Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for July 2023

Where to self-inject (SI) subcutaneously (SC) please?

I’ve always only done my thighs for the last 7 years so worry the tissue may not absorb as well anymore-is this a possibility? I did try my tummy the other day...

I’ve always only done my thighs for the last 7 years so worry the tissue may not...

Agapanthus1

•10 months ago

19 Replies

News Article from the Chicago Tribune About PA

I don't know if this article was previously posted here but I thought I'd share it. Nothing new, just interesting....

I don't know if this article was previously posted here but I thought I'd share ...

MoKayD

•10 months ago

2 Replies

B12 and ECG

Has anyone ever had a B12 injection while hooked up to a full 12-lead (or whatever) ECG machine? Did it cause any detectable changes that seems directly due...

Has anyone ever had a B12 injection while hooked up to a full 12-lead (or whatev...

helvella

•10 months ago

15 Replies

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B12 Cream

Hi Family, has anyone had any experience with any B12 cream, ointment or any other lotion or crème to ease the numbness in hands? I have been injecting 1ml,...

Hi Family, has anyone had any experience with any B12 cream, ointment or any oth...

RisingOne

•10 months ago

24 Replies

Scotland - seeking non-NHS practitioner

Hi, I think I have a B12 deficincy or PA. So far tests say my B12 and IFABs are fine. But I have a long list of symptoms which say I'm definitely not fine. But...

Hi, I think I have a B12 deficincy or PA. So far tests say my B12 and IFABs are ...

LadyFromTheMountains

•10 months ago

5 Replies

GP Online Consultation parameters

Hi all, Noticed several comments recently about the restrictions on 'characters' when completing an online Consultation form for GP. I had the same problem...

Hi all, Noticed several comments recently about the restrictions on 'character...

JanCymru

•10 months ago

4 Replies

Vitamin B12 status in health and disease: a critical review. Diagnosis of deficiency and insufficiency – clinical and laboratory pitfalls

This is an extraordinary thorough review of B12 deficiency and B12 insufficiency, with an actual description of the difference, including severity of......

This is an extraordinary thorough review of B12 deficiency and B12 insufficiency...

WiscGuy

•10 months ago

14 Replies

video on history of PA

https://vm.tiktok.com/ZGJVgAkhv/

Dandelions

•10 months ago

4 Replies

Great Britain

Ordering B12 Ampoules. Through to payment but can't find Great Britain in drop down menu of countries. Apothee de.Thanks in advance

Ordering B12 Ampoules. Through to payment but can't find Great Britain in drop d...

3rdNettydoon

•10 months ago

6 Replies

First SI! I did it!!

After having lots of advice from you lovely forum members I purchased all my supplies (apohealth.de. and Medisave), and have sat looking at them over the past...

After having lots of advice from you lovely forum members I purchased all my sup...

JanCymru

•10 months ago

64 Replies

Cobasorb test in draft Nice guidelines - is it useful?

On page 13 of the draft guidelines a cobasorb test is mentioned to measure b12 absorption. Is this an old test/new test/useful test/should be deleted from the...

On page 13 of the draft guidelines a cobasorb test is mentioned to measure b12 a...

Sneedle

•10 months ago

7 Replies

B12 loading doses and stomach pain; also 10mg melatonin OK to take on loading doses?

Hello, My daughter's had her first of 6 EOD loading doses, next one tomorrow. First was last Friday. My current line of thinking is that she has inherited a...

Hello, My daughter's had her first of 6 EOD loading doses, next one tomorrow. Fi...

Sneedle

•10 months ago

15 Replies

reflux help please

hi, i have autoimmune illnesses, graves(thyroidectomy, so now under active), severe B12 deficiency, etc. Since having covid in March for the first time, I...

hi, i have autoimmune illnesses, graves(thyroidectomy, so now under active), sev...

Happysmile

•10 months ago

37 Replies

HbA1c

Has anyone heard of or have knowledge about B12 deficiency, folate/iron deficiency affecting Hba1c results and causing raised levels? I was extremely surprised...

Has anyone heard of or have knowledge about B12 deficiency, folate/iron deficien...

doityourself

•10 months ago

42 Replies

Nitrofurantoin Antibiotics up date

I have been really frightened this last week. I thought I might be seriously ill. So many of my symptoms have returned in such a short time. A swift full on...

I have been really frightened this last week. I thought I might be seriously ill...

3rdNettydoon

•10 months ago

17 Replies

Vitamin B12 deficiency from the perspective of a practicing hematologist

I feel this article contains many bits of information that often pop up on this forum, and explains them quite thoroughly and clearly. At the end is a...

I feel this article contains many bits of information that often pop up on this ...

WiscGuy

•10 months ago

17 Replies

B12 is up from 185 pg/mL to 811 pg/mL

B12 levels are up to 811 now. Does that mean that it will continue to repair damage until the numbers come down over time. Just confused on how it works on the...

