Help needed

[audreypamela]

Long story dont even know if Im on the right forum. My problem started 16 months ago buzzing in feet which quickly went up my leg as a kind of parathesia. Couple of months later fasiculations started and now Im plagued with tight band around upper abdomen. All bloods seem normal. B12 was a bit low so I self inject every couple of days with no effect. Spinal mri was clear apart from a bit of wear and tear. Seen 2 neurologists with still ni diagnosis. 2 nerve and muscle tests were clear. 2nd neurologist said it was health related anxiety. Dont know where to turn to. Feeling desperate

[fbirder]

"I self inject every couple of days with no effect"

I often say that the only 'gold standard' test for a B12 deficiency is - 'Do you respond positively to B12 injections'. The fact that you do not strongly suggests that your symptoms are not caused by B12.

[ChrisG123]

I have fasciculations in my legs as well. Neurologist diagnosed it as benign fasciculation syndrome (BFS) but I tested positive for Lyme disease 5 months later. Have you checked into Lyme?

Magnesium, vitamin D, and a bunch of other supplements help me. Also, I use Green Dragon Botanicals LB Core forth Lyme.

[audreypamela in reply to ChrisG123]

Thanks Chris. Yes lyme was negative

[ChrisG123 in reply to audreypamela]

Keep in mind that Lyme tests can be false negative 50% of the time 😬. I was negative once on a simple Western Blot test, then unequivocal on an igenex.com test, then positive on another antibody test... good luck with the search!

[audreypamela in reply to ChrisG123]

Worth looking into Chris. Thank you.