Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for April 2022

Induced copper deficiency by b12 treatment

Hi, So i had treated an b12-deficiency and experienced the "worse before better" situation. To make a long story short, this actually turned out to be an...

Hi, So i had treated an b12-deficiency and experienced the "worse before better"...

SebastianB

•2 years ago

14 Replies

B12 , any links to paraprotein and light chains

I had a blood test that shows a rise from 9 to 11 for paraprotein in the blood sample. I am being monitored ( not sure what for but know it may be something to...

I had a blood test that shows a rise from 9 to 11 for paraprotein in the blood s...

PamBow

•2 years ago

9 Replies

FOR NEW MEMBERS Please use Amazon smile,and choose PAS as your charity

Amazon will donate .5 % of your purchase value to P.A.S, at no cost to you . We know that “ Every little helps”!

Amazon will donate .5 % of your purchase value to P.A.S, at no cost to you . We...

wedgewood

•2 years ago

2 Replies

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EOD makes symptoms much worse!

Injectioning EOD, my neurological symptoms seem to get much worse. Is that healing or my body trying to get rid of the b12. If I wait by the 4th day I feel...

Injectioning EOD, my neurological symptoms seem to get much worse. Is that heali...

38yroldmale

•2 years ago

5 Replies

Need Help please with Blood results and any advice for my daughter ?

Had to wait weeks to get blood test and then weeks to get results and then told Iron levels are fine when not even tested ! I have posted the results…..How do...

Had to wait weeks to get blood test and then weeks to get results and then told ...

Ryaan

•2 years ago

23 Replies

Overkill with love.

I have a most peculiar problem. I think I’ve already said that I suffer from a veritable plethora of autoimmune conditions and am in considerable pain much if...

I have a most peculiar problem. I think I’ve already said that I suffer from a v...

Twaddletop

•2 years ago

25 Replies

Pain relief for Pernicious Anemia numbness etc.

Hello everyone, this is my 2nd question on this most helpful site! My question is as follows, I’am self-injecting B12, subcutaneous, weekly, I still get the...

Hello everyone, this is my 2nd question on this most helpful site! My question ...

RisingOne

•2 years ago

11 Replies

Easter

Hope everyone can have a quiet calming weekend to enjoy. The weather seems warm. Not too hot. The flowers are out.

Hope everyone can have a quiet calming weekend to enjoy. The weather seems warm....

Nackapan

•2 years ago

18 Replies

Wife has pernicious anemia looking for advise please

Hi I was wondering where people bought there injections from As I have tried to buy from places but won't send to Scotland Thanks

Hi I was wondering where people bought there injections from As I have tried t...

De8080

•2 years ago

12 Replies

Head pressure - B12?

Hello all I hope everyone is doing well. I have been receiving injections for almost 2 years. Just recently had my second child. I am experiencing alot of...

Hello all I hope everyone is doing well. I have been receiving injections for ...

Ctadds1

•2 years ago

15 Replies

Really lost.

so so fed up and in tears. The self injecting of B12 is going well, not arranged re checking of bloods yet going to ask in a few months. So I am fat, have...

so so fed up and in tears. The self injecting of B12 is going well, not arrange...

Polo22

•2 years ago

21 Replies

New to all of this Pernicious Anemia Confused about physical response?

I am new here and this is my first question ever in this group. I have pernicious anemia due to GERD and much antacids, Protein Pump inhibitors, which have...

I am new here and this is my first question ever in this group. I have pernicio...

RisingOne

•2 years ago

23 Replies

Mystery Symptoms

Hi all! I feel like I’ve posted a lot lately…my apologies, but you all are a wealth of info. I did weekly B12 injections from October to mid March. Started...

Hi all! I feel like I’ve posted a lot lately…my apologies, but you all are a wea...

lambuth_eagle

•2 years ago

9 Replies

B12

I am due for a b12 injection Wednesday and the last 2 weeks or so I’ve been exhausted . The last 4 days especially . I don’t feel refreshed after sleep and all...

I am due for a b12 injection Wednesday and the last 2 weeks or so I’ve been exha...

Annab124

•2 years ago

7 Replies

B12 and iron deficient

I had pyloric stenosis surgery at 3 months old where they take out some of the deodenum which is the area that absorbs iron and b12. I’ve had to get b12...

I had pyloric stenosis surgery at 3 months old where they take out some of the d...

OonaSt

•2 years ago

3 Replies

How to monitor injection results

I was diagnosed with B12 deficiency in May 2021, on the basis of low serum B12 (74 ng/L), some loss of sensation in my feet, and nerve conduction assessment...

I was diagnosed with B12 deficiency in May 2021, on the basis of low serum B12 ...

WiscGuy

•2 years ago

10 Replies

B12 Deficiency and Covid

Has anyone else seen this article? It's very interesting....

MoKayD

•2 years ago

22 Replies

I feel fine but my partner is worried because I need naps all the time.

When I first experienced B12D I gave up my business and retired early because I was so tired all the time. 2 years later I feel fine most of the time with a...

When I first experienced B12D I gave up my business and retired early because I ...

charks

•2 years ago

4 Replies

P.A. symptoms worse after Covid?

I self inject weekly and my symptoms have been pretty stable for years now. Last month, I was unfortunate enough to catch Covid, which hit me pretty hard. Four...

I self inject weekly and my symptoms have been pretty stable for years now. Last...

topazrat

•2 years ago

22 Replies

I possibly could have this condition

Hi people I am normally posting in Thyroid Uks brilliant forum. However one of the things that keeps cropping up. Is Low b12. My back story as follows In...

Hi people I am normally posting in Thyroid Uks brilliant forum. However one of t...

Jelley93

•2 years ago

12 Replies

Your health, your rights

Daily mail you magazine headlines..... THE DOCTOR WILL MISDIAGNOSE YOU NOW. Asking women to email them with your experience with healthcare and what changes...

Daily mail you magazine headlines..... THE DOCTOR WILL MISDIAGNOSE YOU NOW. Aski...

Hidden

•2 years ago

7 Replies

Stomach ache

I would like the community’s input on what to take when I’ve eaten something that has resulted in stomach ache please.I’m now taking the recommended Zinc and...

I would like the community’s input on what to take when I’ve eaten something t...

davina70

•2 years ago

8 Replies

Expired ampoules

Hi. Just went to do an injection and the date is 02/2022, is this still OK to use?

Hi. Just went to do an injection and the date is 02/2022, is this still OK to us...

TiredDave

•2 years ago

8 Replies

Ectopic heartbeat

Hi, My partner has had her b12 injection on Thursday and has noticed in the last two days that her heart seemed to miss a beat. She had tests on friday at the...

Hi, My partner has had her b12 injection on Thursday and has noticed in the last...

Rowcocks

•2 years ago

8 Replies

B12 and POTS

johnadahl

•2 years ago

2 Replies

B12 and vitiligo

I've had vitiligo for over 20 years. Recently and for the first time I had a vitiligo flare, where the vitiligo expanded fast and caused some itching and...

I've had vitiligo for over 20 years. Recently and for the first time I had a vi...

AlwaysTiredxxx

•2 years ago

12 Replies

More on bone pain

I realize there was a discussion on bone pain a few days ago but can’t find it. My apologies. I have unrelenting, often intolerable bone pain that has ruined...

I realize there was a discussion on bone pain a few days ago but can’t find it. ...

EiCa

•2 years ago

13 Replies

Progress

Thought send out a positive post to give others hope. I can now watch t.v with relative comfort now after 31/2 years !! With a smsll lamp on behind me ad...

Thought send out a positive post to give others hope. I can now watch t.v with ...

Nackapan

•2 years ago

26 Replies

b12

i feel very light headed when due my injection

Oakwood37

•2 years ago

4 Replies

Hydroxocobalamin injection

Where can I purchase b12 from?

christmas63

•2 years ago

3 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All posts(75)

All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for April 2022

Induced copper deficiency by b12 treatment

B12 , any links to paraprotein and light chains

FOR NEW MEMBERS Please use Amazon smile,and choose PAS as your charity

EOD makes symptoms much worse!

Need Help please with Blood results and any advice for my daughter ?

Overkill with love.

Pain relief for Pernicious Anemia numbness etc.

Easter

Wife has pernicious anemia looking for advise please

Head pressure - B12?

Really lost.

New to all of this Pernicious Anemia Confused about physical response?

Mystery Symptoms

B12

B12 and iron deficient

How to monitor injection results

B12 Deficiency and Covid

I feel fine but my partner is worried because I need naps all the time.

P.A. symptoms worse after Covid?

I possibly could have this condition

Your health, your rights

Stomach ache

Expired ampoules

Ectopic heartbeat

B12 and POTS

B12 and vitiligo

More on bone pain

Progress

b12

Hydroxocobalamin injection

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive