MCAS AND PA

[nessanthemum]

Does anyone here also have MCAS?

How to treat as well as inject?

[Narwhal10]

Hi Nessanthemum,

Just checking does it stand for Mast Cell Activation Syndrome ? So, you can high levels of histamine, tryptase, prostaglandins ?

[nessanthemum in reply to Narwhal10]

yes

[Sleepybunny]

Hi,

For anyone reading this thread who wants to know more about MCAS.

US link about Mast Cell Activation Syndrome

rarediseases.org/gard-rare-...

There is a UK charity "The UK Mastocytosis Support Group" which supports people with conditions that affect mast cells including Mast Cell Activation Syndrome.

ukmasto.org/#gsc.tab=0

PoTS UK , a charity for Postural Tachycardia Syndrome, has a section on MCAS as it can sometimes be associated with PoTS.

potsuk.org/about-pots/assoc...

[Narwhal10]

Sorry nessa,

I don’t have MCAS - I explored it due to hypersensitivities - sneezing, welts, nose streaming, feeling drunk and nerve pain after food, swimming.

For me, but we are all totally different, mine is mainly food related (but certain grasses and pollen) so took a DAO enzyme 15 minutes before food (sorry can’t remember what that stands for), increased the integrity of my gut and Toxaprevent.

Low histamine diet. I was pointed in the direction by a couple of people on gluten free guerillas on Healthunlocked. So, have a look or ask on there maybe. 🤷‍♀️

It’s a big jigsaw and not a one size fits all.

[Cobalt1312]

nessanthemum, I have PA but haven't been diagnosed with MCAS. I for sure have histamine intolerance and I suspect I may have MCAS because I have many, many of the symptoms across multiple body systems, horrible and extensive food intolerances and I can trace a progression of increasing severity over many years of my life, basically from childhood on.

I'm actually answering your post because I was searching Google for other people with/articles about PA and MCAS.

Recently I started taking magnesium, high dose buffered vitamin C, and something called PEA (it's an endogenous fatty lipid that helps with inflammation and mast cells) with Luetolin.

Do you have PA and MCAS?