ago

5 Replies

PA/stomach pain

Hi all, I’m so grateful for all of your support as I’ve started down this road. Got diagnosed with PA/AIG in the fall via an endoscopy. I am on B12...

Hi all, I’m so grateful for all of your support as I’ve started down this road....

Lhood08

•3 months ago

12 Replies

versandApo order

hi, Ordered b12 ampoules from above site (have ordered before and arrived quickly). Order was placed 10th April and haven’t received yet. I messaged them and...

hi, Ordered b12 ampoules from above site (have ordered before and arrived quick...

Fluffyone

•3 months ago

5 Replies

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2023 research 👉

Some might find this artical of interest....... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10305463/

Some might find this artical of interest....... https://www.ncbi.nlm.nih.gov/pm...

Jillymo

•3 months ago

12 Replies

Versandapo Panpharma B12 available ?

I have had 3 emails from Versandapo alerting me Panpharma is now in stock. Each time I go on their site and check it says currently out of stock ! I’ve been...

I have had 3 emails from Versandapo alerting me Panpharma is now in stock. Each...

Ryaan

•3 months ago

11 Replies

Hoshimitos thyroiditis

Hi All, I am new on here with newly diagnosed pernicious anaemia. I had the standard 2 weeks of injections and after that course felt fantastic energy wise...

Hi All, I am new on here with newly diagnosed pernicious anaemia. I had the st...

Tigger999

•3 months ago

7 Replies

B12 injections stopped by gp after 5 years treatment on nhs

I was diagnosed with chronic b12 deficiency years ago - my GP started giving me injections every 3 months and my nurse told me that it was for life. I’ve...

I was diagnosed with chronic b12 deficiency years ago - my GP started giving me ...

LaraPA

•3 months ago

15 Replies

Daily Magnesium intake?

I'm curious to hear about others Magnesium daily intake and experience of taking it. It was one of the first pieces of advise somebody anecdotally told me...

I'm curious to hear about others Magnesium daily intake and experience of taking...

MartynLewis

•3 months ago

5 Replies

Serum folate 7,(3.1-20.1) completed loading dose, being retested in 8 wks, is it best to take folic acid now, or wait for re-test please?

Hi My folate is lower in range and I was discussing red cell folate test (thank you FlipperTD!)as a way of checking folate privately. I am now wondering...

Hi My folate is lower in range and I was discussing red cell folate test (thank...

Jo5454

•3 months ago

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B12 - a hidden inflammation trigger

I found this of interest. When I were diagnosed both my ESR and CRP were both above range when tested and still are !........

I found this of interest. When I were diagnosed both my ESR and CRP were both a...

Jillymo

•3 months ago

29 Replies

Expired needles and syringes

I've never noticed this before but just spotted expiry dates on needles and syringes. Is this really a thing? Is it like a best before date or a strict use by...

I've never noticed this before but just spotted expiry dates on needles and syri...

Clare184

•3 months ago

5 Replies

onset of symptoms after shot

Hi All, Does anyone experience quick onset of symptoms after injecting? My feet and hands go numb and I get dizzy and nauseous. Sometimes I get arm twitching...

Hi All, Does anyone experience quick onset of symptoms after injecting? My feet...

Jjjmmm

•3 months ago

3 Replies

Pattern of Improved Supplementation and Results of 5 day Trial

Current Trial (5 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5 times a day including setting...

Current Trial (5 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3m...

WIZARD6787

•3 months ago

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B12 Deficiency and Parkinsons

I have a neighbour who has Parkinsons and also a good friend who has just been diagnosed with it. I understand that it can be a consequence of B12D. Is anyone...

I have a neighbour who has Parkinsons and also a good friend who has just been d...

B12again

•3 months ago

7 Replies

B-12 Def in Mexico (no health insurance)

Here is my (ongoing) thread to detail my B12 journey. Here goes! 2-3 years before diagnosis I began having the following symptoms. Numbness in toes which...

Here is my (ongoing) thread to detail my B12 journey. Here goes! 2-3 years bef...

GracePV

•3 months ago

22 Replies

Confused any advice

HiI have had low iron for over a year in January 2024 I was experiencing horrific bone pain after I move around actively. I have lost 9 stone nearly in 2...

HiI have had low iron for over a year in January 2024 I was experiencing horrifi...

HannahTayl28

•3 months ago

12 Replies

Intrinsic Factor blood test

How long does it take for NHS to run this test? I had the test done last Tuesday, but the results are still not showing on my records.

How long does it take for NHS to run this test? I had the test done last Tuesday...

Chickens44

•3 months ago

6 Replies

Frequency of Hydroxocobalamin injections in UK

Hi everyone, I'm a long time sufferer of PA, initial symptoms aged 13, finally diagnosed at 26, will be 50 this year. Also suffer with chronic fatigue,...

Hi everyone, I'm a long time sufferer of PA, initial symptoms aged 13, finally...

