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Pernicious Anaemia Society

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All posts for May 2022

Dizzy and nauseous day after B12 shot

I have been having injections from my GP every 12 weeks for about a year. When I had my loading doses I had side effects but since then it’s been fine - until...

I have been having injections from my GP every 12 weeks for about a year. When I...

Buffstera

•2 years ago

10 Replies

Neuropathy Flare

I have been doing B12 injections for 7 months. Twice a week for 10 weeks. The twice a week has been great and has improved my neuropathy to the point I rarely...

I have been doing B12 injections for 7 months. Twice a week for 10 weeks. The tw...

lambuth_eagle

•2 years ago

22 Replies

Advice on low B12 results

B12 levels 110ng/L [180-1,000] I have Graves’ disease and take PTU Fluctuating between hyper & hypo. Any suggestions re B12 - intrinsic antibody level came...

B12 levels 110ng/L [180-1,000] I have Graves’ disease and take PTU Fluctuating b...

Allie20

•2 years ago

6 Replies

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Golden Anniversary

Fifty years ago today I had my first loading dose of cyanocobamalin B12. Although my P.A. journey started “officially” on 10th May 1972 events from 13 years...

Fifty years ago today I had my first loading dose of cyanocobamalin B12. Althou...

clivealive

Forum Support•2 years ago

86 Replies

PA questions to improve health

Dear PAS group (I am new here) I am due to finish my 6 injection loading next week and an injection every 3 months thereafter, after being positive IF last...

Dear PAS group (I am new here) I am due to finish my 6 injection loading next we...

PAapr22

•2 years ago

11 Replies

Does it need to take Glutathione supplement for people on cyanocobalamin injection?

There are articles claiming cyanocobalamin depletes methionine because of high demand if methylation process and just small fraction converts to usable form of...

There are articles claiming cyanocobalamin depletes methionine because of high d...

Hamayeshguy

•2 years ago

8 Replies

Alpha Thalassemia plus

Hi I have just been diagnosed reaching out for some support

Bluelady-sing

•2 years ago

9 Replies

Been on B12 injections for nearly two years yet have the most awful flare up.

As many of you will already know Iam injecting daily to keep symptoms at bay. For the last 4 days I have been in agony with a flare up of gout and...

As many of you will already know Iam injecting daily to keep symptoms at bay. ...

Jillymo

•2 years ago

24 Replies

Blood results

I have been suffering with low iron for a number of years and for the first time I have had Serum Iron Tests. Can anyone help me understand the resultsbefore...

I have been suffering with low iron for a number of years and for the first time...

B52s

•2 years ago

2 Replies

MS, PA and IBS problems

Hello, I’m curious. I had mononucleosis (EBV) age 16. I was diagnosed with MS age 49. I am 59 now and was diagnosed with PA over 2 mo. ago. Here’s my...

Hello, I’m curious. I had mononucleosis (EBV) age 16. I was diagnosed with MS a...

Amethyst82bu

•2 years ago

12 Replies

Petechiae

Hi. Has anyone developed Petechiae (tiny red flat spots like a blood blister), since they started to SI B12? I have been SI EOD for 4 months and the last few...

Hi. Has anyone developed Petechiae (tiny red flat spots like a blood blister), ...

redbobbie5

•2 years ago

17 Replies

Vitaminb12 shots

Hi I am lacking vitamin b12 and have my first jab on Wednesday my doctor said I need 5 shots. Once I’ve had these 5 will everything go back to normal ?

Hi I am lacking vitamin b12 and have my first jab on Wednesday my doctor said I ...

Tjp30

•2 years ago

21 Replies

RH Negative Blood Type and B12 Deficiency

This study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4619848/ seems to say individuals with Rh negative blood types are more likely to have vitamin B...

This study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4619848/ seems to say in...

MoKayD

•2 years ago

14 Replies

B12 Self Administration

Hi there, I self injected B12 for the first time ever today. I did a intramuscular injection into my thigh but I think I did it a bit too high up on my thigh....

Hi there, I self injected B12 for the first time ever today. I did a intramuscul...

hani0902

•2 years ago

22 Replies

B12 and folate deficiency?

I have been experiencing some problems with walking and balance for some time. Left foot feels numb and seems to wander all over the place. I start off ok...

I have been experiencing some problems with walking and balance for some time. ...

Trish

•2 years ago

2 Replies

Blood tests

Hi All. Can someone tell me what blood tests I should be asking for . I have PA and atrophic gastritis and not had any tests for about 5 years. I think my iron...

Hi All. Can someone tell me what blood tests I should be asking for . I have PA ...

lifegems

•2 years ago

13 Replies

Alternating injection site…

Hi all 😊 Just need a little advice. I’ve been self administrating (IM) b12 for around a year now since my GP decided to stop my once a month injections....

Hi all 😊 Just need a little advice. I’ve been self administrating (IM) b12 f...

SallyRees

•2 years ago

24 Replies

Why cyanocobalamin injection is more helpful than hydroxocobalamin?

I inject cyanocobalamin three times a week and two times hydroxocobalamin a week. I feel difference between then but I think day after cyanocobalamin I feel...

I inject cyanocobalamin three times a week and two times hydroxocobalamin a week...

Hamayeshguy

•2 years ago

8 Replies

Help, going dotty, well more dotty.

When I first started tormenting few months ago , Thanks by the way for all the help, it's been fab. Someone, sorry can't remember who, posted a link about...

When I first started tormenting few months ago , Thanks by the way for all the h...

Polo22

•2 years ago

3 Replies

General observation on forum posting.

I don't want to make fun of people on this forum but does anyone else find the constant spelling mistakes on this forum as amusing as I do. I also have...

I don't want to make fun of people on this forum but does anyone else find the...

charks

•2 years ago

13 Replies

B12 injection hurting?

My souse and I have both done injections using b12 from vitaminquick without a problem. We also have plenty experience injecting medications over the years...

My souse and I have both done injections using b12 from vitaminquick without a p...

CanaryHound

•2 years ago

9 Replies

Ferritin

Hi my recent blood test result for Ferritin was 28ug/L which is right at the bottom of the normal range. As I was diagnosed with PA about 6 years ago my...

Hi my recent blood test result for Ferritin was 28ug/L which is right at the bo...

Amesbury

•2 years ago

2 Replies

PA and catching viruses: worse?

Hi, Was diagnosed three months ago. Loading doses and next injection from GP nurse next week, hopefully. My question is: do you find it harder to recover from...

Hi, Was diagnosed three months ago. Loading doses and next injection from GP nu...

DocAJB

•2 years ago

15 Replies

Major depression & B12 deficiency

I have major depression right now but I also have this stubborn b12 deficiency battle that’s been going on since pre covid. At this point I can’t tell if it is...

I have major depression right now but I also have this stubborn b12 deficiency b...

Purplegirl2

•2 years ago

29 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for May 2022

Dizzy and nauseous day after B12 shot

Neuropathy Flare

Advice on low B12 results

Golden Anniversary

PA questions to improve health

Does it need to take Glutathione supplement for people on cyanocobalamin injection?

Alpha Thalassemia plus

Been on B12 injections for nearly two years yet have the most awful flare up.

Blood results

MS, PA and IBS problems

Petechiae

Vitaminb12 shots

RH Negative Blood Type and B12 Deficiency

B12 Self Administration

B12 and folate deficiency?

Blood tests

Alternating injection site…

Why cyanocobalamin injection is more helpful than hydroxocobalamin?

Help, going dotty, well more dotty.

General observation on forum posting.

B12 injection hurting?

Ferritin

PA and catching viruses: worse?

Major depression & B12 deficiency

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive