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Pernicious Anaemia Society

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All posts for March 2024

beautician B12supplies

Can anyone explain to me how beautician clinics so called are offering B12 injections? Where and how are they able to get supplies when we can’t.Puzzled and...

Can anyone explain to me how beautician clinics so called are offering B12 injec...

Mrsannabbott

•1 month ago

60 Replies

Blood Work

Hello Friends, I asked this question on my original thread but someone suggested I start a new one. I was diagnosed with Autoimmune Atrophic Gastritis 2...

Hello Friends, I asked this question on my original thread but someone suggested...

Canadian77

•1 month ago

6 Replies

Getting tested after taking any supplements...

Hi there, I found this information after worrying that I have lost my mind due to GP responses, on top of all of my very B12 like symptoms, Inc. Neurological....

Hi there, I found this information after worrying that I have lost my mind due t...

Suffering_sunny

•2 months ago

22 Replies

Want to take advantage of all our features? Just log in!

Many things are romantic by candlelight.

Injecting B12 is not one of those things. 🙂 Power was out I did not just have a desire to inject by candlelight. 🙂

Injecting B12 is not one of those things. 🙂 Power was out I did not just have ...

WIZARD6787

•2 months ago

1 Reply

Zinc L- Carnisone with L- Glutamine

Hi everyone, have any of you tried the above marketed as THERA NORDIC REZCUE. It is supposed to be benificial in healing inflammation in the digestive tract....

Hi everyone, have any of you tried the above marketed as THERA NORDIC REZCUE. It...

Helliborous

•2 months ago

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b12 liver stores

Hi everyone, Just a quick question for those of us with PA. When we have b12 loading doses I have read this replenishes liver stores. Can anyone tell me does...

Hi everyone, Just a quick question for those of us with PA. When we have b12 lo...

brenanddave

•2 months ago

32 Replies

Please Help us reach our Goal

Leanne doesn't have PA but she kindly volunteered to use her passion for running to help us by doing the Brighton Marathon on behalf of our Charity. We are so...

Leanne doesn't have PA but she kindly volunteered to use her passion for running...

PAScomms

•2 months ago

3 Replies

Help...how do I get my B12 through customs?

My B12 order has been with UK customs since 05/03. I don't know why as no one has contacted me. The pharmacy, when asked where my order was, said that it's...

My B12 order has been with UK customs since 05/03. I don't know why as no one ...

debra_bill

•2 months ago

19 Replies

New Here - Loading Doses of B12 Stopped Halfway Through - Anyone Else?

Hello! I was recently diagnosed with low B12 and was subsequently put on a loading dose of 6 injections over 2 weeks, followed by a further one injection...

Hello! I was recently diagnosed with low B12 and was subsequently put on a load...

Hidden

•2 months ago

10 Replies

Psychiatric symptoms of PA

Have any of you found a correlation in psychiatric symptoms such as anxiety, depression , ocd etc improving with an increase of B12 injections. These symptoms...

Have any of you found a correlation in psychiatric symptoms such as anxiety, dep...

Jjjmmm

•2 months ago

23 Replies

Does improvements continue

Hi everyone, hope your all doing well…. I’ve quite new to this forum and only posted once before, I am 6 months into my b12 deficiency treatment, and for the...

Hi everyone, hope your all doing well…. I’ve quite new to this forum and only p...

MarvelDC

•2 months ago

13 Replies

B12 Oral medication.

Can anyone recommend the best B12 tablet available. I can't get to my GP for my 12 weeks injection. This is due to no transport available. So in the meantime...

Can anyone recommend the best B12 tablet available. I can't get to my GP for my...

Natural1970

•2 months ago

9 Replies

Worried out of my mind

I have been self injecting for several years as I was initially given B12 loading doses and 1 injection every 3 months when I was initially diagnosed with a...

I have been self injecting for several years as I was initially given B12 loadin...

Hayley31

•2 months ago

23 Replies

Sciatica

Has anyone had sciatica either due to low B12 or as a reversing out symptom?Despite all my longstanding upper back pain and occasional lower back issues, I've...

Has anyone had sciatica either due to low B12 or as a reversing out symptom?Desp...

Suesue246

•2 months ago

11 Replies

Research of treatment of B12

I am writing about improved treatment for those who suffer from any experience of B12 deficiency that does not respond to the Nice Guidelines treatment...

I am writing about improved treatment for those who suffer from any experience o...

WIZARD6787

•2 months ago

15 Replies

Daughters Bloods again, sorry

So following up on saga, after trying to get her injection earlier than 3 months, due 28th this month. After GP appointment and thinking the discussion was...

So following up on saga, after trying to get her injection earlier than 3 month...

Polo22

•2 months ago

4 Replies

HRT and B12

So I went to see an actual Doctor, having been diagnosed with PA by the nurses last summer, with a B12 level of 143.His opening gambit, having looked at the...

So I went to see an actual Doctor, having been diagnosed with PA by the nurses ...

Oneash

•2 months ago

21 Replies

Help! Have any of you had all normal tests for b12, but had it treated anyway and it helped???

All of my b12 tests have come back normal and all antibodies negative... I have tingling, numbness, muscle aches, bone pain, period changes, globus, headaches,...

All of my b12 tests have come back normal and all antibodies negative... I have ...

Suffering_sunny

•2 months ago

29 Replies

Megaloblastic anaemia

Hi, I was diagnosed with megaloblastic anaemia yesterday. My gp, sent over a prescription for Cyanocobalamin 1mg/1ml solution for injection ampoules. My...

Hi, I was diagnosed with megaloblastic anaemia yesterday. My gp, sent over a pre...

fatfatfat

•2 months ago

22 Replies

Mouth issues

Hi all, just curious if any have experienced any issues with your mouth such as lumps that form in my lip. It eventually starts to drain à thick, clear...

Hi all, just curious if any have experienced any issues with your mouth such as ...

Nana321

•2 months ago

9 Replies

Google Scholar research paper

Google Scholar have just sent through a paper titled: Treatment and Long Term Management of B12 Deficiency in Adults which is a Preprint.org publication. It is...

Google Scholar have just sent through a paper titled: Treatment and Long Term Ma...

Orchard33

•2 months ago

27 Replies

-TWW-

That stands for Too Weird for Words. Which nostril is dominant varies throughout the day. Blood flow is increased or decreased in the nostril regulating the...

That stands for Too Weird for Words. Which nostril is dominant varies througho...

WIZARD6787

•2 months ago

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My Stuffy Head

Current Trial; Inject 1.5mg hydroxocobalamin, 1mg adenosylcobalamin, 1.5mg methylcobalamin 5 times a day including setting an alarm to inject at night to...

Current Trial; Inject 1.5mg hydroxocobalamin, 1mg adenosylcobalamin, 1.5mg meth...

WIZARD6787

•2 months ago

1 Reply

windyway

Hi all I have pernicious anemia How much & how regular do I need B12 injections? I had 6 loading over 2 weeks in December /January and every 3 months ?? I’ve...

Hi all I have pernicious anemia How much & how regular do I need B12 injection...

Windyway

•2 months ago

9 Replies

What next? Thyroid?

I am looking for some advice before I go back to the GP next week, and I feel 'safe' asking it here. First some background might help: I live in...

I am looking for some advice before I go back to the GP next week, and I feel '...

DiSews

•2 months ago

19 Replies

Hydroxocobalamin ampoules kit on etsy

Hi everyone, has anyone bought a Hydroxocobalamin ampoules kit from Etsy and did they manage to buy them without prescription?

Hi everyone, has anyone bought a Hydroxocobalamin ampoules kit from Etsy and did...

Cesca-K

•2 months ago

22 Replies

Please help 🙏

Hello everyone. Same old story. I booked my 3 monthly b12 injection I've been having for past 15 years. Gp says no more & did blood tests. FBC normal apart...

Hello everyone. Same old story. I booked my 3 monthly b12 injection I've been ...

Irismay

•2 months ago

61 Replies

has anyone come across this? And did you find it was any good?

https://spoilmewithhealth.com/products/b12-patches-methylcobalamin-5000-mcg-and-folic-acid-0-4-mg-8-week-supply?variant=36278141419684&currency=GBP&utm_medium=s

https://spoilmewithhealth.com/products/b12-patches-methylcobalamin-5000-mcg-and-...

totallyFrustrated

•2 months ago

26 Replies

to use B12 or not to

hello all My B12 is in range at 409(150-640) but I have burning skin sensations. So should I start taking B12 or could the burning skin just be anxiety?...

hello all My B12 is in range at 409(150-640) but I have burning skin sensations...

130396

•2 months ago

45 Replies

feeling depressed and disheartened

So I'm having my 2 weeks loading injections (6 injections) for pernicious anaemia at the GP I had no relief of symptoms until yesterday my 4th injection I had...

So I'm having my 2 weeks loading injections (6 injections) for pernicious anaem...

mully

•2 months ago

17 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for March 2024

beautician B12supplies

Blood Work

Getting tested after taking any supplements...

Many things are romantic by candlelight.

Zinc L- Carnisone with L- Glutamine

b12 liver stores

Please Help us reach our Goal

Help...how do I get my B12 through customs?

New Here - Loading Doses of B12 Stopped Halfway Through - Anyone Else?

Psychiatric symptoms of PA

Does improvements continue

B12 Oral medication.

Worried out of my mind

Sciatica

Research of treatment of B12

Daughters Bloods again, sorry

HRT and B12

Help! Have any of you had all normal tests for b12, but had it treated anyway and it helped???

Megaloblastic anaemia

Mouth issues

Google Scholar research paper

-TWW-

My Stuffy Head

windyway

What next? Thyroid?

Hydroxocobalamin ampoules kit on etsy

Please help 🙏

has anyone come across this? And did you find it was any good?

to use B12 or not to

feeling depressed and disheartened

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

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