Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for April 2023

Figured something out.

Successfully treating B12 will not result in a test result that a GP can reference that indicates they have successfully preformed medicine.

Successfully treating B12 will not result in a test result that a GP can referen...

WIZARD6787

•1 year ago

9 Replies

Having your injection.

i self inject EOD since october. Are there any advantages having the injection in the evening or in the morning?

i self inject EOD since october. Are there any advantages having the injection i...

Annaunge

•1 year ago

7 Replies

Fatigue questionnaire

I'm reading through "The B12 Deficiency Survival Handbook." Lots of information! Well done, overall. But in "Chapter 4: The Diagnosis (...)", on page 70 of my...

I'm reading through "The B12 Deficiency Survival Handbook." Lots of information!...

protolawn

•1 year ago

12 Replies

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Guanfacine and N-acetylcysteine (NAC-600 mg)

I recently posted a link to an article that talked about treating brain fog with a combination of Guanfacine, a prescription drug used for treating high blood...

I recently posted a link to an article that talked about treating brain fog with...

WiscGuy

•1 year ago

12 Replies

What is the difference between these two tests?

Parietal Cell Antibody, ELISA/ positive Parietal Cell Antibody with Relex to Titer/ Negative

Parietal Cell Antibody, ELISA/ positive Parietal Cell Antibody with Relex to Ti...

Tigerlilly81

•1 year ago

9 Replies

ADHD and Long Covid

There has been some discussion on this forum about similarities between the symptoms of B12 deficiency and the symptoms of Long Covid. I am a person with ADHD,...

There has been some discussion on this forum about similarities between the symp...

WiscGuy

•1 year ago

1 Reply

What is the probability of an adverse reaction to a 1st B12 injection?

Hi All, My mum is very poorly at the moment. She already had mobility issues but over the past few months has been complaining of loss of feeling in her hands,...

Hi All, My mum is very poorly at the moment. She already had mobility issues but...

Adsypadsy

•1 year ago

22 Replies

Recommendations

My GP has offered to refer me to a PA specialist, although there is some debate between the GPs at my surgery as to whether I have PA. Two I have spoken to...

My GP has offered to refer me to a PA specialist, although there is some debate ...

BleekerStreet

•1 year ago

11 Replies

Will NHS GP accept results of Medichecks IFAB test if positive?

Thinking of testing privately for PA as have not managed to persuade my GP that declining B12 levels are a possible cause of increased fatigue, nerve pain and...

Thinking of testing privately for PA as have not managed to persuade my GP that ...

Realtiger

•1 year ago

19 Replies

Can I eat better to aid stomach acid?

Hello, I have Parietal Cell antibodies and I am concerned about Cancer, so I have been reading up about eating better to increase stomach acid. Can anyone...

Hello, I have Parietal Cell antibodies and I am concerned about Cancer, so I h...

Mocha23

•1 year ago

18 Replies

Can i buy B12 Hydroxycobalamin from Germany online.? I have been ill using Amazon de.

Hi all ,I have been injecting B12 for 7 years, usually sourced from Mycare in Germany until last year unable to deliver to the UK I bought then from Amazon...

Hi all ,I have been injecting B12 for 7 years, usually sourced from Mycare in G...

lcunliffegizmo123

•1 year ago

6 Replies

Extreme tiredness before B12 jab

I am due my next B12 jab this week but cannot get an appointment until 19th April. Is there anything I can in the mean time to boost my levels?

I am due my next B12 jab this week but cannot get an appointment until 19th Apri...

MrsBrowne

•1 year ago

3 Replies

Apohealth took my money and sent me a cuddly toy!!

I ordered 100 ampules of b12 1500mcg on 20th March from Apohealth from their website (cost EUR100.22) and received an email confirmation of the order and...

I ordered 100 ampules of b12 1500mcg on 20th March from Apohealth from their web...

Scipio99

•1 year ago

22 Replies

b12 nasal spray

https://curesupport.com/vitamin-b12-methyl-nasaldrops-curesupport-215/ Has anyone tried this and could it be an alternative to injections?

https://curesupport.com/vitamin-b12-methyl-nasaldrops-curesupport-215/ Has anyo...

ACritical

•1 year ago

5 Replies

Purchasing B12 abroad

I was planning to order from Bodfeld this week but found out that they're no longer shipping. I also noticed while looking through some other threads a user...

I was planning to order from Bodfeld this week but found out that they're no lon...

Anoninoni

•1 year ago

16 Replies

Needle sizes in Australia

Hi everyone, I'm thinking of going into a pharmacy and buying 2 needles (one for withdrawing and one for injecting IM). Is this even possible? What size...

Hi everyone, I'm thinking of going into a pharmacy and buying 2 needles (one for...

greenscarf

•1 year ago

5 Replies

Integrated Care Boards

Has anyone written about their PA treatment to their regional ICB? If so I'd appreciate knowing what response they received. Is it a useful thing to do?

Has anyone written about their PA treatment to their regional ICB? If so I'd app...

Orchard33

•1 year ago

1 Reply

Injection and Symptoms

I’ve been regularly injecting 2-3 times a week for a year and a half. When I first began injecting I noticed reversing out symptoms that mainly included sharp...

I’ve been regularly injecting 2-3 times a week for a year and a half. When I fir...

lambuth_eagle

•1 year ago

1 Reply

Time for you all to take a bow.

The person I love very much has started injecting .5 mg of hydroxocobalamin for two weeks. Their comment was "I don't know how I was getting by" They have all...

The person I love very much has started injecting .5 mg of hydroxocobalamin for ...

WIZARD6787

•1 year ago

2 Replies

New Research on Multiple Sclerosis.

Interesting article about new research for treatments for multiple sclerosis. Very struck by how similar it is to PA and how we can get similar research....

Interesting article about new research for treatments for multiple sclerosis. Ve...

Bellabab

•1 year ago

11 Replies

is Pan Pharma still being made

Hi, I am spending a lot of time trying to grab some Pan Pharma hydroxy when members post it is available with no success. Does anyone know with any certainty...

Hi, I am spending a lot of time trying to grab some Pan Pharma hydroxy when mem...

EiCa

•1 year ago

12 Replies

The most useful video on B12, with or without PA

https://youtu.be/7s76YDCAREY

Pickle500

•1 year ago

29 Replies

Just ordered Pascoe for the first time.....

I have been SI'ing for 6 years now. I get some ampoules from my GP and the main bulk of them from Germany. I always buy Panpharma but, as we all know, they...

I have been SI'ing for 6 years now. I get some ampoules from my GP and the main ...

BeachArt

•1 year ago

12 Replies

Ferritin

A blood test last Friday shows low ferritin. I eat loads of iron rich foods and self inject on top of my 8 weekly gp injections. Symptoms have increased...

A blood test last Friday shows low ferritin. I eat loads of iron rich foods and ...

Hidden

•1 year ago

14 Replies

Panicking - Pascoe B12 injections not working

Wondering if anyone else has had the same problem from switching from rotexmedica/Panpharma hydroxy to other brands? I injected a Pascoe hydroxy today and it’s...

Wondering if anyone else has had the same problem from switching from rotexmedic...

Hedgehog235

•1 year ago

21 Replies

When do you reduce frequency of SI?

Hi. I was surviving on NHS injections every 6 weeks but got really sick follow major surgery (one of the anaesthetics lowers B12) and then high dose...

Hi. I was surviving on NHS injections every 6 weeks but got really sick follow ...

MrsTuft

•1 year ago

21 Replies

B12 Injections/B12 Drops ?

I have had a number of neurogical symptoms for over a year so my GP agreed to my having EOD B12 injections for two weeks - my main improvements were instant, I...

I have had a number of neurogical symptoms for over a year so my GP agreed to my...

Lemondrizz1

•1 year ago

7 Replies

Club B12 - UK group sharing B12 research

Hi All, I guess this may have been posted in past so apologies if it has but thought recent new members might be interested. Club B12 is a group of...

Hi All, I guess this may have been posted in past so apologies if it has but th...

Sleepybunny

•1 year ago

6 Replies

My Current Regiment of Administering B12.

With the sublingual of total 15-20 mg a day 3-4 doses my brain fog changed to 'brain haze' I could force myself to do things as I had much experience with...

With the sublingual of total 15-20 mg a day 3-4 doses my brain fog changed to 'b...

WIZARD6787

•1 year ago

8 Replies

high levels of B12 in blood

I have been self injecting B12 for around 4 years. I am prescribed 3 monthly by my GP and supplement with injections bought on-line from Germany. It was...

I have been self injecting B12 for around 4 years. I am prescribed 3 monthly by ...

Countrylou

•1 year ago

12 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for April 2023

Figured something out.

Having your injection.

Fatigue questionnaire

Guanfacine and N-acetylcysteine (NAC-600 mg)

What is the difference between these two tests?

ADHD and Long Covid

What is the probability of an adverse reaction to a 1st B12 injection?

Recommendations

Will NHS GP accept results of Medichecks IFAB test if positive?

Can I eat better to aid stomach acid?

Can i buy B12 Hydroxycobalamin from Germany online.? I have been ill using Amazon de.

Extreme tiredness before B12 jab

Apohealth took my money and sent me a cuddly toy!!

b12 nasal spray

Purchasing B12 abroad

Needle sizes in Australia

Integrated Care Boards

Injection and Symptoms

Time for you all to take a bow.

New Research on Multiple Sclerosis.

is Pan Pharma still being made

The most useful video on B12, with or without PA

Just ordered Pascoe for the first time.....

Ferritin

Panicking - Pascoe B12 injections not working

When do you reduce frequency of SI?

B12 Injections/B12 Drops ?

Club B12 - UK group sharing B12 research

My Current Regiment of Administering B12.

high levels of B12 in blood

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