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Pernicious Anaemia Society

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All posts for September 2021

When to re-test?

HelloI am fairly new to injections. My B12 was below 150 before I started and my MMA and homocysteine were alarmingly high. (more than 2-3 times what they...

HelloI am fairly new to injections. My B12 was below 150 before I started and my...

EiCa

•3 years ago

8 Replies

IM or SC jabs

Please can someone tell me which type of jab is better. I am going IM but are there any benefits to going SC? Also, in that brilliant book - The forgotten...

Please can someone tell me which type of jab is better. I am going IM but are t...

Shogie

•3 years ago

7 Replies

Not sure if this is allowed

I know many people are struggling to get through to/see GP's so this is a link to petition to reinstate face to face GP consultations...

I know many people are struggling to get through to/see GP's so this is a link t...

jenny1106

•3 years ago

24 Replies

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Too much muscle weakness after five months SI . Is that normal?

I can't seat behind PC monitor to get ready for exam . Sever back pain on right shoulder connection spot to spinal cord. Even spinal cord on right side have...

I can't seat behind PC monitor to get ready for exam . Sever back pain on right ...

Hamayeshguy

•3 years ago

7 Replies

Could this be B12 deficiency?

I've been really struggling with exhaustion and breathlessness for the last 9 months. But for several years I've had lots of problems with migraines, and...

I've been really struggling with exhaustion and breathlessness for the last 9 mo...

hummingbird0009

•3 years ago

9 Replies

More advice needed.

I wrote to the practice manager as advised, about the lack of treatment. Ive just had a text message saying i dont have b12 deficiency anaemia as my...

I wrote to the practice manager as advised, about the lack of treatment. Ive jus...

Calypsoplus

•3 years ago

21 Replies

Can you believe this 14 hours before my next injection?

Dear Mr XXXXX, I have been reviewing patients on B12 injections and note you haven't had a blood test for some time. Would you please book for a b12 blood...

Dear Mr XXXXX, I have been reviewing patients on B12 injections and note you ha...

GGourmet

•3 years ago

57 Replies

Intolerance to eggs

I'm not sure if this of help to anybody but here goes. Have felt rubbish for several months, rash on chest keeps flaring up, every so often right ankle would...

I'm not sure if this of help to anybody but here goes. Have felt rubbish for sev...

Hidden

•3 years ago

9 Replies

Hi guys, is taking iron blood thinning

i have recently got some piercings and apparently blood thinners cant be taken, i dont think it is but wanted to make sure just incase , i take ferrous...

i have recently got some piercings and apparently blood thinners cant be taken,...

mabel1999

•3 years ago

2 Replies

Fortification of flour is a public health policy known to reduce neural tube defects in babies

Note: As written, no mention of B12. I know I have previously seen the concept of fortifying with folic acid possibly being a problem in those who are B12...

Note: As written, no mention of B12. I know I have previously seen the concept o...

helvella

•3 years ago

14 Replies

Advice please

MY B12 result 183 (range 180-640) all else OK incl intrinsic factor. GP won't treat unless B12 lower than 150, despite my having neurological symptoms, muscle...

MY B12 result 183 (range 180-640) all else OK incl intrinsic factor. GP won't t...

Lunadoo

•3 years ago

4 Replies

Hevert Vs rotexmedica any difference I should know???

Hi just took delivery of 20 amps of hervet hydroxocobalamin, apohealth.de very quick and ordered Monday after failed order on Sunday from other recommended...

Hi just took delivery of 20 amps of hervet hydroxocobalamin, apohealth.de very q...

DpJ1

•3 years ago

18 Replies

B12 & Pernicious Anaemia advice please

I've just been told yesterday I have B12 deficiency, injections starting on Monday. I'm pretty sure my dad (who passed away of covid in July) had pernicious...

I've just been told yesterday I have B12 deficiency, injections starting on Mond...

Mazcan

•3 years ago

8 Replies

B12 deficiency - Mood disorder in a teenager

I have been looking at articles on B12 deficiency and mental health and thought this one was interesting.......

I have been looking at articles on B12 deficiency and mental health and thought ...

Sleepybunny

•3 years ago

6 Replies

B12 ruined my face

Hello is anyone who got acne after B12 injections. I took 3 injection 1000mcg (my actually dose was 6 injection 2weeks alternate days ) i took the first...

Hello is anyone who got acne after B12 injections. I took 3 injection 1000mcg (m...

Tjprabha

•3 years ago

62 Replies

REGARDING ROTEXMEDICA B12 DEPOT

This product is now being sold under the name of Panpharma B12 depot . It has the old familiar packaging . I’m not surprised , as Panpharma purchased...

This product is now being sold under the name of Panpharma B12 depot . It has th...

wedgewood

•3 years ago

28 Replies

B12 Injections: do they cure Pernicious Anemia?

Hi, I have just been diagnosed with PA, related to vitamin B12 deficiency. My GP has prescribed a course of vitamin B12 injections (12 over the next month...