MissPoshOxford

•3 months ago

6 Replies

led astray ☹️

hello all, I reported on the 13th of April that apotheke-meinebrunn.de had Pan Pharma hydroxy in stock and successfully ordered, I received an email today...

hello all, I reported on the 13th of April that apotheke-meinebrunn.de had Pan...

EiCa

•3 months ago

4 Replies

b12 deficiency and MRI scanner...

Hi everyone, Weird question... Did anyone else who has had an MRI, find that it upset your nerves for a while after? (Like weeks) I cannot tell if it was that,...

Hi everyone, Weird question... Did anyone else who has had an MRI, find that it ...

Suffering_sunny

•3 months ago

8 Replies

bad batch?

I bought three boxes of b12 (not Pascoe, the brand that’s impossible to get now). The first two boxes, once my body had got used to it, I always had the same...

I bought three boxes of b12 (not Pascoe, the brand that’s impossible to get now)...

Pepperpots302

•3 months ago

5 Replies

My Stuffy Head

Current Trial (4 Days-Positive); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg hydroxocobalamin 1mg/ml. SC injection 5 times a day...

Current Trial (4 Days-Positive); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcob...

WIZARD6787

•3 months ago

Be the first to reply

From Narwhal10

Our pesky slippery friend with the long tooth sends apologies to PA HU for being away.She wanted to relay she's fine and has just got her head buried in...

Our pesky slippery friend with the long tooth sends apologies to PA HU for being...

Rexz

•3 months ago

3 Replies

Provider “B”-ware: Using Methylmalonic Acid Levels to Diagnose B12-deficiency Neuropathy

"We present a patient with findings of subacute combined degeneration (SCD) in the setting of a mild B12 deficiency, with a normal methylmalonic acid...

"We present a patient with findings of subacute combined degeneration (SCD) in t...

Technoid

•3 months ago

28 Replies

B12 frequency

I've SI EOD for just over a year. I know that some on this forum may have decreased their frequency after a period of time. I'd like to try decreasing so any...

I've SI EOD for just over a year. I know that some on this forum may have decrea...

Orchard33

•3 months ago

10 Replies

I just got some Pan Pharma from Apotheke-marienbrunn.de

I just ordered from the above site. This is at 2:10 EST in US. Hopefully it really is available as it indicated it was.

I just ordered from the above site. This is at 2:10 EST in US. Hopefully it re...

EiCa

•3 months ago

3 Replies

early pregnancy -Hydroxy33

Anybody know if I can inject Hevert 2 ml depot B12 from Germany in early pregnancy? I'm in the USA and the cyanocobalamin injection is the only one I could get...

Anybody know if I can inject Hevert 2 ml depot B12 from Germany in early pregnan...

AstiSP

•3 months ago

14 Replies

Celiac blood test, looks like it sits on a borderline, between 'normal' and possibly abnormal 🤷🏻‍♀️ what could this mean?

Does anyone understand this celiac test? I was surprised to see I sit on what looks like a borderline... what does <0.3 (u/ml) mean? 🤷🏻‍♀️ I wondered about...

Does anyone understand this celiac test? I was surprised to see I sit on what lo...

Suffering_sunny

•3 months ago

5 Replies

Active B12 tests

Does anyone know why no active B12 blood tests (such as Holo) are available in the USA?

Does anyone know why no active B12 blood tests (such as Holo) are available in t...

Greeneyecolor

•3 months ago

12 Replies

any advice on 6ug/L serum ferritin

hello , I’ve not been diagnosed with pernicious anemia but wondered if anyone could offer some hep I’ve been complaining to the doctors for ages bout...

hello , I’ve not been diagnosed with pernicious anemia but wondered if anyone co...

Hazel1010

•3 months ago

4 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for April 2024

hashimotos and b12

PA/stomach pain

versandApo order

2023 research 👉

Versandapo Panpharma B12 available ?

Hoshimitos thyroiditis

B12 injections stopped by gp after 5 years treatment on nhs

Daily Magnesium intake?

Serum folate 7,(3.1-20.1) completed loading dose, being retested in 8 wks, is it best to take folic acid now, or wait for re-test please?

B12 - a hidden inflammation trigger

Expired needles and syringes

onset of symptoms after shot

Pattern of Improved Supplementation and Results of 5 day Trial

B12 Deficiency and Parkinsons

B-12 Def in Mexico (no health insurance)

Confused any advice

Intrinsic Factor blood test

Frequency of Hydroxocobalamin injections in UK

led astray ☹️

b12 deficiency and MRI scanner...

bad batch?

My Stuffy Head

From Narwhal10

Provider “B”-ware: Using Methylmalonic Acid Levels to Diagnose B12-deficiency Neuropathy

B12 frequency

I just got some Pan Pharma from Apotheke-marienbrunn.de

early pregnancy -Hydroxy33

Celiac blood test, looks like it sits on a borderline, between 'normal' and possibly abnormal 🤷🏻‍♀️ what could this mean?

Active B12 tests

any advice on 6ug/L serum ferritin

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