Where to buy Hydroxocobalamin

[bluesceecee]

impossible to cope with 3 monthly NHS directive. To self inject is it possible to find supplier of Hydroxocobalamin

[fbirder]

Here is a previous thread - healthunlocked.com/pasoc/po...

[Sleepybunny]

Hi,

Have you tried asking GP if you can have injections more often?

I suggest putting queries about treatment in to a letter to GP.

Unhappy with Treatment (UK info)?

Letters to GPs about B12 deficiency

b12deficiency.info/b12-writ...

CAB NHS Complaints

citizensadvice.org.uk/healt...

MPs and devolved representatives may be worth talking to if struggling to get recommended levels of treatment in UK.

Links below indicate that those with neurological symptoms should have injections every 2 months. Even if no neuro symptoms are present, BNF guidance suggests injections can be every 2 or 3 months.

BSH Cobalamin and Folate Guidelines

b-s-h.org.uk/guidelines/gui...

BNF Hydroxycobalamin

bnf.nice.org.uk/drug/hydrox...

How many loading doses did you have at start of treatment?

My understanding is that UK patients with neuro symptoms should have more loading doses than those without. See BNF link above.

If you have a PA diagnosis or suspect you have PA, might be worth joining and talking to PAS who can offer support and info.

PAS (Pernicious Anaemia Society)

Based in Wales, UK.

pernicious-anaemia-society....

There is a helpline number that PAS members can ring.

Lots of B12 info in my replies on the the thread below eg symptoms, causes of B12 deficiency, more B12 books, B12 websites, B12 articles/documents etc.

healthunlocked.com/pasoc/po...

UK forum members have reported problems getting their B12 jabs during pandemic eg injections have been stopped/delayed/ frequency reduced or swapped for oral tablets.

I left a detailed reply about impact of pandemic on B12 treatment in UK in next link which might be of interest if you're UK based.

healthunlocked.com/pasoc/po.....

[Dolansan]

I assume you’re in UK. However if your in the US you can purchase Hydroxocobalamin from this site:

empowerpharmacy.com/drugs/h...

[Quigley2005]

Bodfeld apotheke. German site.get mine from here.very cheap