I've SI EOD for just over a year. I know that some on this forum may have decreased their frequency after a period of time. I'd like to try decreasing so any suggestions would be gratefully received.
B12 frequency: I've SI EOD for just... - Pernicious Anaemi...
B12 frequency
I can empathasise if not help. I have been SI EOD for 2 years now and wonder about decreasing but I still have peripheral neuroma and have read it can years to improve….. Same age as you by the way 😊
Thanks, Libuse. Yes, I think age is a factor. I've also read three years to some kind of recovery. I'm assuming on EOD not the NHS ration. So, by that measure I have two more years, probably on EOD. That desire to be well again without dependency on B12 shots keeps getting the better of me. .
Have you had thyroid checked? I was horrified to discover that I was severely hypothyroid after collapsing with vertigo, later discovering that the two often go hand in hand….
If you have Pernicious Anaemia, I’m afraid that you will always be dependent on B12 injections. But you will likely eventually be able to inject less than you do presently . Best wishes .
I've tried reducing on and off over the last couple of years. At no point has it gone well, but that's not a reason not to try. My advice would be to make a list of all the symptoms which have resolved/reduced with regular B12, so you have an idea what you are looking for when they return), some caught me unaware e.g. low back pain and a crampy muscle in my jaw.
Then, reduce to twice a week. Do that for maybe 4 weeks. If all is ok, then reduce to weekly. Do that for another 4 to 8 weeks. You get the picture. Or, if you want to be even more cautious, reduce to every 3 days, then every 4 days etc.
I've tried it both ways, but come to the conclusion that i still need eod at present. Or perhaps, i just need to increase back to eod when I'm ill, then reduce again. I'm still working that bit out.
I was able to go from EOD (only for two weeks) to every 5-7 days, reducing gradually. While I still have some minor "vibrating" in my feet, all other symptoms seem to have faded in the last 6 months, since I started.