Hi, I have just been diagnosed with PA, related to vitamin B12 deficiency. My GP...

Twinsgrandad

•3 years ago

12 Replies

B12 Injections & Blood Tests

Hi all. I wonder if I could get some advice please. I was diagnosed with Pernicious Anaemia over 12 years ago after ending up in hospital for the umpteenth...

Hi all. I wonder if I could get some advice please. I was diagnosed with Pernici...

8lackBeauty

•3 years ago

6 Replies

Blurry vision?

Hello there, has anyone with pernicious Anaemia have really blurry vision sometimes? My vision seemed fine before PA.

Hello there, has anyone with pernicious Anaemia have really blurry vision someti...

Hidden

•3 years ago

37 Replies

Confused - SC or IM injections

I inject At home weekly. I’ve been reading a lot of Info about the 2 types of injections. My B12 comes in a little tiny glass bottle and I draw the liquid...

I inject At home weekly. I’ve been reading a lot of Info about the 2 types of i...

Ctadds1

•3 years ago

5 Replies

B12 Patches.

Hello, has anyone had any experience of B12 patches? I was thinking of giving them a try before going back to the GP to try to change his mind about telling me...

Hello, has anyone had any experience of B12 patches? I was thinking of giving th...

DogLover55

•3 years ago

8 Replies

Is this normal ?

Had my b12 tested in july, due to ongoing symptoms not related to my hashis ( optimal levels ) it came back at 138 pmol and the prescribing committee for my...

Had my b12 tested in july, due to ongoing symptoms not related to my hashis ( op...

Calypsoplus

•3 years ago

13 Replies

B12 now back to 'Normal'.

A few months ago I became very ill and after a series of blood tests was found to have very low B12 levels. I had all the symptoms of B12 deficiency/Pernicious...

A few months ago I became very ill and after a series of blood tests was found t...

DogLover55

•3 years ago

8 Replies

Absorption Causes

I am having to take Lanzaprozol which is a Proton Pump Inhibitor. This drug is meant to protect my gut and stomach etc. from other medication that I have to...

I am having to take Lanzaprozol which is a Proton Pump Inhibitor. This drug is m...

Barneyboy48

•3 years ago

6 Replies

Regarding ordering Rotexmedica b12 depot from German online pharmacies .

Rotexmedica a small German manufacturing pharmaceutical company were purchased by a French pharmaceutical company called Panpharma about 2years ago . This...

Rotexmedica a small German manufacturing pharmaceutical company were purchased b...

wedgewood

•3 years ago

12 Replies

Thyroid goitre ~ low folic acid

Hi not sure this is the right place , I have a thyroid goitre had a blood test , only come back that I am low in Folic acid , have been given 5mg folic acid...

Hi not sure this is the right place , I have a thyroid goitre had a blood test ...

Huxley69

•3 years ago

2 Replies

Help with b12 injetions

I've just took delivery of 100 hydroxocobalmin acetat 1ml ampoules which I purchased from Bodfield apotheke in Germany for my wife. I purchased these after...

I've just took delivery of 100 hydroxocobalmin acetat 1ml ampoules which I purch...

nastynigel

•3 years ago

23 Replies

B12 testing

I’m having a b12 test done privately with Cerascreen and they test for holotranscobalamin. Any advice appreciated

I’m having a b12 test done privately with Cerascreen and they test for holotrans...

Gwelos

•3 years ago

1 Reply

Stomach pain with co-factors

Morning, good 🙄 I cannot believe we have to go through this without proper medical support 😣 I am trying to get the necessary co-factors in, Folate, Vit D...

Morning, good 🙄 I cannot believe we have to go through this without proper medi...

MePo

•3 years ago

4 Replies

Ability to donate blood?

This is a random question, but previously I’ve liked to donate blood (it feels really worthwhile) — is this still a fine thing to do with managed PA? I found...

This is a random question, but previously I’ve liked to donate blood (it feels r...

still_elsewhere

•3 years ago

2 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for September 2021

When to re-test?

IM or SC jabs

Not sure if this is allowed

Too much muscle weakness after five months SI . Is that normal?

Could this be B12 deficiency?

More advice needed.

Can you believe this 14 hours before my next injection?

Intolerance to eggs

Hi guys, is taking iron blood thinning

Fortification of flour is a public health policy known to reduce neural tube defects in babies

Advice please

Hevert Vs rotexmedica any difference I should know???

B12 & Pernicious Anaemia advice please

B12 deficiency - Mood disorder in a teenager

B12 ruined my face

REGARDING ROTEXMEDICA B12 DEPOT

B12 Injections: do they cure Pernicious Anemia?

B12 Injections & Blood Tests

Blurry vision?

Confused - SC or IM injections

B12 Patches.

Is this normal ?

B12 now back to 'Normal'.

Absorption Causes

Regarding ordering Rotexmedica b12 depot from German online pharmacies .

Thyroid goitre ~ low folic acid

Help with b12 injetions

B12 testing

Stomach pain with co-factors

Ability to donate blood?

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive