Daughters Bloods again, sorry

[Polo22]

So following up on saga, after trying to get her injection earlier than 3 months, due 28th this month. After GP appointment and thinking the discussion was mute we got her injection a week early. Girl doing it said so, Doc's put as early as 8 weeks if needed. 8 weeks yes please was the response, so sort of result, for now considering that a win if indeed it happens.

Think I might of ruffled a few feathers, been trying to get info on which protocols/guidelines the ICB for here Cheshire and Merseyside asked for which protocols and guidelines are in place for prescribing , and now there seems to be a lot more messaging between departments going on in the Headquarters, seems no one is sure so they are all trying to find out before they share, 🤦 couldn't make it up.

[Nackapan]

They can prescribe in the patients best interests.My last surgery got the advice from a neurologist by email.

I'd never met this neurologist.

However he santikbec my 2 weekly b12 injections to continue .

Whatever the local guidelines are

[Orchard33]

My ICB is consulting on implementation of the guidelines which will take some time. No idea how much time.

[Cherylclaire Forum Support]

Good that you have asked the questions. Shame they are unaware of the "correct" answers:

let's hope that getting your daughter the individual treatment she needs remains the focus.

Glad you are feather-ruffling on her behalf !

[Nackapan]

So 8 weekly prescribed. Hurrah. Shouldn't take so much effort!