Hydroxocobalamin injections - Pernicious Anaemi...

Pernicious Anaemia Society

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Hydroxocobalamin injections

Dawn1015 profile image
29 Replies

hi, I’m in Washington, USA, and I can’t get my prescription of Hydroxocobalamin injections anywhere. I was diagnosed with pernicious anaemia in 1992 (inherited it through maternal line). Does anyone know where I can order it from? I am highly allergic to Cyanocobalamin.

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Dawn1015 profile image
Dawn1015
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wedgewood profile image
wedgewood

I am in U.K. . We get our Hydroxocobalamin single use ampoules from excellent reliable German online pharmacies . All registered with the German health authorities . There is one which I know that will ship to USA apohealth.de I have looked it up and they do — 100% . I will send you some information that is actually intended for U.K. members , but I think you will find useful . Best wishes .

The following German online pharmacies will deliver B12 depot single use ampoules to U.K. .

apohealth.de. ( in Munich) Site is obtainable in English (Union flag, bottom left on my device ) also deliver World wide.

versandapo.de ( in Leipzig) Site is in German . Use Google chrome to obtain translation . This pharmacy is usually cheaper than apohealth

apotheke-marienbrunn.de ( in Leipzig) Also ship to USA .

In German . Use Google chrome if you need translation . Also deliver to Australia and New Zealand .

shopapotal.de

When filling out the address form , you will see that the country is already filled in with GERMANY / DEUTSCHLAND . You must first change your country to “ Vereinigtes Königreich Grossbrittanien und Nord Ireland “. UNITED KINGDOM , U.K. VEREINIGTES KÖNIGREICH however expressed .on the drop-down list . Do this so that your post code and then the rest of your address will be accepted , .

Other wise you will be unable to order,! and will start tearing your hair out !!!

Amazon.de also sell Pascoe and Hevert , but you can’t use the pharmaceutical references to order

The following brands are obtainable

Panpharma ( formerly Rotexmedica ) b12 depot 1mg x 1ml ampoule ( depot indicates Hydroxocobalamin) ref no 16199653. This is the most popular ampoule used by PAS members .

It is the best value , but sometimes /often is out of stock . You can then opt to be emailed to be told when it is back in stock .

If the Panpharma b12 depot ( Hydroxocobalamin ) is out of stock , you may like to consider the Panpharma Cynocobalamin . B12 The pharmaceutical reference number is 16199707 .

Cynocobalamin may need to be injected more often .

Pascoe B12 depot 1.5mg x 1ml ampoules- Packet of 10 ref no 07568672

Pascoe b12 depot 1.5 mg x 1ml ampoules-10 packets of 10 ampoules (100)

Ref no 07568695

The Pascoe are much cheaper per packet if you buy the offer of 10packets .If you inject weekly , or more

that would cover you .

But if you inject less frequently, the ampoules may become out of date .

Pascoe Cynocobalamin b12 Reference number is 03262634 for 1 packet (1mg x 1ml)

Pascoe Cynocobalamin B12 Reference number is 03262657 10 packets 100 ampoules ( 1mg x 1ml);

Hevert b12 depot 1mg x2ml ampoules packet of 10

Ref no 06078368

Hevert b12 depot 1mg x 2 ml 10 packets of 10 ampoules- ( 100)

Ref 06078380.

Use the pharmaceutical reference numbers to order , much simpler than using brand names , and then you know you are ordering Hydroxocobalamin, not Cynocobalamin , which the companies also sell . But some patients like Cynocobalamin B12 . It is the B12 of choice in the USA , and cheaper than Hydroxocobalamin It’s just called B12, NOT B12 Depot

When filling out your address form, do fill in your country first of all . “Germany”/ Deutschland : will be displayed , so you must change this with the drop-down list which will appear , — to U.K./ Gross Brittanien/ Vereinigtes Königreich Grossbrittaniens , — how ever it may be expressed. If you don’t do this , your U.K. address and post code will not be accepted , and you will end up in a tizzy . We don’t want that !

JGBH profile image
JGBH in reply to wedgewood

Wedgewood, you are simply amazing in helping others in need with your resourcing of B12 injections! Thank you.

Dawn1015 profile image
Dawn1015 in reply to wedgewood

Thank you so much for that information.

Unfortunately I can’t use Cyanocobalamin because I am anaphylactic to it.

wedgewood profile image
wedgewood in reply to Dawn1015

But those German online pharmacies will supply you with Hydroxocobalamin, called B12 DEPOT !

Dawn1015 profile image
Dawn1015 in reply to wedgewood

Thank you, I just ordered them from the pharmacy in Germany, that you recommended.

wedgewood profile image
wedgewood in reply to Dawn1015

👍👍👍

Dawn1015 profile image
Dawn1015 in reply to wedgewood

Hi,, my order came in from Germany, but we noticed that when we drew up the medicine it had more than 1ml in the ampoule, am I meant to use all the amount (nearly 2 ml)?

This is what I ordered

apohealth.de/products/vitam...

wedgewood profile image
wedgewood in reply to Dawn1015

Hevert always puts 1 mg of B12 into 2 ml of saline . So yes, you need to inject the whole amount . 1mg is the usual dosage . It should have been 2ml, so you somehow lost some . It’s the only ampoule i know that is 1mg x 2ml . so is unusual .

I have used Hevert in the past and they are excellent . But I prefer to use 1mg x 1ml now . No particular reason . The German B12 depot ampoules are all first rate . You can depend on them . Best wishes from U.K.

Dawn1015 profile image
Dawn1015 in reply to wedgewood

Thank you

Iheartb12 profile image
Iheartb12

I am in the US. My GP would only prescribe 1 injection per month. I initially started going to one of those wellness clinics run by a nurse practitioner but they would only give me .2 ml 2x per week. I ended up using agelessrx.com. I had to fill out medical forms and put on there I have PA. The forms are reviewed and approved by a doc online and they make a prescription and send you the b12 and supplies. it's $225 every 3 months for 3 vials which is enough to do around three 1ml injections per week. I always have extra which makes me feel secure, takes the stress of the thought of running out away.

OldmanD profile image
OldmanD in reply to Iheartb12

The clinic is certainly making money . . . . . . . But as long as ye get what ye need is he main thing . . . . . .

Iheartb12 profile image
Iheartb12 in reply to OldmanD

I agree very expensive

Dawn1015 profile image
Dawn1015 in reply to Iheartb12

That’s great, thank you

wedgewood profile image
wedgewood in reply to Iheartb12

What sort of injectable B12 is it ? Is it Cynocobalamin or Hydroxocobalamin?

Iheartb12 profile image
Iheartb12 in reply to wedgewood

It is methylcobalamin.

wedgewood profile image
wedgewood in reply to Iheartb12

Thank you .

MoKayD profile image
MoKayD

Why do you not want to use cynocobalamin?

Dawn1015 profile image
Dawn1015 in reply to MoKayD

I’m anaphylactic to it

MoKayD profile image
MoKayD in reply to Dawn1015

Oh, that's too bad. It makes treatment more difficult. Good luck with your quest.

nitaslenz108 profile image
nitaslenz108

Hi Dawn1015. The USA supply is on back order till after March 2024. If you go to the pernicious aneamia b12 deficiency support group on Facebook you can join the group, you can see the various supply resources in Germany for hydroxocobalamin. Best wishes for you!

Dawn1015 profile image
Dawn1015 in reply to nitaslenz108

Just looked for it and couldn’t find the group under that name. Could you tell me the group’s full name? Thank you

nitaslenz108 profile image
nitaslenz108 in reply to Dawn1015

Pernicious Anaemia B12 Deficiency Support Group

nitaslenz108 profile image
nitaslenz108 in reply to Dawn1015

Yes. I would call to confirm and ask for the expiration date. If ordering from outside the US you may be ok.

Iheartb12 profile image
Iheartb12 in reply to nitaslenz108

Hi. Curious what makes you believe its on backorder in US? I have a shipment scheduled for 2/22 and company confirmed its in stock. Wonder if I need to worry about it, thanks

Dawn1015 profile image
Dawn1015 in reply to Iheartb12

Every pharmacy I have contacted has said it is on back order. I even rang the company that distributed the B12 bottle I have, they have been bought out by another company and will no longer be distributing it

ForViolet profile image
ForViolet in reply to Dawn1015

Another alternative is Empower Pharmacy in Houston. It's compounded for 2mg/ml hydroxocobalamin. Comes 10ml. Says expiration 26 days after opening but my doc says to add 2 months to that. Store at room temp.

I have some from Germany but am not used to those glass vials where you break the tops off.

wedgewood profile image
wedgewood in reply to ForViolet

The single use ampoules are the safest way of administering injections in a domestic situation . There is no doubt about that .

wedgewood profile image
wedgewood in reply to ForViolet

If you ever use the single use glass ampoule , it’s a good idea to have an ampoule cutter , to avoid nasty cuts . Obtainable from Amazon.com

Lin602 profile image
Lin602

Hi Dawn, I share your anxiety over this supply issue. I am ordering this product, shipped out of Texas. If you are not familiar with this type of vial, do a search to see how to use it. This product is good quality and I am doing great on it. nsightaesthetics.com/produc...

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