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Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for May 2022

Covid effect on B12

Hi all I hope everyone is doing well. Has anyone experienced Covid and suspect it had a negative effect on B12. I have been injecting for 2 years with a lot...

Hi all I hope everyone is doing well. Has anyone experienced Covid and suspect...

Ctadds1

•2 years ago

5 Replies

Fatigue after b12 injection for PA

I have been diagnosed with PA and received my first b12 (Hydroxocobalamin form) 9 days ago. Folate blood level was low so I've been given 400mcg of folic acid...

I have been diagnosed with PA and received my first b12 (Hydroxocobalamin form) ...

Airship

•2 years ago

15 Replies

Gilbert’s Syndrome

Good morning from England.Ijust thought I would share this with you. I have suffered with pernicious anaemia for over 40 years and a few years ago after a...

Good morning from England.Ijust thought I would share this with you. I have suff...

Hedgehogs15

•2 years ago

7 Replies

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Injection sites

Hi there, I've been self injecting Once every two week for about a year now and due to having oedema in one leg it's got very painful to alternate my injection...

Hi there, I've been self injecting Once every two week for about a year now and ...

Silverfox2

•2 years ago

7 Replies

REMINDING EVERYONE THAT IF THEY USE AMAZON , PLEASE USE “AMAZON SMILE”, And CHOOSE THE PERNICIOUS ANAEMIA SOCIETY AS THEIR CHARITY .

“Every little helps”! There no cost to you .

wedgewood

•2 years ago

8 Replies

Vitamin C with B12, rxmedica

Does anybody know where I can get Vitamin C , iv been getting the rxmedica 500mg 5ml vials but because I'm using insulin pins it has to be done at 1ml a time...

Does anybody know where I can get Vitamin C , iv been getting the rxmedica 500mg...

Johnyleeuk

•2 years ago

4 Replies

Possible PA?

Hello I am hoping I'm in the right place. I am 49 and Hypothyroid and vegetarian and suspect I might have PA (or MS) I finally went to the GP last week and...

Hello I am hoping I'm in the right place. I am 49 and Hypothyroid and vegetarian...

SKYROCKET123

•2 years ago

20 Replies

B12 testimonials

There are videos on the following web page B12d.org testimonials if anybody interested.

There are videos on the following web page B12d.org testimonials if anybody i...

Hidden

•2 years ago

Be the first to reply

At my wits end

Went to specialist today..... what an embarrassment.... he asked my partner how he was .... fit as a fiddle. !!! I thought what !! You can't walk without...

Went to specialist today..... what an embarrassment.... he asked my partner how ...

Hidden

•2 years ago

29 Replies

Where's best to buy Panpharma ampoules from in terms of quick delivery to the UK?

Hello! Where's best to buy Panpharma ampoules from in terms of quick delivery to the UK? And how long does it take? Needs to be somewhere that will accept...

Hello! Where's best to buy Panpharma ampoules from in terms of quick delivery to...

VellBlue

•2 years ago

10 Replies

MCAS AND PA

Does anyone here also have MCAS? How to treat as well as inject?

nessanthemum

•2 years ago

5 Replies

Is this hydrooxocobalamin? Translating German packaging

Hello, I require the assistance of a PAS member more knowledgeable about different synthesises of B12 and german suppliers, please. The photo below shows some...

Hello, I require the assistance of a PAS member more knowledgeable about differe...

DocAJB

•2 years ago

5 Replies

Converting ug/L to nmol/L or not

trying to get it straight in my head to no avail , couldn't find a formula but found this,, losing it...

trying to get it straight in my head to no avail , couldn't find a formula but ...

Polo22

•2 years ago

3 Replies

Short article on B12

I came across this article when I was doing a search about functional medicine and B12. I encountered this doctor professionally on quite a number of...

I came across this article when I was doing a search about functional medicine a...

rogergee

•2 years ago

14 Replies

B12 supplements

What supplements do people take

ninja1

•2 years ago

1 Reply

Blood tests

I’m feeling really unwell at the moment weak shakey and can’t stop weeing. I’ve checked urine sample but just shows high leucocytes which nurse dismisses...

I’m feeling really unwell at the moment weak shakey and can’t stop weeing. I’ve ...

ninja1

•2 years ago

27 Replies

Severe fatigue 2 years after frequent injections

Hi there, I struggle with severe fatigue despite frequent b12 injections for the last 2 years. Is it possible that long term b12 defiiciency can cause...

Hi there, I struggle with severe fatigue despite frequent b12 injections for the...

KittyKitten

•2 years ago

27 Replies

B12 deficiency and high blood pressure

I wonder how many people with B12 deficiency have had an experience similar to mine with high blood pressure. For decades my blood pressure was something like...

I wonder how many people with B12 deficiency have had an experience similar to m...

WiscGuy

•2 years ago

9 Replies

Choosing needles for Luer Lock auto injector

Can anyone help me out, I’ve just bought a Luer Lock auto injector cos can’t bring myself to plunge needle in myself 🙄. Which syringes and needles can I use...

Can anyone help me out, I’ve just bought a Luer Lock auto injector cos can’t bri...

Christine48

•2 years ago

2 Replies

This is probably B12D. What do you think? Medical profession got it wrong again.

Just came across this article. https://www.everydayhealth.com/news/pots-mysterious-syndrome-can-turn-your-life-upside-down/ It starts with "Imagine you’ve...

Just came across this article. https://www.everydayhealth.com/news/pots-mysteri...

charks

•2 years ago

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Low ferritin

I have been on folic acid for 2 months I had been feeling unwell I was lightheaded and chest pains all I would want 2 do is sleep I was that bad that I would...

I have been on folic acid for 2 months I had been feeling unwell I was lighthead...

Marionnkris19

•2 years ago

2 Replies

Injection worries

…. My son did his b12 injection into his outer thigh and blood came out which doesn’t happen with me, am I overthinking it?

…. My son did his b12 injection into his outer thigh and blood came out which d...

Tanyanarialucia1965

•2 years ago

11 Replies

Very low serum ferritin result

Hello all , I’ve been backwards and forwards to hospital and doctors for over a tear now with irregular heart beats , balance all over the place , extreme...

Hello all , I’ve been backwards and forwards to hospital and doctors for over a ...

Hazel1010

•2 years ago

7 Replies

Advice re repeating bloods

So as previous post explained , I managed to get GP to agree to repeats of bloods and some extra ones. Just wanted to clarify about best practice from our...

So as previous post explained , I managed to get GP to agree to repeats of blood...

Polo22

•2 years ago

5 Replies

Can you insist on a Pernicious Anaemia Test with low B12?

I was diagnosed with Pernicious Anaemia at 27 by a specialist after having various tests for other things, and have been on B12 injections ever since and am...

I was diagnosed with Pernicious Anaemia at 27 by a specialist after having vari...

Mel434

•2 years ago

12 Replies

Anyone speak German pls

Hi I have been looking for a Prednisolone product which I could purchase ( long story, unhelpful gp ) Found a homeopathic injection which is called Cortison...

Hi I have been looking for a Prednisolone product which I could purchase ( long ...

ellj

•2 years ago

6 Replies

Testing for active B12

Hello, I'm new here and have found this forum incredibly helpful. After increasing fatigue, brain fog, headaches, pain / numbness in my legs and even...

Hello, I'm new here and have found this forum incredibly helpful. After increasi...

tim074

•2 years ago

4 Replies

Effectiveness of out of date B12?

I have B12 ampoules on which the expiry date was March 2022. Does anyone know if expired B12 is still going to be effective or am I better off binning it and...

I have B12 ampoules on which the expiry date was March 2022. Does anyone know i...

Lulu_65

•2 years ago

3 Replies

Confused again, do I stop B12 injections ?

Had bloods done (Thyroid) , by Bluehorizon included were vitamins mineral and ferritin B12 and folate have been self injecting B12 for a few months, and...

Had bloods done (Thyroid) , by Bluehorizon included were vitamins mineral and ...

Polo22

•2 years ago

21 Replies

Time to buy more B12

Up to date info required regarding purchase of B12 ampoules, please. I hate self injecting and normally inject 1mg x 1ml into each arm (so 2mg a week) to get...

Up to date info required regarding purchase of B12 ampoules, please. I hate self...

newlandvale

•2 years ago

11 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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How Often do you feel you actually need your B12 injection?

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All posts(75)

All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for May 2022

Covid effect on B12

Fatigue after b12 injection for PA

Gilbert’s Syndrome

Injection sites

REMINDING EVERYONE THAT IF THEY USE AMAZON , PLEASE USE “AMAZON SMILE”, And CHOOSE THE PERNICIOUS ANAEMIA SOCIETY AS THEIR CHARITY .

Vitamin C with B12, rxmedica

Possible PA?

B12 testimonials

At my wits end

Where's best to buy Panpharma ampoules from in terms of quick delivery to the UK?

MCAS AND PA

Is this hydrooxocobalamin? Translating German packaging

Converting ug/L to nmol/L or not

Short article on B12

B12 supplements

Blood tests

Severe fatigue 2 years after frequent injections

B12 deficiency and high blood pressure

Choosing needles for Luer Lock auto injector

This is probably B12D. What do you think? Medical profession got it wrong again.

Low ferritin

Injection worries

Very low serum ferritin result

Advice re repeating bloods

Can you insist on a Pernicious Anaemia Test with low B12?

Anyone speak German pls

Testing for active B12

Effectiveness of out of date B12?

Confused again, do I stop B12 injections ?

Time to buy more B12

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive