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Pernicious Anaemia Society

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All posts for September 2021

Why after injection SQ my skin on my stomach got bruised in the spot and after seven days still feel bumpy?

Fir almost six months I do subcutaneous injection and I didn't have any problem in the last 23 injection but this time looks like something is wrong and after...

Fir almost six months I do subcutaneous injection and I didn't have any problem ...

Hamayeshguy

•3 years ago

2 Replies

Covid positive and B12 d

I tested positive for Covid while healing from severe nerve damage from neglected b12 deficiency. I don't know if I'll ever get better now or have any kind of...

I tested positive for Covid while healing from severe nerve damage from neglecte...

SickNessa

•3 years ago

15 Replies

B12 levels are high but.......

Hi - I’m new to this, but will try to write my query. Got diagnosed with PA by a gastroenterologist about 6 years ago ( I don’t have the intrinsic factor) B12...

Hi - I’m new to this, but will try to write my query. Got diagnosed with PA by a...

Space69

•3 years ago

8 Replies

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Cooler mornings and numbness go hand in hand?

I was wondering if anyone else suffers with numbness in their hands as the temperature drops towards the last days of summer, and we begin into autumn? I...

I was wondering if anyone else suffers with numbness in their hands as the tempe...

Cb1963

•3 years ago

1 Reply

Confused. Please help

I was deficient in B12 levels were 103 pg/mol I started to have slight numbness so I started taking b12 sublingual 1500 mcg a day. With 3-4 days numbness...

I was deficient in B12 levels were 103 pg/mol I started to have slight numbness ...

Ft84

•3 years ago

12 Replies

First post - help please 😊

Hi everyone, I was diagnosed in May this year with Pernicious Anaemia (I had actually contacted the doctor as I had deteriorating memory- I’m 45years old) I...

Hi everyone, I was diagnosed in May this year with Pernicious Anaemia (I had act...

Sassybob

•3 years ago

2 Replies

Where Do I Live?

I’ve just been diagnosed with a severe case of dysmorphia locus, locational dysmorphia, as I am being told I can’t possibly live where I think I live. I...

I’ve just been diagnosed with a severe case of dysmorphia locus, locational dysm...

Midnight_Voice

•3 years ago

3 Replies

Is it ok to self-inject everyday when starting treatment?

Hello all. Just yesterday I gave myself an injection of B12 - that was my first sslf injection of it. I am aware of the NICE guidelines for the treatment of...

Hello all. Just yesterday I gave myself an injection of B12 - that was my first ...

Fleecie

•3 years ago

15 Replies

BUYING B12 FROM GERMANY

After Versandapo stopped delivering to the UK, I registered and set up an account with Bodfeld Apotheke . I placed an order for Rotexmedica 1ml B12 Depot with...

After Versandapo stopped delivering to the UK, I registered and set up an accoun...

WWWJAN

•3 years ago

18 Replies

Ghost: for those who feel invisible

This is an eggshell mosaic on slate called Ghost. It depicts the weird trickling sensation just under your skin with the delightful name of formication: to...

This is an eggshell mosaic on slate called Ghost. It depicts the weird trickli...

Cherylclaire

Forum Support•3 years ago

45 Replies

Buy B12 Amps

Just went to order my B12 ampules from the supplier in Germany only to be told can’t deliver to the U.K. anymore. Is it possible to get injectable amps in the...

Just went to order my B12 ampules from the supplier in Germany only to be told c...

Flatfred

•3 years ago

36 Replies

Advice on next steps

I’ve had issues with burning, numb, tingling hands and feet on and off since my second child was born 3years ago. Also worsening fatigue and aches. X2 b12...

I’ve had issues with burning, numb, tingling hands and feet on and off since my ...

haggisplant

•3 years ago

2 Replies

Blood test results. Help, please

Hi, this is my first time here so apologies if I’m in the wrong place. I recently had blood tests which show I have Hashimoto’s, but also seem to indicate...

Hi, this is my first time here so apologies if I’m in the wrong place. I recentl...

Horsey07

•3 years ago

8 Replies

Macrocytosis Help Please

Hello, Can anyone point me in the right direction? I have been injecting B12 for 3 years now and I just had blood work done that reveals I still have...

Hello, Can anyone point me in the right direction? I have been injecting B12 fo...

Dottyspotspot

•3 years ago

4 Replies

Yoga and some positivity

Hi there, I came to this forum as a B12 deficient( not PA) and with couple of neurological symptoms at extremities. Started oral B12 and symptoms got worse...

Hi there, I came to this forum as a B12 deficient( not PA) and with couple of n...

Gettingbette

•3 years ago

6 Replies

IF Test and supplementation

Hi all, I’ve often questioned myself about my PA diagnosis because it’s been playing on my mind that I had an injection 1 month, and daily sublinguals before...

Hi all, I’ve often questioned myself about my PA diagnosis because it’s been pla...

User2020-1

•3 years ago

3 Replies

thyroid problem blood tests reveal low folate?

Hi to all! I 'm new here. I took a private blood test to get to grips with low thyoid issues,( since Dec 2013)I am on levothyrosine 62.5mcgs daily. Now find...

Hi to all! I 'm new here. I took a private blood test to get to grips with low t...

Esmielola

•3 years ago

11 Replies

Small fiber neuropathy?

I went to a neurologist yesterday to see why I keep going numb in various places. He did a non needle EMG test and he said my nerves are fine. But I still...

I went to a neurologist yesterday to see why I keep going numb in various places...

WanderingSassenach

•3 years ago

7 Replies

Short of breath

I've have had pernicious anaemia since March 2019, I take 100mg of thiamine 1 three times a day,1 5mg of folic acid once a day, just before my last injection...

I've have had pernicious anaemia since March 2019, I take 100mg of thiamine 1 th...

LisaNewb

•3 years ago

3 Replies

Injecting b12

Hi there, What is the best, easiest place to inject b12 when self injecting as the upper arm awkward unless administered someone else ?

Hi there, What is the best, easiest place to inject b12 when self injecting as t...

hdroxo

•3 years ago

6 Replies

How long before an oral B12 tablet affects your Active/Serum B12 level?

Assuming for a moment that you don't have PA, and that you can successfully absorb oral B12 tablets like a healthy person (who may just have a very poor diet):...

Assuming for a moment that you don't have PA, and that you can successfully abso...

Katanaqui

•3 years ago

4 Replies

Please help me explain to my GP

I have just come off the phone to my GP in tears. I have been having palpitations and weird vibrations/juddering/pins and needles throughout my body for a...

I have just come off the phone to my GP in tears. I have been having palpitatio...

RoniB

•3 years ago

20 Replies

HoloTC and MMA results.... your opinions please !

Hi folks Just got my results from my latest tests... I have B12 injections every 3 weeks but have the feeling that I need more (nerve damage etc.) Here in...

Hi folks Just got my results from my latest tests... I have B12 injections every...

flowerjuice

•3 years ago

1 Reply

Injection research?

What is the difference between Hydroxycobalamin and Hydroxycobalamin acetate. Please

What is the difference between Hydroxycobalamin and Hydroxycobalamin acetate. P...

jaybirdxNHM

•3 years ago

3 Replies

Supplies.

Hi everyone, please can you help. I want to self inject, my problem is I have purchased the b12 ampoules without any problems. I cannot purchase the syringes...

Hi everyone, please can you help. I want to self inject, my problem is I have p...

Gernod

•3 years ago

14 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for September 2021

Why after injection SQ my skin on my stomach got bruised in the spot and after seven days still feel bumpy?

Covid positive and B12 d

B12 levels are high but.......

Cooler mornings and numbness go hand in hand?

Confused. Please help

First post - help please 😊

Where Do I Live?

Is it ok to self-inject everyday when starting treatment?

BUYING B12 FROM GERMANY

Ghost: for those who feel invisible

Buy B12 Amps

Advice on next steps

Blood test results. Help, please

Macrocytosis Help Please

Yoga and some positivity

IF Test and supplementation

thyroid problem blood tests reveal low folate?

Small fiber neuropathy?

Short of breath

Injecting b12

How long before an oral B12 tablet affects your Active/Serum B12 level?

Please help me explain to my GP

HoloTC and MMA results.... your opinions please !

Injection research?

Supplies.

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive