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Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for April 2022

B12 injections and iron

Had labs done today in preparation for my hematology check up next week. My ferritin has increased slightly, but my iron , TIBC, and sat % have all decreased...

Had labs done today in preparation for my hematology check up next week. My fer...

lambuth_eagle

•2 years ago

3 Replies

Low B12 and Elevated homocysteine (Hcy) Associated with Brain Atrophy, Cognitive Decline.

I would like to hear the experiences of others with PA regarding lingering cognitive issues and also share some of the links and reports I found during my...

I would like to hear the experiences of others with PA regarding lingering cogni...

Rexz

•2 years ago

10 Replies

Showing deficiency in several areas.

I have had a FBC (in UK NHS) WBC 3.3 10^9/L (4 - 10) RBC 441 10^12/L (4.5 - 5.5) Lymphocyte 0.6 10^9/L (1 - 3) CRP <1 so OK I think (no infection) B12 195 ng/L...

I have had a FBC (in UK NHS) WBC 3.3 10^9/L (4 - 10) RBC 441 10^12/L (4.5 - 5.5)...

omits

•2 years ago

9 Replies

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Biting tongue as you fall asleep

Does anyone suddenly bite their tongue as they fall asleep? If so what can you do about it please?

Does anyone suddenly bite their tongue as they fall asleep? If so what can you d...

lesbud1

•2 years ago

5 Replies

Devastation

It's been over a year of injections for me, and I am still left with some serious cognitive impairment, brutal digestion issues and a permanently higher MCV,...

It's been over a year of injections for me, and I am still left with some seriou...

nessanthemum

•2 years ago

5 Replies

Where to buy b12 ampoules online in the United States?

I purchased from flhcg.com at the end of last year and it was $80 for B12 Methylcobalamin 5mg/ml 30ml... I looked to rebuy today and the same product is $169....

I purchased from flhcg.com at the end of last year and it was $80 for B12 Methyl...

Irenekkkk

•2 years ago

6 Replies

Help with PA and boosting energy.

Hi, My partner has Hydroxocobalamin every 6 weeks, rotating with nhs and private. What other vitamins/ supplements can she take to boost the effectiveness?...

Hi, My partner has Hydroxocobalamin every 6 weeks, rotating with nhs and private...

Rowcocks

•2 years ago

3 Replies

Purely out of interest how many of you have been labeled with Functional Overlay ? ? ? 😱

I recently attended my Neurology appointment. The consultant wasn't very welcoming but hey ho nothing new there. He dismissed my symptoms as being related to...

I recently attended my Neurology appointment. The consultant wasn't very welcom...

Jillymo

•2 years ago

25 Replies

LATERAL FLOWS

Hello everyone. I hope you have avoided Covid. I have had it. My question is Are we eligible to order lateral flows on Gov.uk as PA is an autoimmune disorder...

Hello everyone. I hope you have avoided Covid. I have had it. My question is Ar...

dollcat

•2 years ago

4 Replies

Thank you for this wonderful forum

Hi there, Just wanted to tell you how appreciative I am for the time and effort you all put educating people about B12 deficiency. My story is similar to a lot...

Hi there, Just wanted to tell you how appreciative I am for the time and effort ...

klr19

•2 years ago

21 Replies

Low cortisol

Hi all, Apart from PA I have suspected chronic pancreatitis with exocrine pancreatic insufficiency confirmed. I have suffered with the effects of complex post...

Hi all, Apart from PA I have suspected chronic pancreatitis with exocrine pancre...

Luac

•2 years ago

3 Replies

B12 problems discussions what happened?

A lot of discussion was posted regarding symptom flares or worsening following B12 injections. Two different types of injections were noted. I would like to...

A lot of discussion was posted regarding symptom flares or worsening following B...

B12help

•2 years ago

10 Replies

High B 12 levels

Hello everyone, just a quick follow up from a previous post. I have a Sister and Aunt with PA. Over the past 12 months I have experienced dizziness, heart...

Hello everyone, just a quick follow up from a previous post. I have a Sister and...

Yodaboy

•2 years ago

5 Replies

Worse tingling and pins and needles after starting loading dose of B12 injections

Hi, I wonder if it is usual for the pins and needles and tingling to get worse after starting the loading dose? I had my first injection on Thursday, I...

Hi, I wonder if it is usual for the pins and needles and tingling to get worse a...

rogergee

•2 years ago

25 Replies

Digestive enzymes

Following a gastroscopy in Feb I’m still waiting on NHS advice for managing atrophic gastritis.I have Addisons Thyroid disease and PA.Had anyone taken these...

Following a gastroscopy in Feb I’m still waiting on NHS advice for managing atro...

davina70

•2 years ago

26 Replies

Dear Gambit62, Sleepybunny, Rexz, Wedgewood, and Nackapan

Thank you! Your responses to my query regarding specific tests that assist in determining pernicious anemia will be incredibly helpful. I looked on MyChart -...

Thank you! Your responses to my query regarding specific tests that assist in de...

Hidden

•2 years ago

4 Replies

What are the Significant Tests to Determine Pernicious Anemia

Hello Everyone...I'd like to start by saying how much I appreciate each of you. I have learned an enormous amount of information since joining this group and...

Hello Everyone...I'd like to start by saying how much I appreciate each of you. ...

Hidden

•2 years ago

9 Replies

Development of Epilepsy while PA?

Hi, I’ve had PA with neurological symptoms for nearly 9 years now and am just about to be referred to neurology at last for some of the symptoms. I have...

Hi, I’ve had PA with neurological symptoms for nearly 9 years now and am just ab...

RoseFlowerDew

•2 years ago

6 Replies

Just bone tired!

Hi everyone, I haven’t been on this forum in a long time. I am currently having my B12 injections every 6 or 7 weeks for PA. I work in a stressful job,...

Hi everyone, I haven’t been on this forum in a long time. I am currently having...

Renniekins

•2 years ago

13 Replies

Current NICE guidelines/reliability of blood tests

Good morning, Haven't posted for a while but have now joined the "new GP in post - you don't need B12 injections" group. I've got an appointment with...

Good morning, Haven't posted for a while but have now joined the "new GP in post...

sueeaton

•2 years ago

5 Replies

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Various B12D/PA resources

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Providing advice on safe sources for self injection

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All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for April 2022

B12 injections and iron

Low B12 and Elevated homocysteine (Hcy) Associated with Brain Atrophy, Cognitive Decline.

Showing deficiency in several areas.

Biting tongue as you fall asleep

Devastation

Where to buy b12 ampoules online in the United States?

Help with PA and boosting energy.

Purely out of interest how many of you have been labeled with Functional Overlay ? ? ? 😱

LATERAL FLOWS

Thank you for this wonderful forum

Low cortisol

B12 problems discussions what happened?

High B 12 levels

Worse tingling and pins and needles after starting loading dose of B12 injections

Digestive enzymes

Dear Gambit62, Sleepybunny, Rexz, Wedgewood, and Nackapan

What are the Significant Tests to Determine Pernicious Anemia

Development of Epilepsy while PA?

Just bone tired!

Current NICE guidelines/reliability of blood tests

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive