Another good article : b12deficiency... - Pernicious Anaemi...

Pernicious Anaemia Society

32,318 members23,534 posts

Another good article

Vps1980 profile image
2 Replies

b12deficiency.info/blog/tag...

Written by
Vps1980 profile image
Vps1980
To view profiles and participate in discussions please or .
2 Replies
Nackapan profile image
Nackapan

Yes is another good article. Tracey has done so much work.

I think it's very true that some dont treat b12 deficiency with the same importance ad a PA diagnosis . ??Fortunately after a very stressful time with my surgery I do get proper treatment. The Gp that gave me my results said I'd be on injections for life. I'd never seen het before and haveng since. ...shame.

Yes a definitive test for PA would be good just to know

As if you keep going with IFA tests even if you get a PA diagnosis on a 1st 2and and 3rd or 4th test . Sometimes not believed and then you are given another trst that giv4d the opposite result. and so ig goes on. I know my deficiency is not dietary .

At times I would really like to know the reason. I dont fit any on the list. Unless ive parasite lurking...yuk.

I'm certainly not at this stage going to stop injections for a IFA test. As I've been on injections it can givd a false positive if serum b12 levels high. It should've been done before injections started . I know that now.

Knew little at the time that the parietal cell antybody test is not used on it's own for a diagnosis of PA.

I was just pleased something was found to treat.

Did get very tired of the drugs offered . Being told if was dietary.

Also the pressure to take antidepressants awful.

B12 deficiency

B12 not getting to the cells

PA

Same array of 50 +symptoms affecting each individual in a different way .

No parkinsons patient is the same.

No B12 deficient person the same whatever the cause.

Only choice is oral b12 or injection. Whatever works. But never should be stopped. Shouldnt be this hard.

Vps1980 profile image
Vps1980 in reply to Nackapan

It’s just wrong the way we are treated, I’m going to ask for a second h pylori stool test as I’ve read that can deplete b12, although my total b12 has gone up by 50 in 8 weeks with no treatment, but the pain in by back and chest are getting horrendous grrrr xx

Not what you're looking for?

You may also like...

Methylation to feel good

Hi Folks, Thank you for all the advice and words of encouragement. I’ve been reading a lot of...

Another question: did anyone have all their joints crunching, clicking, and sore when their b12 dropped into deficiency range?

Another question: did anyone have all their joints crunching, clicking, and sore when their b12...

has anyone come across this? And did you find it was any good?

https://spoilmewithhealth.com/products/b12-patches-methylcobalamin-5000-mcg-and-folic-acid-0-4-mg-8-

Good Supplier Of Folate 🇬🇧

Any recommendations for 5mg supplier of folate please?

Interesting article on more sustainable B12 production

"Research at the Quadram Institute has developed sustainable manufacturing processes for B12,...