Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,058 members • 23,207 posts

All posts for November 2019

Internal vibrations

Has anyone experienced internal vibrations in limbs? This is a general occurrence not related to receiving b12 shots.

Has anyone experienced internal vibrations in limbs? This is a general occurren...

Georgiapeachy

•5 years ago

10 Replies

Anemia symptoms better then worse?

Hello there, I was diagnosed with b12 deficiency late August of this year. I received loading dose shots daily for a week, and since then a shot every week....

Hello there, I was diagnosed with b12 deficiency late August of this year. I rec...

Raiinbow

•5 years ago

7 Replies

Blood Tests

How often should you have check up and blood tests when you have Pernicious Anemia. Also do you recommend having the Shingles vacination

How often should you have check up and blood tests when you have Pernicious Ane...

babs67

•5 years ago

12 Replies

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A Specialty Lab in London

Hello. I live in Peru but am in London visiting my daughter. I read sometime ago about a one and only specialty lab in London. I have issues with my B12 for...

Hello. I live in Peru but am in London visiting my daughter. I read sometime ago...

Michele_Lettersten

•5 years ago

2 Replies

Intrinsic Factor test Negative :-(

Hi guys I'm hoping someone can advise me what to do now. I recently got my bloods back for the IF antibody test and it was negative. My symptoms got better...

Hi guys I'm hoping someone can advise me what to do now. I recently got my blood...

Bekg2k

•5 years ago

5 Replies

Foot drop and Pernicious anemia

You are not alone. Foot drop was the beginning of my quest to figure out what was wrong with me. Long story short, I scoured my medical records, lab results...

You are not alone. Foot drop was the beginning of my quest to figure out what wa...

Sharon061

•5 years ago

1 Reply

My results today

Then I had a blood infusion a month ago I still feel awful so blood has been done again my SERUM FOLATE 2.9ug/L (>3.0)LOW. SERUM FERRITIN 301. Ug/L...

Then I had a blood infusion a month ago I still feel awful so blood has been don...

Bellmitzi

•5 years ago

2 Replies

My bloods

Then I had these blood results back Admin edit - please respond on this post https://healthunlocked.com/pasoc/posts/141994548/my-results-today

Then I had these blood results back Admin edit - please respond on this post ht...

Bellmitzi

•5 years ago

1 Reply

My Bloods

Hi I’ve had a few problems with my blood lately does wafrin affect iron I’ve had an infusion A month ago plus I’m taking ferrous fumerate I’m really weak and...

Hi I’ve had a few problems with my blood lately does wafrin affect iron I’ve had...

Bellmitzi

•5 years ago

1 Reply

Help with results please

I’ve had hypothyroidism for years and have been on 1.25 grains for about 2 years but feel like I may be over medicated. Could somebody look at my recent test...

I’ve had hypothyroidism for years and have been on 1.25 grains for about 2 years...

Patriciamt

•5 years ago

2 Replies

Can someone interpret these results please

Hi these are my 22 yr old nieces results . She’s symptomatic also

Andypandy30

•5 years ago

11 Replies

Need help interpreting medichecks results

Active b12: 61.9 pmol/l Ferritin: 21.3 ug/l Folate- serum: 5.06 ug/l Thanks in advance!

Active b12: 61.9 pmol/l Ferritin: 21.3 ug/l Folate- serum: 5.06 ug/l Thanks in a...

Psherman

•5 years ago

6 Replies

Any help or advice please I’m new today

I have been suffering for 3 years with severe pain down one side mainly around upper right quadrant I have had several diagnosis but none where conclusive...

I have been suffering for 3 years with severe pain down one side mainly around u...

Whowillhelpus

•5 years ago

6 Replies

B12 transdermal oils

Is there any known efficacy for the use of B12 oils? (Transdermal delivery). I am new to all this and am very confused by the arguments for or against the...

Is there any known efficacy for the use of B12 oils? (Transdermal delivery). I ...

EiCa

•5 years ago

28 Replies

PA and Scleritis

Hi I have recently (last Friday) been diagnosed with Scleritis. It is a condition that affects the white of the eye and linked to autoimmune conditions. I am...

Hi I have recently (last Friday) been diagnosed with Scleritis. It is a conditio...

moonandback1

•5 years ago

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injection frequency

Hi All Just double checking something. I’ve been self injecting using cyanocobalamin from Spain, using their treatment protocol of once a month after the...

Hi All Just double checking something. I’ve been self injecting using cyanocobal...

Laundretta

•5 years ago

9 Replies

My cat

So I posted a few months ago about my Isabelle having the op for cancer. Today went for check up and she has Another lump on her other side 💔 I can’t cope...

So I posted a few months ago about my Isabelle having the op for cancer. Today w...

Queeniz

•5 years ago

12 Replies

I’ve heard it all NOW!!

My GPs called me today & told me to take the hospital number down so I can ring them myself for a appt & when I asked why “they can’t do it?” I was told “Cos I...

My GPs called me today & told me to take the hospital number down so I can ring ...

Queeniz

•5 years ago

5 Replies

Upcoming surgery

I was curious to know about pain medications. I am having an upcoming surgery and am I right in saying it’s only NASIDS we should stay away from? I am...

I was curious to know about pain medications. I am having an upcoming surgery a...

Nanc72

•5 years ago

8 Replies

How do I know if I have an absorption problem??

Hi, Im trying to decide between taking the 1000mcg Jarrows sublinguals or the 50mcg cyanocobalamin tablets. I’ve been taking the Jarrows for three weeks and...

Hi, Im trying to decide between taking the 1000mcg Jarrows sublinguals or the 50...

Sarahlouise1980

•5 years ago

1 Reply

Like minded people

Being able to share experiences and compare symptoms with knowledgeable fellow sufferers is a real benefit. Whilst there isn't support from the medical...

Being able to share experiences and compare symptoms with knowledgeable fellow s...

Hidden

•5 years ago

1 Reply

Are 50mcg tablets as effective as 1000mcg sublinguals?

Hello, I’ve just popped over on recommendation from the thyroid group. I’m just wondering if the 50mcg cyanocobalamin tablets I have from the chemist would be...

Hello, I’ve just popped over on recommendation from the thyroid group. I’m just ...

Sarahlouise1980

•5 years ago

24 Replies

Active B12 Private Testing in US

Looking for a way to get an active B12 / holoTC test done privately, as I don't have health insurance at the moment. I'm in the US, and every private site I've...

Looking for a way to get an active B12 / holoTC test done privately, as I don't ...

ilyfunnybunny

•5 years ago

4 Replies

PA and flu.

Hi all. I have Autoimmune PA and autoimmune hypothyroidism. I am suffering badly from flu and can't seem to get any relief. Does anyone have any remedies that...

Hi all. I have Autoimmune PA and autoimmune hypothyroidism. I am suffering badly...

Mannequin18

•5 years ago

25 Replies

Need for cause specific B12 deficiency threads for better guidance, comparison of treatments, recovery issues etc.

There are various reasons for being B12 deficient, to name a few, Pernicious Anemia Atrophic gastritis, in which your stomach lining has thinned Conditions...

There are various reasons for being B12 deficient, to name a few, Pernicious An...

nkindia

•5 years ago

2 Replies

Strange feelings after loading dose of B12

Just finished loading dose and having horrible symptoms! Bad headaches, head feels fuzzy, eyes blurry, very unsteady on my feet, so tired, muscle aches and...

Just finished loading dose and having horrible symptoms! Bad headaches, head fe...

Marrob

•5 years ago

18 Replies

Best place to get active b12 test done in the UK?

HI all, just wondered where you guys got your active B12 tests done? Are Medicheck reliable? Will GPs take this as enough evidence for treatment? Thanks in...

HI all, just wondered where you guys got your active B12 tests done? Are Medich...

mrsikon

•5 years ago

3 Replies

B12 shots and breastfeeding 🤱🏼

Hello everyone, everything regarding vit b12 deficiency is new to me..I just found out that B12 serum is 138 and I have to start vit B12 loading shots from...

Hello everyone, everything regarding vit b12 deficiency is new to me..I just fou...

AlexandraPp

•5 years ago

8 Replies

New doctor, old ignorance

Told new GP I have a clinical diagnosis of PA but would like to get to the bottom of gastric issues, diarrhoea for 15 years or more, as I think they may be...

Told new GP I have a clinical diagnosis of PA but would like to get to the botto...

Wagonwheel

•5 years ago

22 Replies

New neurologist?

Looking for advice on getting s new neurologist. For a history: 47 yo female meat eater 2 years of “mild anemia” bloodwork with nothing specific to note....

Looking for advice on getting s new neurologist. For a history: 47 yo female m...

BethCam

•5 years ago

17 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All things Pernicious Anaemia Society(76)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for November 2019

Internal vibrations

Anemia symptoms better then worse?

Blood Tests

A Specialty Lab in London

Intrinsic Factor test Negative :-(

Foot drop and Pernicious anemia

My results today

My bloods

My Bloods

Help with results please

Can someone interpret these results please

Need help interpreting medichecks results

Any help or advice please I’m new today

B12 transdermal oils

PA and Scleritis

injection frequency

My cat

I’ve heard it all NOW!!

Upcoming surgery

How do I know if I have an absorption problem??

Like minded people

Are 50mcg tablets as effective as 1000mcg sublinguals?

Active B12 Private Testing in US

PA and flu.

Need for cause specific B12 deficiency threads for better guidance, comparison of treatments, recovery issues etc.

Strange feelings after loading dose of B12

Best place to get active b12 test done in the UK?

B12 shots and breastfeeding 🤱🏼

New doctor, old ignorance

New neurologist?

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive