Might bring a smile to you face - Pernicious Anaemi...

Pernicious Anaemia Society

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Might bring a smile to you face

10 Replies

A professor's statement today I Quote

"If a G.P. allowed an ill person to leave their Surgery without Medication or treatment, that doctor could be sued."

Next thing will be not enough Solicitors to cope with demand ! Lol

🤣🤣🤣🤣🤣

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10 Replies
wedgewood profile image
wedgewood

Yes , if that were the case , solicitors would have a field -day ! 😃

mickeymouse42 profile image
mickeymouse42 in reply to wedgewood

NHS consultants working at the Spire charge £325 for a half hour appointment; you won't find many solicitors who will work for less than £400 per hour. It's probably cheaper to pay the clinician.

If you have ever had a positive IFAB or Schilling result and are being denied injections, then going directly to NHS Resolution without using a solicitor might be worth a try. If you don't have proof of Intrinsic Factor anti bodies, there's nothing you can do apart from waiting until Parliament agrees to make B12 injections available without prescription.

Cherylclaire profile image
CherylclaireForum Support in reply to mickeymouse42

Or hope that you eventually become "positive" ?

World getting weirder.

mickeymouse42 profile image
mickeymouse42 in reply to Cherylclaire

The petition to make B12 injections available prescription free enabling people to self inject has now reached over 100,000. A petition of that size if directed at the government (it seems to be directed at the CEO of MHRA) should result in a Parliamentary debate. Getting this issue sorted out is as important as access to HRT, where Carolyn Harris the MP for Swansea East did a fine job. If anyone is her constituent, perhaps they can ask her to champion this cause, pointing out that for people with PA lack of access to very cheap injections is life threatening.

The argument that patients should not be allowed to self inject and that nurses in GP surgeries should do it makes no sense. I have friends who became diabetic in their 20s and had to self inject insulin for decades - nowadays drugs are probably used but many people have no problem with injecting themselves and if this is allowed, there would be more resources available for those people who do not like self injecting.

Cherylclaire profile image
CherylclaireForum Support in reply to mickeymouse42

What also makes absolutely no sense to me is that, where the GP has instructed a frequency outside of the nurses' "norm" of one injection every three months, the poor patient is made to run the gamut :

To answer the same probing, loaded questions each time, before receiving their injection by a begrudging, suspicious, reluctant nurse who simultaneously mutters "...but this can't carry on" or "...about time you went back to the doctor".

Bit too much unnecessary gatekeeping.

Especially when you are so ill, so worried that the nurses will complain and get the frequency stopped. Hard enough to relax those muscles ......

If nurses are to continue being the adminstrators of B12 injections, they should at least be aware of the current regulations, relevant medical advice and guidance and the fact that there is NO upper limit at which B12 is considered dangerous - or else trust the GP's decision, and stop hounding the poor patient.

Sleepybunny profile image
Sleepybunny in reply to mickeymouse42

For anyone reading this thread

Link to petition (now has over 101, 000 signatures)

change.org/p/dr-june-raine-...

Tracy Witty of B12 Deficiency Info has campaigned on this issue for 8 years.

b12deficiency.info/eight-lo...

SaywhatIsee profile image
SaywhatIsee in reply to mickeymouse42

First, I do not inject. But i am confused, as if you have Diabetes 1, then you self inject every day. Cannot quite remember, but had a friend with DB1, back in 1966, who injected before eating daily, so what is the difference ?

in reply to mickeymouse42

How many people realise having proof of I.F. should be kept in a safe place. I certainly didn't realise that I should keep medical records ...thinking that was the Surgeries responsibility. I now keep all records. Thats if you can get them!

that statement has greedy bit pharma’s fingerprints all over it!!! “Make money for us or else ……”

.

in reply to

I am afraid today its all about money, and in many cases treatment via the NHS today benefits the richer and more educated in Society. They are more likely to investigate conditions and demand more tests.

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