More information for south west - Pernicious Anaemi...

Pernicious Anaemia Society

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More information for south west

14 Replies

remedy.bnssgccg.nhs.uk.b12def

One noticable comment made was that levels over 200 need not be tested again for two years,

Stating that it was adequate for two years.

14 Replies
Sleepybunny profile image
Sleepybunny

Hi,

I think the document is a draft document which means it may be reviewed or changed at some point.

Next link is to BNSSG (Bristol, North Somerset and South Gloucestershire) referral pathways and formulary.

remedy.bnssgccg.nhs.uk/

Saoirse2016 profile image
Saoirse2016

That's what they're doing in Ireland, if you're over 200 they won't give you any jabs. Didn't say anything about not testing for 2 years though

in reply to Saoirse2016

what is even more surprising is that a blood test of 119 still doesn't qualify advised to take multi vitamin !!

Read in newspaper this morning the NHS are being renamed the No Hope Service! Lol

Pickle500 profile image
Pickle500 in reply to

When I had to go and get injections from a cosmetic clinic, I asked if I needed a prescription. They told me 'no, you don't. B12 can't be overdosed so there is no need to check your levels beforehand'.

So are they wrong? Are they doing their customers a disservice? SHOULD they be checking levels first before giving injections? Should they offer a baseline reading? What about taking supplements OTC? Can they make a difference to B12 levels?

There is a gargantuan grey area in all of this and no way to hold anyone to account in a way that they will listen. If Doctors are hell-bent on numbers, why are cosmetic salons not? Surely they would be closed down or fined if it were a problem.

The issue lies in the fact that no-one knows what they're doing with B12. I'd argue that I haven't come across a single person that could claim to be a trained expert. So Doctors cannot be experts. They do not know what they are doing. My own GP said as much.

Why have we not shone a light on this issue? Because we all think Dr's are gods. And the Dr's think they're gods too.

Didn't Hans Christian Anderson write a book about someone who pretended he wore clothes and all of society did too, to show up how ridiculous society is and how most of it is a game of pretence?

Apparently it's B12 Deficiency Awareness Week. But is anyone aware? Or do they still think we can trust our Doctors with our lives?

Pickle500 profile image
Pickle500 in reply to Pickle500

Sorry! Had to rant a bit...

in reply to Pickle500

carry on ranting, I have always said what is the point of doing Blood tests to reveal deficiency and not treat it. This has got to catch up with the NHS sooner or later, The sad part is people are suffering needlessly.

The sooner we can obtain B12 vials over the counter the better. They say no because it is injected. Yet the NHS are bring in injections to combat obesity and help lose weight. Patients will be taught how to self injected monthly.

We would get more help if we were drug addicts.

Just seen posters B12 awareness week ....

Think I might just invest in some !!

Pickle500 profile image
Pickle500 in reply to

my.simpleonlinepharmacy.co....

Is it this one? So I can buy this injector pen to do my own subcutaneous injections but I can't get that for B12?

Why?

We can buy vitamin tablets and liquids OTC. We can buy any type of multivitamin or others online and take as many as we want. So why can't a vitamin manufacturer - say Vitabiotics - produce a B12 injector pen? What is stopping them doing that?

Or rather who is stopping them doing that.

in reply to Pickle500

its pretty much the same. The one on the NHS is semaglutide ...Patients self inject daily, cost hundreds ..... Would be interesting if B12 was on the ingredients .lol

Pickle500 profile image
Pickle500 in reply to Pickle500

There's a loophole here, isn't there? Because the Saxenda product is classified as a medicine. But is B12 a licensed medicine? If it's prescribed by a Doctor then it is.

So why can't an online pharmacy or private provider offer B12 shots with a Doctor's prescription? Why is that something that doesn't exist?

For example, I can do a stool or blood test with 'LetsGetChecked' or Medichecks. If I'm shown to be B12 deficient, why can't I order a subcut pen with 6 doses of 1ml to take over 2 weeks?

in reply to Pickle500

B12 injections are classed as a licensed Medicine.

I thought it was a vitamin !!!

Jillymo profile image
Jillymo in reply to Pickle500

Yeh me too. Grrrrr 😡 🤬

I am taking all this in my haematologist is ringing me next month so I will use some of your wording as ammunition.

She better watch out I am on my guard. 💂 OMG I forgot my 🤺

in reply to Jillymo

I'd love to know how to handle Medical people.

Whether to go along with what they say, and then give them a sucker punch.

Perhaps as it takes years for the deficiency to come to light, it takes years to recharge ... Or perhaps can I have a liver transplant that is fully charged up with B12 ! Lol

Jillymo profile image
Jillymo in reply to

It makes you wonder how many baboons we have to meet before coming across a brass monkey.

You dont need a liver transplant just upper cut them straight on the jaw - take that and that as well you swines. 😂 😘

EllaNore profile image
EllaNore in reply to

Are they changing the UK guide lines on you guys?

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