Does anyone know what the latest is, regarding the research PAS conducted into why some people need more frequent injectuons than others? It seemed promising?
I've looked on the PAS site but can't seem to find anything recent. Is this still going on?
Thank you.
Would also be interested in that, have you heard anything Gambit62 ?
I too would be very interested in that. Although I imagine that studying that to some helpful conclusion would be just as elusive as hunting a unicorn!
Some areas needing research were identified at the end of the draft NICE guidelines.
Yes, initial trials did look very promising - then nothing more heard. I know this is expensive, and takes years. So hoping the NICE team have highlighted a need. That might make funding easier.
Why some people need more B12 than others is a start. Responding to that need may take longer.
Don't, please, hold your breath !
I have the impression with Martyn stepping down that PAS team is trying to get on it’s feet again and will need a little time and patience while they find their stride. But it’s brought it home to me how incredibly important the charity was providing online education through the YouTube videos of conference discussions etc However the recent changes have also made me realise it’s not possible to rely solely on one charity as their efforts shift focus subtly from time to time in a very big health field requiring a lot of work and effort and research.
Digressing slightly. The post on here a few days ago regarding laughing gas needs mentioning even more firmly for people who don’t cope well with 3 and 2 monthly injections. The fact that there may be environmental factors (not just laughing gas but many atmospheric based things like effects of moulds or carbon monoxide etc) draining internal active B12 is important.
As an example I am studying fine art and experiencing odd symptoms after studying in one specific room in the school. I struggled with thinking I was being overly worried about something that was really nothing or that it was because I was walking past the surgery centre of a local hospital to reach my classes. I discovered by accident recently that the print making room was next door and that printmaking is actually fairly toxic when it involves etching metals. The printmaking class vents the gases past the open classroom windows I was in and that a similar gas to laughing gas is a byproduct. Mystery solved but made me aware of my vulnerability. Even simple trips to the dentist can cause me b12 issues.
So I think B12 depletion issues deserves the same consideration as peanut and other food allergies but because these environmental things are less well known are harder to advocate for safety notices or change.
More seriously and widely affecting….if you actually read the medical paper posted on the forum you will notice that the laughing gas has 147 year lifespan in the atmosphere and it’s use is increasing…..the consequences are awful. Just imagine all life subjected to decreased b12 because of long lived laughing gas pollution. Doesn’t include other environmental factors that may also decrease b12. For those who suffer the neurological symptoms of b12 deficiency will understand that in effect everyone subjected chronically to these environmental pollutants are slowly creating demyelination, neurological decline and subtle physical pain that won’t be picked up until the damage is severe enough.