B12 levels are up to 811 now. Does that mean that it will continue to repair dam...

84withb12d

•10 months ago

1 Reply

Long Update

OK, This is an update and a log of 7 days of a new injection trial. It is long! What I am going to do unless the moderators determine that is inappropriate for...

OK, This is an update and a log of 7 days of a new injection trial. It is long! ...

WIZARD6787

•10 months ago

26 Replies

It's all your brain's fault!

Funny but true.

Budsa

•10 months ago

2 Replies

Self injecting

Hi, can anyone tell me where I can buy B12 and the needles etc from please?

Hidden

•10 months ago

42 Replies

Health blips

I generally keep my b12 deficiency under control, although my life is greatly diminished. I have episodes when I feel awful, crave lots of sweets (which I...

I generally keep my b12 deficiency under control, although my life is greatly di...

Fluffy01

•10 months ago

4 Replies

Sourcing

Ran out of ampoules several months ago and have had no success in finding a new source.As a consequence have been without for some time and can feel the...

Ran out of ampoules several months ago and have had no success in finding a new ...

LaviniaLaw

•10 months ago

4 Replies

b12 tests online?

Hi So I had a blood tests 2 weeks ago but they missed out my b12/folate/pa test so I’m just wondering does anyone know of anywhere else I can get these tests...

Hi So I had a blood tests 2 weeks ago but they missed out my b12/folate/pa tes...

Emmy1991

•10 months ago

3 Replies

Can a non-specialist (still a qualified medical DR, just not in general practice or haem) prescribe a b12 trial (NHS psychiatry consultant)

hi guys! hope you're all well. sorry i havent been here in so long. it's been an absolute age! to be honest I got so frustrated with my DRs that I just...

hi guys! hope you're all well. sorry i havent been here in so long. it's been a...

bluecar15

•10 months ago

5 Replies

b12 injections done but don’t feel better

hi I’ve recently been diagnosed with b12 deficiency, no idea why my if was fine apparently and no sign of coeliac. Dr doesn’t seem to want to look into it any...

hi I’ve recently been diagnosed with b12 deficiency, no idea why my if was fine ...

16131613

•10 months ago

16 Replies

b12 leg shakes/tremor

Hi All… I was diagnosed with a b12 deficiency (180) after a few months of hand/foot/leg/arm/face pains…and debilitating depression - that seems to be all over...

Hi All… I was diagnosed with a b12 deficiency (180) after a few months of hand/f...

MuppDog

•10 months ago

4 Replies

Has anyone ever received diagnoses twice?

So long story short I was diagnosed with PA in the early 2000s. My records seemed to have disappeared with that doctor, so I don't have my official diagnoses....

So long story short I was diagnosed with PA in the early 2000s. My records seeme...

PaintLadie

•10 months ago

10 Replies

B12 deficiency diagnosis

Hi allI previously posted on the forum re getting diagnosis of B12 deficiency. ( My mum had PA) My recent medichecks Active B12: 48.1 pmolL (37.5-150)...

Hi allI previously posted on the forum re getting diagnosis of B12 deficiency. (...

Hollybushroad

•10 months ago

12 Replies

Cambridge Anaemia Clinic

I have heard of the Cambridge anaemia Clinic . Has anybody on here used it please. I have seen it recommended on other sites. Thanks

I have heard of the Cambridge anaemia Clinic . Has anybody on here used it pleas...

smg1950

•10 months ago

8 Replies

MRI scan

My GP is booking me in for an MRI scan of my head to investigate some weird symptoms. This is probably not B12 related but I find the idea of the scan a bit...

My GP is booking me in for an MRI scan of my head to investigate some weird symp...

LauraJane2

•10 months ago

18 Replies

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for July 2023

Where to self-inject (SI) subcutaneously (SC) please?

News Article from the Chicago Tribune About PA

B12 and ECG

B12 Cream

Scotland - seeking non-NHS practitioner

GP Online Consultation parameters

Vitamin B12 status in health and disease: a critical review. Diagnosis of deficiency and insufficiency – clinical and laboratory pitfalls

video on history of PA

Great Britain

First SI! I did it!!

Cobasorb test in draft Nice guidelines - is it useful?

B12 loading doses and stomach pain; also 10mg melatonin OK to take on loading doses?

reflux help please

HbA1c

Nitrofurantoin Antibiotics up date

Vitamin B12 deficiency from the perspective of a practicing hematologist

B12 is up from 185 pg/mL to 811 pg/mL

Long Update

It's all your brain's fault!

Self injecting

Health blips

Sourcing

b12 tests online?

Can a non-specialist (still a qualified medical DR, just not in general practice or haem) prescribe a b12 trial (NHS psychiatry consultant)

b12 injections done but don’t feel better

b12 leg shakes/tremor

Has anyone ever received diagnoses twice?

B12 deficiency diagnosis

Cambridge Anaemia Clinic

MRI scan

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive