Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for November 2019

B12, Iron Deficiency

I was diagnosed 2mths ago with B12 & Iron deficiency, ive had the loading doses & now waiting for the 1st 12wk injection, my hair loss is a worry for me, as a...

I was diagnosed 2mths ago with B12 & Iron deficiency, ive had the loading doses ...

JacqsB12

•5 years ago

5 Replies

Puzzled

I collected my blood results today. B12 was tested despite crossing it off the blood form as Gp agreed not needed. Folate was on it . Are these akways done...

I collected my blood results today. B12 was tested despite crossing it off the b...

Nackapan

•5 years ago

18 Replies

B12 Supplement - Reaction ☹️.

I’ve been supplementing with 1000mcg Jarrows sublingual methylcobalamin for the last four weeks but think I might be allergic to it or the high dosage. I’ve...

I’ve been supplementing with 1000mcg Jarrows sublingual methylcobalamin for the ...

Sarahlouise1980

•5 years ago

19 Replies

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Molybdenum

Hi, I was recently diagnosed as extremely deficient in B12, extremely high MMA and homecysteine. (highest MMA he has on record) The bio-chemist I am working...

Hi, I was recently diagnosed as extremely deficient in B12, extremely high MMA ...

EiCa

•5 years ago

19 Replies

Help needed

Long story dont even know if Im on the right forum. My problem started 16 months ago buzzing in feet which quickly went up my leg as a kind of parathesia....

Long story dont even know if Im on the right forum. My problem started 16 months...

audreypamela

•5 years ago

5 Replies

What effects does IM B12 have on blood tests?

Hi I have had a lot of blood tests as massive stomach and right abdominal issues which doctors have not yet diagnosed. I have a blood test next for c-reactive...

Hi I have had a lot of blood tests as massive stomach and right abdominal issues...

Zoe99

•5 years ago

1 Reply

Motion sickness and B12...

Hi all While still not having resolved gp and lack of injection issues, I noticed since SI four weeks ago that as I tail off again my motion sickness has got...

Hi all While still not having resolved gp and lack of injection issues, I notice...

F1lligree

•5 years ago

6 Replies

GP stopped my B12 injections after nearly 40 years

am told I have pernicious anemia and have been having B12 injections every 12 weeks. My recent blood test shows that my B12 was “normal” Folic Acid - low...

am told I have pernicious anemia and have been having B12 injections every 12 we...

Hidden

•5 years ago

26 Replies

6 B12 loading shots, then 6 month wait?

Hi all, I’ve had my very first b12 loading shot today (after various back&forth with my GP for many years). I’m 23 years old, and have been told that my b12...

Hi all, I’ve had my very first b12 loading shot today (after various back&forth...

Tryingtofindhelp

•5 years ago

12 Replies

Doctors app today

I’m seeing my daughters gp Today . I have the information re children and b12 deficiency off the pernicious anaemia society and stichting report . I will be...

I’m seeing my daughters gp Today . I have the information re children and b12 d...

Andypandy30

•5 years ago

16 Replies

All about Low Zinc

Any experiencia out there with this combination of low zinc + low B12 The zinc tablets dont seem to function.

Any experiencia out there with this combination of low zinc + low B12 The zinc t...

Michele_Lettersten

•5 years ago

3 Replies

Syringes and needles

Could anyone let me know what needle/syringe to use and where can I buy them .

wagthedog

•5 years ago

2 Replies

How to replace B12 after anesthesia?

After reading about Nitrous Oxide I have many questions. I am scheduled for an Endoscopy and I am so frightened of the anesthesia to be used and won't be told...

After reading about Nitrous Oxide I have many questions. I am scheduled for an ...

tvellepern

•5 years ago

8 Replies

PA B12 and endurance sports - any articles?

Hi, I'm hoping to take early retirement early next year and my ambition for a while has been to return to cycling. Not the competitive cycling I've done in...

Hi, I'm hoping to take early retirement early next year and my ambition for a wh...

MontyW

•5 years ago

8 Replies

Copper deficiency and b12

Has anyone been tested for copper deficiency? I've just read about how copper deficiency can cause symptoms similar to b12 deficiency. I suppose it's rarely...

Has anyone been tested for copper deficiency? I've just read about how copper de...

palmier

•5 years ago

1 Reply

Plagued by herpes

I’ve been plagued by frequent recurrent cold sores unless I stay on acyclovir prophylaxis and now I think it’s moved from my lip to my nose and eyes. Anyone...

I’ve been plagued by frequent recurrent cold sores unless I stay on acyclovir pr...

aksundell

•5 years ago

12 Replies

A good article about PA

I love to see articles about PA in the news....

MoKayD

•5 years ago

2 Replies

Could it still be B12/PA??

Following a spell in hospital pneumonia - something was found in my stomach. Intrinsic factor positive but B12 450 Folate 6.2. On coming home IF was retested...

Following a spell in hospital pneumonia - something was found in my stomach. Int...

wenwake

•5 years ago

4 Replies

Spots

I have posted about this subject before but am wondering if when you get spots from the b12 injections if they calm down after the loading dose or do they stay...

I have posted about this subject before but am wondering if when you get spots f...

Pigpuss

•5 years ago

7 Replies

Hi I am Spider89, Introduction & I am from Perth Western Australia 56years young

Starting 2012 with 1st SCAD Followed by time in psyhiactric ward strong antidepressants given 2014 diagnosed iron deficient 1 infision given 2016 diagnosed...

Starting 2012 with 1st SCAD Followed by time in psyhiactric ward strong antidepr...

Spider89

•5 years ago

2 Replies

Stop injecting b12 before Homocysteine, MMA & Schilling Tests?

I have b12 deficiency and neurological symptoms so I have started cyanocoblamin 1000mcg injection therapy 2 days ago and I'm about to ask My Doc to run...

I have b12 deficiency and neurological symptoms so I have started cyanocoblamin ...

Shajarin

•5 years ago

9 Replies

B12 deficiency, PA and blood donation

Hi again, After introducing my case in the last post I wonder whether a blood donation can cause (or worsen an existed) PA? and more generally b12 deficiency?...

Hi again, After introducing my case in the last post I wonder whether a blood do...

Shajarin

•5 years ago

5 Replies

Private vs NHS?

Hi All As seems sadly to be the norm, my GP too has ruled out B12 deficiency & PA on the strength of blood tests falling within ‘normal ranges’, despite a 14...

Hi All As seems sadly to be the norm, my GP too has ruled out B12 deficiency & ...

Labradorfan

•5 years ago

19 Replies

Think I will give up on the NHS

I waited 3 months for an urgent appointment to see a neurologist and yesterday I walked away from the appointment with the following. You have migraines and as...

I waited 3 months for an urgent appointment to see a neurologist and yesterday I...

Sunshine1932

•5 years ago

7 Replies

Are worsening symptoms after injection could be sign of severe b12 deficiency?

Hi all, before the question itself I would introduce my case as I'm new here. I suffer from severe tiredness, muscle/joint pain and muscle weakness as well as...

Hi all, before the question itself I would introduce my case as I'm new here. I ...

Shajarin

•5 years ago

8 Replies

Deterioration

Although I am lucky enough to have monthly B12 injections through my GP and have done for a while now, I have very recently had a huge increase in the...

Although I am lucky enough to have monthly B12 injections through my GP and have...

Clags

•5 years ago

11 Replies

B12/folate

Hi everyone can any one please tell me. I've just had some results in for folate level 6.1........b12 288..coming back as normal does anyone know are they...

Hi everyone can any one please tell me. I've just had some results in for folate...

Pastie121

•5 years ago

13 Replies

Are you close to a PAS support group?

Hi, When I last clicked on tab about PAS support groups in UK on PAS website, I noticed that two new groups had started up. There are now 15 PAS support groups...

Hi, When I last clicked on tab about PAS support groups in UK on PAS website, I ...

Sleepybunny

•5 years ago

4 Replies

Day After My First Shot

Hey folks, So one day after my first shot, I can already note at least two positive changes. First, hyperhidrosis (uncontrollable excessive sweating) issues...

Hey folks, So one day after my first shot, I can already note at least two posit...

heartofstone

•5 years ago

4 Replies

B12 and low magnesium

Hi all, I’ve just had a loading dose of six B12 injections and my magnesium level has plummeted, anyone heard of that happening? Thanks!

Hi all, I’ve just had a loading dose of six B12 injections and my magnesium leve...

Marrob

•5 years ago

15 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for November 2019

B12, Iron Deficiency

Puzzled

B12 Supplement - Reaction ☹️.

Molybdenum

Help needed

What effects does IM B12 have on blood tests?

Motion sickness and B12...

GP stopped my B12 injections after nearly 40 years

6 B12 loading shots, then 6 month wait?

Doctors app today

All about Low Zinc

Syringes and needles

How to replace B12 after anesthesia?

PA B12 and endurance sports - any articles?

Copper deficiency and b12

Plagued by herpes

A good article about PA

Could it still be B12/PA??

Spots

Hi I am Spider89, Introduction & I am from Perth Western Australia 56years young

Stop injecting b12 before Homocysteine, MMA & Schilling Tests?

B12 deficiency, PA and blood donation

Private vs NHS?

Think I will give up on the NHS

Are worsening symptoms after injection could be sign of severe b12 deficiency?

Deterioration

B12/folate

Are you close to a PAS support group?

Day After My First Shot

B12 and low magnesium

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