Actually I feel quite well,getting back to more normal, just the other half. He has definitely benefited from b12 Injections I have given him (mentally), he wasn't depressed or anything like that just inpatient and not his normal self. He very rarely nods of now. Hopefully once we get his back sorted and more mobile he will be fine.
I do hope you find the light at the end of that tunnel,
It's so frustrating wanting to do this, that and everything and the body refusing to co operate.
Great news Nackapan I’m so pleased for you it’s time you had a good positive result keep plodding xx
It's really odd isn't it. You are the only person I have heard of with this specifically, and so bad with it too, but I have heard lots of us report some visual difficulties. My vision was really blurry for months, if not a year - I don't really know because I had so little memory in or out at that point, that I almost totally "lost" about 18 months of which I can only partially recall odd incidents.
I've been under pressure to do lots lately, following a spell of being badly unwell for months and my house is in chaos. I've got to self isolate from now until Wednesday morning ahead of a small heart procedure and I'm looking forward to some time for myself to get things a bit less mad as I just can't cope with the sensory overload of things being untidy everywhere. And that's even now, with years of recovery under my belt.
It took about 3 years before I could start to talk fluently again but now I don't have any problem unless I'm tired or have a set back. My vocabulary is possibly more extensive now than it was before the deficiency crippled me and reduced me to not much more than "ug!" and "hi, how are you?" And I can now talk without pulling mad faces, which I had taken to doing! In May I'm going to do a couple of half hour talks on farms about cattle handling systems and it's only just occurred to me that I hadn't even considered my ability to talk or remember - how good is that???!!!
I don't cycle per se but do use a bike to get about locally. It took a couple of years before I could ride it with any confidence and had to use both hands on the handle bars all the time where I had lost my balance mechanism. Even now, especially if I haven't been out on it for a few weeks, I still notice improvements in my balance and reactions - and obviously if I haven't been out its not due to practice! I can ride round trickier corners and up and down more undulations without having to touch the handlebars at all! (I'm nearly 50 going on 15!!! 😜😂).
It's amazing how much progress is available to be made and people really shouldn't be too disheartened if it doesn't happen quickly - keep going and it's good how much better it's possible to get!
Nackapan, That is wonderful news with more to come I am sure. This is just the start so just keep moving forward as I was advised early on to take one day at a time. There is hope so just keep positive and don't forget to laugh once in awhile.
That's great news ! You are always such a help to everyone here, so I'm delighted that you've felt this improvement 👍 Best wishes for continuing recovery Xx
Happy news.You have worked really hard to get this far, and it's finally starting to pay off for you. If one thing can start to improve, so can others.
Hard work to keep on with a course of action that appears for a long time not particularly effective, especially without support from medical professionals. Makes you doubt yourself at times- but without anything else ruled in, what alternative options remain ?
Another example of improvement, long after predicted expiry date, demonstrating how poorly understood this condition is.
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