Following a B12 of 194ng/L (187 - 883) in August, in Sept it was 208. MMA and Folate both “normal” but Homocysteine was slightly above range so I have been given 6 loading doses and daily Folic Acid. (I don’t have the actual results other than the B12).
I didn’t have any really noticeable response to the injections until a few hours after the last one. My hands were burning hot in the evening and the next morning my mood had improved dramatically. Through that day my hands stopped being so hot but were tingly all over. I had a few more days of tingliness to varying degrees sometimes including my feet and my arms but am now back to just the same slight altered sensation in my left hand fingers that has been there for well over a year. My mood remained a little better for a few days but is definitely sinking again. I find mornings the worst. I came out in a few spots too.
I think I need to be treated, as per the guidelines, with alternate day injections. I have an appointment next week. I’ve already emailed outlining my experience with the injections so far and quoting the NICE guidance and asking if they agree it should apply to me.
Would you agree that I’m asking for the right thing?
What else should I do to prepare for the appointment?
Has anyone in a similar situation succeeded in getting alternate day injections on the NHS?
Many thanks