Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,164 members • 23,332 posts

All posts for April 2024

Panpharma B12 depot is now out of stock already unfortunately.

I was worried that this would happen . Just fill in yout email address in the box on the right underneath the announcement in red which says “. DIESER ARTIKEL...

I was worried that this would happen . Just fill in yout email address in the b...

wedgewood

•2 months ago

10 Replies

Unbelievable

I emailed my concerns about B12 prescribing to my local NHS board ;Integrated care board ICB) in October 2023. My concern mainly describing my B12...

I emailed my concerns about B12 prescribing to my local NHS board ;Integrated ...

Nackapan

•2 months ago

7 Replies

Achy feet

For the last 4 or 5 weeks my feet have been feeling so achy. Keep feeling like when you've spent a full day walking even when I've not walked very much at...

For the last 4 or 5 weeks my feet have been feeling so achy. Keep feeling like ...

Clare184

•2 months ago

11 Replies

Want to take advantage of all our features? Just log in!

consultant Gastroenterologist

A phone call yesterday from a consultant Gastroenterologist was very unsuccessful! It lasted less than 5 mins! I explained my symptoms and what my last blood...

A phone call yesterday from a consultant Gastroenterologist was very unsuccessfu...

Doris11

•2 months ago

2 Replies

Just had notice that versandapo.de and Juvalis have some Panpharma B12 depot again .

Best be quick if you are in need . Last time this happened , they ran out within hours !

Best be quick if you are in need . Last time this happened , they ran out within...

wedgewood

•2 months ago

8 Replies

Combined order from Germany?

Not sure if this is allowed? I thought it would be a good idea to reach out and see if anyone wanted to do a combined order from Germany, to save on shipping...

Not sure if this is allowed? I thought it would be a good idea to reach out and ...

eclilley

•2 months ago

7 Replies

My folate deficiency merry-go-round.

Hi all,I have joined here in hope of learning more about why l keep getting folate decifiency. It is currently 2.1. I become deficient usually every 7/8...

Hi all,I have joined here in hope of learning more about why l keep getting fola...

Blue_feather

•2 months ago

9 Replies

gallbladder removal

Hello, I had my gallbladder removed a week ago today (keyhole). Recovery from surgery has been an absolute breeze, other than I slept for 4 days solid; despite...

Hello, I had my gallbladder removed a week ago today (keyhole). Recovery from su...

Annielecurie

•2 months ago

7 Replies

TTG ABS test results

My anti tissue transglutaminase test came back as <1.9cu. And IgA as 1.4g/L. As usual my surgery have put normal within range. Does anyone have any thoughts...

My anti tissue transglutaminase test came back as <1.9cu. And IgA as 1.4g/L. A...

Chickens44

•2 months ago

3 Replies

No more B12 injections at local surgeries

Grampian Health Board has now decreed that B12 injections will now be given at the Vaccination centre in Inverurie on a Tuesday. This is 15 miles away with no...

Grampian Health Board has now decreed that B12 injections will now be given at t...

Frogit

•2 months ago

26 Replies

Hypothesis XIIII

That a higher or lower concentration of B12 might be more bioavailable and therefore more effective and appropriate for treatment....

That a higher or lower concentration of B12 might be more bioavailable and there...

WIZARD6787

•2 months ago

4 Replies

I have PA, all was going well, but now they're trying to mess with my b12 perscipton!!!

Hi all,I'm a long time lurker, but haven't posted myself in a while. About 8 years ago, I was fighting to save my right leg due to bone tumors. 12 surgeries...

Hi all,I'm a long time lurker, but haven't posted myself in a while. About 8 ye...

Wowo23

•2 months ago

10 Replies

Injections

Hello everyone. I'm waiting for NHS appt with endo which is 20th May. I don't know how much longer I can stay in work feeling like i do atm. I'm exhausted...

Hello everyone. I'm waiting for NHS appt with endo which is 20th May. I don't ...

RedOne1

•2 months ago

12 Replies

Why is iron over-range yet TIBC shows a need ro take more please?

I'm wondering if the following could be explained please?In past ferritin has been 48 ug/L & obv considered normal by Dr. On doing private iron profile results...

I'm wondering if the following could be explained please?In past ferritin has be...

Jo5454

•2 months ago

8 Replies

where to buy b12?

hi all, I did search previous posts but am wanting the most recent info from the USA…where are people buying B12 injections? My doctor is only willing to give...

hi all, I did search previous posts but am wanting the most recent info from th...

Lhood08

•2 months ago

32 Replies

GP visit!

So I went to see my GP yesterday and discussed my symptoms, and asked about B12 injections. Got the same old story - test within range, symptoms aren’t bad...

So I went to see my GP yesterday and discussed my symptoms, and asked about B12 ...

Chickens44

•2 months ago

10 Replies

Expiration date

Hello all, I apology for redundacy of this question but I did a search under "expiration" and did not find anything specific to B12 serum though I know it has...

Hello all, I apology for redundacy of this question but I did a search under "e...

EiCa

•2 months ago

5 Replies

really???

DateTest NameTest ResultNormal Range 26-Mar-2024 Cautionary Note Comment: NOT SENT ON ICE This is what it says on my records. I asked at the time the...

DateTest NameTest ResultNormal Range 26-Mar-2024 Cautionary Note Comment: NOT...

totallyFrustrated

•2 months ago

10 Replies

Perplexed over lab work

Hello, I am a 32 y/o white female. Some history about me that may be applicable: Surgeries: Gallbladder removed (2011), Gastric Sleeve (2017) Weight loss...

Hello, I am a 32 y/o white female. Some history about me that may be applicab...

aybaylay

•2 months ago

12 Replies

Autoimmune Atrophic Gastritis Recessive or Dominant Gene?

Hello friends, I know AAG and AP are sometimes synonymous and PA is passed via recessive genes. The surgeon that did my diagnosis of AAG told me not to be...

Hello friends, I know AAG and AP are sometimes synonymous and PA is passed via r...

Canadian77

•2 months ago

1 Reply

Active B12 test results

Hi I had been unwell for sometime and wasn't sure what it was. I was very anxious and had terrible tummy trouble & hideous indegestion. Dr order Bloods and...

Hi I had been unwell for sometime and wasn't sure what it was. I was very anxi...

Doeyditdot

•2 months ago

27 Replies

Leanne's marathon effort!

Leanne finished the Brighton Marathon yesterday (Sunday) and so far has raised an amazing £981 for us. https://www.justgiving.com/page/leannenivenruns if...

Leanne finished the Brighton Marathon yesterday (Sunday) and so far has raised a...

PAScomms

•2 months ago

7 Replies

Seeking reassurance on fatigue and recovery

Hi everyone, I've been managing a rollercoaster of symptoms lately and wanted to see if anyone has experienced something similar. Onset: Since...

Hi everyone, I've been managing a rollercoaster of symptoms lately and wanted t...

chonkytonk

•2 months ago

29 Replies

Any ideas of expectations of reticulate test after beginning b12 injections please?

Hi I wonder if anyone could kindly explain about the reticulate test please? I’m on a loading dose of b12 & had this test after 2 injections. Ive had a...

Hi I wonder if anyone could kindly explain about the reticulate test please? I’...

Jo5454

•2 months ago

55 Replies

Has Anyone Had a Virtual Consultation?

Hi, has anyone had a private virtual video consultation with Dr Klein of the Cambridge Iron Clinic? Just wondering how it went and does it work well through...

Hi, has anyone had a private virtual video consultation with Dr Klein of the Cam...

B12again

•2 months ago

5 Replies

Just need some advice on self injecting.

Just need to come up with a safe plan for what to do about my B12 injections. After several years of symptoms like chronic fatigue, brain fog, dizziness,...

Just need to come up with a safe plan for what to do about my B12 injections. ...

Hayley31

•2 months ago

11 Replies

An SI Newbie

Hiya everyone, I'm in dire need of some help and encouragement 🤗 to begin self injecting. My Doctor turned around a week ago and told me my b12 was now...

Hiya everyone, I'm in dire need of some help and encouragement 🤗 to begin sel...

SlothMode

•2 months ago

34 Replies

Do the NHS test for active b12 aswell a total b12?

I wonder because my sister was diagnosed with pernicious anemia years ago but now they say her b12 levels are really high normal.

I wonder because my sister was diagnosed with pernicious anemia years ago but no...

Cesca-K

•2 months ago

11 Replies

Bodfeld Apotheke vitamin B12 self inject

Hi All , Does anyone still manage to purchase B12 injections from this company in Germany as I am trying to register and I can only get as far as the country...

Hi All , Does anyone still manage to purchase B12 injections from this company ...

Odynsfee

•2 months ago

10 Replies

parietal cell test positive then negative

Has anybody had experience with a positive gastro parietal cell blood test. And then a few months later then had a negative result? I have a gasto appointment...

Has anybody had experience with a positive gastro parietal cell blood test. And ...

Confused1806

•2 months ago

11 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for April 2024

Panpharma B12 depot is now out of stock already unfortunately.

Unbelievable

Achy feet

consultant Gastroenterologist

Just had notice that versandapo.de and Juvalis have some Panpharma B12 depot again .

Combined order from Germany?

My folate deficiency merry-go-round.

gallbladder removal

TTG ABS test results

No more B12 injections at local surgeries

Hypothesis XIIII

I have PA, all was going well, but now they're trying to mess with my b12 perscipton!!!

Injections

Why is iron over-range yet TIBC shows a need ro take more please?

where to buy b12?

GP visit!

Expiration date

really???

Perplexed over lab work

Autoimmune Atrophic Gastritis Recessive or Dominant Gene?

Active B12 test results

Leanne's marathon effort!

Seeking reassurance on fatigue and recovery

Any ideas of expectations of reticulate test after beginning b12 injections please?

Has Anyone Had a Virtual Consultation?

Just need some advice on self injecting.

An SI Newbie

Do the NHS test for active b12 aswell a total b12?

Bodfeld Apotheke vitamin B12 self inject

parietal cell test positive then negative

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive