early pregnancy -Hydroxy33

[AstiSP]

Anybody know if I can inject Hevert 2 ml depot B12 from Germany in early pregnancy? I'm in the USA and the cyanocobalamin injection is the only one I could get otherwise. It has benzyl alcohol etc. here. So, B 12 is not everywhere the same. I just want to make sure I'm injecting the right amount every month and don't do harm... anybody could help? And how can I test B12 depot level in the USA?

[wedgewood]

There is no reason why you should not inject Pascoe B12 depot in pregnancy at any stage . You cannot overdose on B12 . You can probably inject less often when injecting Hydroxocobalamin, than when you inject Cynocobalamin.. Hydroxo is supposed to stay in one’s system for longer . .

[AstiSP in reply to wedgewood]

Thank you. Yes, that's what I understand that you inject more often than the 2-3 month and idially test the level often. I will get Pascoe+ Hevert from Germany. I just try the best possible option. In the USA it's sometimes difficult to get the right treatment with pernicious anaemia...I am still waiting on the recommendation from the German pharmacist....

[EllaNore in reply to AstiSP]

Hello, AstiSP. You should not actually be tested after you start injections. Your B12 levels will never be low again as long as you are injecting. Therefore, testing your levels after your first injection, doesn't give you any accurate info and will oftentimes alarm your physician because they freak out that it is >1500. It will always be >1500 or >2000. That is just serum B12, Active b12 levels are what matter and no one in the US tests active levels. They actually didn't even know what that was when I asked for one. They looked into it for me and said that there was not any lab in the US that offers Active B12 testing.

So, once you start injections, B12 levels are obsolete.

I am in the US as well . In Iowa.

I buy cyano from germany and inject daily.

Congratulations on your pregnancy. 🌼

Just a question maybe others can answer. If a pregnant woman has low b12, does the baby automatically have low b12 or is that baby still absorbing it from the mothers food even if mom can't? Assuming baby can absorb.

[PaintLadie in reply to EllaNore]

My need for more B12 increased with my third baby. I was still only taking one injection per week but getting nerve symptoms before injections. I did not realize how my health had slowly deteriorated because of lack of b12 before and during pregnancy's until retrospection. My baby was small, my pregnancy difficult and touch and go. Once my baby was born after a few days she stopped eating. I had to forced feed her with a syringe until she had the strength to breastfeed. I was still not getting enough b12 at this time in retrospect. So she was probably not getting enough B12. Fast forward to when she was three. She was always tired, still small and not growing, somethings were just off. I was still very sick now taking twice weekly injections.

Now I get my injections from Germany after being cut off here in the US, after finally being given an adequate prescription; only to find Hydroxocobalamin no longer available here in the USA. I am now with my GI doctors blessing sourcing my injections from Germany and taking injections twice daily.

I learned that yes your child can be born with a deficiency if you had one. I obviously in retrospect was not getting enough b12. So I started giving my 3 year old sublingual b12 and once weekly a chewable complex. She immediately had a growth spurt and some of the things I was concerned with her over cleared up. I went on to give all my kids a b12 chewable a few days a week for a few months and now only occasionally, and I did see some improvements in all there health in terms of growth and energy. All my pregnancies were difficult and in retrospect I was not getting enough B12 the entire time. My recovery after pregnancy was difficult and I was never totally okay.

I will be honest that I read a lot of bad information and was literally afraid to take to much b12 as I thought it could effect the baby negatively. In my case not enough b12 effected my entire family negatively.

[EllaNore in reply to PaintLadie]

Thank you PaintLadie that's some really really good information and I'm very sorry that you experienced all that. I am sure that this information will help others very much. I can see that that would be a big issue getting the nutrients you need while you're pregnant for you and the baby. Especially when you don't know you have a deficiency. Or that you have absorption issues. So you're in the US too? I wish we all lived near each other for support. Glad you're doc supports your injections. That's everything.

[PaintLadie in reply to EllaNore]

USA in the Southwest. I was diagnosed in my early 20s only when I was severely anemic . I became really sick when I was in my teens and it took many many years before I was diagnosed. I am now 37 and have finally found a doctor that has been able to prove to the insurance companies my diagnoses, amount of b12 necessary, and has put on record my diagnoses. I had many hematologists and doctors ruin it for me by saying I didn't have PA, that I was overdosing on B12, and needed no further treatment. I had at some point a good NP that would prescribe me anyway, but I think she was fighting the insurance companies to keep filling my prescription. It took finding the right GI doctor who was willing to prove my case. I hope it does help other pregnant mamas. There is no negative to taking enough B12.

[EllaNore in reply to PaintLadie]

Yes it seems like the same old story doesn't it. Sorry you had to go through all that in order to find somebody to help you. A lot of us haven't found that person. You're one step ahead of a lot of us with your GI doctor. I'm so happy for you. I hope they continue to help you.Good luck!

[PaintLadie in reply to EllaNore]

I have found that the nurse practitioners and physicians assistants are very helpful. It was a PA that helped me this time around. The doctors, if I can avoid them I will.

[Gambit62 Administrator]

Please note this forum is not a substitute for professional medical advice. If you can't talk to your doctor then may be you could consult a pharmacist to check. Whilst I agree that it should be okay, this is not the opinion of someone who is medically qualified.

[AstiSP in reply to Gambit62]

I understand, thank you.

[B12again]

To get good info on pregnancy and B12 deficiency then I recommend strongly Dr Chandy’s book called Vitamin B12 Deficiency In Clinical Practice’. It’s his meticulous record of 30yrs clinical practice experience regarding specific interest in B12, including pregnancy, also containing case studies. It’s not expensive from Amazon. Or, you could visit b12d.org, it has been uploaded to this site and can be downloaded free or read online picking whatever chapter you want. Having the book, though, makes for easy referencing 🙂.

[AstiSP in reply to B12again]

I ordered the book. Thank you. It is very helpful.

[B12again in reply to AstiSP]

I’m so glad you did 🙂. I gifted a copy to my doctor two weeks ago, I hope he received it graciously. Part of an ongoing discussion with him to get more frequent injections. All the best for your pregnancy. 🙂🙏🇬🇧

[AstiSP in reply to B12again]

Thank you. I have Ultraschall tomorrow. Good luck to you, too, to get more frequent injections. B12 is still so mysterious to Dr.s ...